Opportunity Information: Apply for HRSA 17 079
Apply for HRSA 17 079
- The Department of Health and Human Services, Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Sickle Cell Disease Newborn Screening Follow-Up Program" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110.
- This funding opportunity was created on Sep 09, 2016.
- Applicants must submit their applications by Nov 10, 2016. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
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Opportunity Summary:
The Sickle Cell Disease Newborn Screening Follow-Up Program (HRSA 17-079) is a discretionary federal grant opportunity from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA). It is offered as a cooperative agreement, meaning the awardee would be expected to work closely with HRSA in carrying out the project. The program sits within HRSA's health-focused funding portfolio (CFDA 93.110) and was designed to strengthen the systems that connect newborn screening results to timely, consistent care and family support for sickle cell disease and sickle cell trait.
The main purpose of the opportunity is to fund a Sickle Cell Newborn Screening Technical Assistance Center (TAC). This TAC would function as a national or central resource that helps reduce "loss to follow-up" after universal newborn screening identifies a baby with sickle cell disease (SCD) or sickle cell trait. In practical terms, the TAC is meant to improve what happens after the initial screening result: making sure families are contacted, understand the diagnosis or trait status, and are successfully linked to appropriate medical and supportive services rather than falling through the cracks during early infancy and childhood.
A core strategy emphasized in the announcement is supporting community-based organizations (CBOs) that work in sickle cell education and service coordination. The TAC would build the capacity of these CBOs so they can better assist families with navigation and follow-through, including counseling and education, connecting families to a consistent source of comprehensive care (often described as access to a "medical home"), and helping coordinate additional supports that families may need. The overall intent is to improve continuity of care and outcomes by strengthening community-facing organizations that are often trusted and culturally connected to the families most affected.
The primary population focus is families of individuals identified through newborn screening as having sickle cell disease or sickle cell trait. While the clinical urgency and care needs differ between disease and trait, the program recognizes that both results require clear communication, education, and appropriate follow-up so families understand health implications, inheritance, and any recommended next steps. By centering families and follow-up systems, the program aims to ensure early linkage to care for infants with SCD and accurate, supportive counseling for those identified with trait.
From an administrative standpoint, HRSA anticipated making one award under this announcement. The listing notes an award ceiling of 0, which typically indicates that the specific maximum award amount was not stated in the summarized data field, rather than implying no funding. The opportunity was originally posted on September 9, 2016, with an original closing date of November 10, 2016. Eligibility is broadly labeled as "Others," with further clarification referenced in the full announcement under an additional eligibility section, implying that nontraditional entities or specific types of organizations (potentially including nonprofits, CBOs, or other qualified groups) may have been targeted, depending on the detailed requirements in the complete funding notice.
In short, this grant opportunity focuses on improving the real-world follow-up pipeline after newborn screening for sickle cell conditions by funding a technical assistance center that strengthens community-based education and care coordination. The intended impact is fewer missed follow-ups, better-informed families, earlier and more reliable connection to ongoing healthcare, and stronger supportive services for families navigating a new diagnosis identified at birth.
Frequently Asked Questions (FAQs): Sickle Cell Disease Newborn Screening Follow-Up Program (HRSA 17-079)
What is the Sickle Cell Disease Newborn Screening Follow-Up Program (HRSA 17-079)?
It is a discretionary federal grant opportunity from the U.S. Department of Health and Human Services (HHS), administered by the Health Resources and Services Administration (HRSA). The program is focused on strengthening follow-up systems after universal newborn screening identifies sickle cell disease (SCD) or sickle cell trait.
What type of funding mechanism is this opportunity?
This opportunity is offered as a cooperative agreement. That means the awardee would be expected to work closely with HRSA while carrying out the project, rather than operating fully independently.
What is the main purpose of this grant?
The main purpose is to fund a Sickle Cell Newborn Screening Technical Assistance Center (TAC). The TAC would serve as a national or central resource to improve what happens after an initial newborn screening result, particularly by reducing loss to follow-up.
What does "loss to follow-up" mean in this context?
Loss to follow-up refers to situations where, after a newborn screening indicates SCD or sickle cell trait, the family is not successfully reached, does not receive clear information, or does not get connected to appropriate medical care and supportive services. The TAC is intended to reduce these gaps.
What would the Technical Assistance Center (TAC) do?
Based on the program description, the TAC would function as a centralized support resource to strengthen follow-up systems after newborn screening. Practical aims include improving family contact, helping families understand screening results, and ensuring families are linked to appropriate medical and supportive services rather than falling through the cracks.
Who is the primary population this program is intended to help?
The primary population focus is families of individuals identified through newborn screening as having sickle cell disease or sickle cell trait.
Does the program focus on sickle cell disease, sickle cell trait, or both?
Both. The program recognizes that SCD and sickle cell trait have different clinical implications, but both require clear communication, education, and appropriate follow-up so families understand health implications, inheritance, and any recommended next steps.
Why is follow-up important after a newborn screening result?
The opportunity is designed around the idea that screening alone is not enough. The intended impact comes from what happens next: timely and consistent care for infants with SCD and accurate, supportive counseling and education for families of infants identified with sickle cell trait.
How does the program propose improving follow-up outcomes?
A core strategy emphasized is supporting and building the capacity of community-based organizations (CBOs) involved in sickle cell education and service coordination. Strengthening trusted community-facing organizations is presented as a key way to improve continuity of care and reduce missed follow-ups.
What role do community-based organizations (CBOs) play in this program?
The announcement emphasizes that the TAC would support CBOs that work in sickle cell education and service coordination. The intent is for CBOs to help families with navigation and follow-through, including counseling and education, and connecting families to medical and supportive services.
What does "build the capacity" of CBOs mean here?
In this context, it refers to strengthening CBOs so they can more effectively assist families, such as improving navigation support, education and counseling efforts, and coordination that helps families successfully connect to comprehensive care and other services they may need.
What is meant by connecting families to a "medical home"?
The opportunity describes linking families to a consistent source of comprehensive care, often referred to as access to a "medical home." In the program framing, this supports continuity of care for infants and children identified through newborn screening.
Is this program intended to operate nationally or locally?
The TAC is described as a national or central resource, indicating the design is meant to support follow-up improvement broadly, not limited to a single community, even though it includes a strong emphasis on community-based organizations.
Which federal agency administers this grant?
It is administered by HRSA (Health Resources and Services Administration), within the U.S. Department of Health and Human Services (HHS).
What is the CFDA number associated with this opportunity?
The opportunity is listed within HRSA's health-focused funding portfolio under CFDA 93.110.
How many awards did HRSA anticipate making under this announcement?
HRSA anticipated making one award under this announcement.
What is the award ceiling for this funding opportunity?
The listing notes an award ceiling of 0. In the provided summary, this is explained as typically meaning the maximum award amount was not stated in that summarized data field, rather than indicating that no funding would be provided.
When was the opportunity posted and when did it close?
The opportunity was originally posted on September 9, 2016, with an original closing date of November 10, 2016.
Who is eligible to apply?
Eligibility is broadly labeled as "Others." The summary indicates further clarification is referenced in the full announcement under an additional eligibility section, suggesting that specific types of organizations (potentially including nonprofits, CBOs, or other qualified groups) may have been targeted depending on the full funding notice requirements.
What makes this opportunity different from a typical grant?
It is structured as a cooperative agreement, which signals substantial involvement and collaboration with HRSA during project implementation. The work is also centered on creating and operating a Technical Assistance Center that supports broader systems and organizations, not only direct service delivery.
What outcomes is the program trying to achieve?
The intended impact is fewer missed follow-ups after newborn screening, better-informed families, earlier and more reliable connections to ongoing healthcare for infants with SCD, and stronger supportive services and counseling for families navigating results related to SCD or sickle cell trait.
Is this grant focused on screening itself or what happens after screening?
The emphasis is on the follow-up pipeline after newborn screening. The program is designed to strengthen the systems that connect screening results to timely, consistent care and family support.
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