Opportunity Information: Apply for HRSA 09 256
Apply for HRSA 09 256
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Congenital Conditions" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on Jun 29, 2009 and posted on Jun 11, 2009.
- Applicants must submit their applications by Jul 15, 2009. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $820,000.00 to eligible and selected applicants.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- A) a State or a political subdivision of a State (B) a consortium of 2 or more States or political subdivisions of States (C) a territory (D) a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service or (E) any other entity with appropriate expertise in prenatally and postnatally diagnosed conditions (including nationally recognized disability groups), as determined by the Secretary
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Opportunity Summary:
The Congenital Conditions grant opportunity (HRSA-09-256) is a discretionary Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau program offered as a cooperative agreement to strengthen awareness, education, and direct family support following a prenatal or postnatal diagnosis of a congenital condition. Its core aim is to make sure families are not left to navigate a life-changing diagnosis alone or with outdated, incomplete, or biased information. The program specifically calls out Down syndrome, spina bifida, and dwarfism, but it is also open to other conditions diagnosed either before birth or after birth, with services focused on the period when families most urgently need guidance: from the time of a positive prenatal result through birth and up to one year after the child is born.
At the center of the work is the collection and dissemination of current, science-based, evidence-based information, paired with coordinated supportive services for parents and families receiving a diagnosis. The opportunity emphasizes collaboration: the funded organization is expected to work closely with family support groups, health professionals, state genetic services programs, and other HRSA/MCHB-funded projects. The intent is to improve both what information is available and how it is delivered, so families (including potential adoptive parents) can access reliable resources about the physical, developmental, educational, and psychosocial aspects of these conditions, and can connect to practical supports during decision-making and early caregiving.
The grant envisions several concrete service strategies. One major focus is expanding and further developing peer support programs at both national and local levels, recognizing that parent-to-parent and family-to-family support can be a critical complement to clinical counseling. Another highlighted activity is establishing a telephone hotline so parents can quickly reach knowledgeable support for information, referrals, and guidance soon after receiving test results or a diagnosis. In addition, the opportunity stresses education and awareness activities for the healthcare providers who deliver, interpret, and communicate positive screening or diagnostic results. This provider-facing component is meant to improve the quality, consistency, and sensitivity of how diagnoses are explained to families, and to ensure clinicians can link families to appropriate resources and support networks instead of leaving them to search on their own.
In terms of who can apply, eligibility is broad and includes states or political subdivisions, consortia of two or more states or subdivisions, US territories, Indian Health Service-operated or affiliated facilities/programs, and other entities with appropriate expertise in prenatally and postnatally diagnosed conditions, including nationally recognized disability groups, as determined by the Secretary. The program is structured to fund one award, with an estimated total funding amount of $820,000, and it does not require cost sharing or matching. The funding opportunity was posted June 11, 2009, with a closing date of July 15, 2009, and an archive date of August 29, 2009, indicating it is no longer open but provides a clear snapshot of HRSA priorities and an example of the kinds of family-centered congenital condition support activities the agency has funded.
Overall, this opportunity is designed to build a coordinated, family-centered support and information system that bridges medical settings and community support organizations, improves access to accurate and up-to-date information, and ensures families receiving a diagnosis have timely emotional support, practical guidance, and credible referrals during pregnancy, at delivery, and throughout the child’s first year.
Frequently Asked Questions (FAQs): Congenital Conditions Grant Opportunity (HRSA-09-256)
What is the Congenital Conditions grant opportunity (HRSA-09-256)?
The Congenital Conditions grant opportunity (HRSA-09-256) is a discretionary Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau program offered as a cooperative agreement. It is designed to strengthen awareness, education, and direct family support after a prenatal or postnatal diagnosis of a congenital condition.
What is the main goal of this program?
The core aim is to ensure families are not left to navigate a life-changing diagnosis alone or with outdated, incomplete, or biased information. The program focuses on improving access to current, science-based, evidence-based information and coordinated supportive services when families most urgently need guidance.
Which HRSA office is associated with this opportunity?
This opportunity is associated with HRSA's Maternal and Child Health Bureau (MCHB).
What kinds of diagnoses does the program focus on?
The opportunity specifically calls out Down syndrome, spina bifida, and dwarfism, but it is also open to other congenital conditions diagnosed either prenatally (before birth) or postnatally (after birth).
When are families intended to receive support under this program?
Services are focused on the time period from a positive prenatal result through birth and up to one year after the child is born, reflecting when families most urgently need guidance and coordinated support.
What types of support and services are emphasized?
The opportunity emphasizes (1) collecting and sharing current, science-based, evidence-based information; and (2) coordinating supportive services for parents and families receiving a diagnosis, including practical guidance and referrals.
What kinds of information is the program trying to make available to families?
The intent is to ensure families (including potential adoptive parents) can access reliable resources about the physical, developmental, educational, and psychosocial aspects of congenital conditions.
How does the program expect information to be delivered to families?
The opportunity aims to improve both what information is available and how it is delivered, so families can receive timely, reliable, and up-to-date resources paired with coordinated support rather than being left to search on their own.
Is peer-to-peer support part of the program design?
Yes. A major focus is expanding and further developing peer support programs at both national and local levels, recognizing parent-to-parent and family-to-family support as an important complement to clinical counseling.
Does the opportunity include a hotline component?
Yes. One highlighted activity is establishing a telephone hotline so parents can quickly reach knowledgeable support for information, referrals, and guidance soon after receiving test results or a diagnosis.
Does the program include activities aimed at healthcare providers?
Yes. The opportunity stresses education and awareness activities for healthcare providers who deliver, interpret, and communicate positive screening or diagnostic results.
What is the purpose of the provider education and awareness component?
This component is meant to improve the quality, consistency, and sensitivity of how diagnoses are explained to families, and to help ensure clinicians can link families to appropriate resources and support networks.
What kinds of collaboration are expected from the funded organization?
The funded organization is expected to work closely with family support groups, health professionals, state genetic services programs, and other HRSA/MCHB-funded projects to strengthen coordinated, family-centered support and information systems.
Who is eligible to apply for this grant opportunity?
Eligibility is broad and includes states or political subdivisions, consortia of two or more states or subdivisions, US territories, Indian Health Service-operated or affiliated facilities/programs, and other entities with appropriate expertise in prenatally and postnatally diagnosed conditions, including nationally recognized disability groups, as determined by the Secretary.
How many awards were expected under this program?
The program is structured to fund one award.
What was the estimated total funding amount?
The estimated total funding amount was $820,000.
Is cost sharing or matching required?
No. The opportunity states that it does not require cost sharing or matching.
What type of funding mechanism is used?
The opportunity is offered as a cooperative agreement, indicating a collaborative relationship between the awarding agency and the recipient during the period of performance.
When was the opportunity posted, and what were the key dates?
The funding opportunity was posted on June 11, 2009, had a closing date of July 15, 2009, and an archive date of August 29, 2009.
Is this funding opportunity still open?
No. Based on the closing and archive dates provided, the opportunity is no longer open.
What broader outcome is the program trying to achieve?
Overall, the opportunity is designed to build a coordinated, family-centered support and information system that bridges medical settings and community support organizations, improves access to accurate and up-to-date information, and ensures families have timely emotional support, practical guidance, and credible referrals during pregnancy, at delivery, and throughout the child’s first year.
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