Opportunity Information: Apply for HRSA 13 203

  • The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Coordinating Center for Access to Services for Children and Youths with Epilepsy" and is now available to receive applicants.
  • Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
  • This funding opportunity was created on May 10, 2013 and posted on May 10, 2013.
  • Applicants must submit their applications by Jun 17, 2013. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
  • The number of recipients for this funding is limited to 1 candidate(s).
  • Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
  • Applicants must be national organizations with knowledge of epilepsy and expertise in the care of individuals with epilepsy and in the education of health professionals. Applications that fail to show such experience will not be considered. Eligible ent
Apply for HRSA 13 203

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Opportunity Summary:

The HRSA grant opportunity HRSA-13-203, titled Coordinating Center for Access to Services for Children and Youths with Epilepsy, funds a single national Coordinating Center under a cooperative agreement to strengthen how state and regional epilepsy grantees help children and youth with epilepsy (CYE), especially those in rural and medically underserved communities. The overall aim is to build and support a community-based system of services that improves early identification of epilepsy and related co-occurring health conditions, expands access to healthcare and supportive services, and encourages consistent, high-quality care across different settings. A major theme throughout the announcement is moving epilepsy care closer to where families already receive services, particularly by improving how primary care practices recognize, manage, and coordinate epilepsy care in partnership with specialty providers and community organizations.

The Coordinating Center is expected to function as the backbone for the broader Epilepsy Program. That includes providing ongoing coordination and technical assistance to the funded state and regional grantees, creating structured ways for grantees to communicate and share lessons learned, and tracking whether grantees are making progress toward program goals. The Center is also responsible for actively disseminating promising approaches and best practices so that successful strategies can be replicated and sustained beyond individual project periods. To do this, HRSA anticipates practical dissemination channels such as webinars, topic-focused communities of practice, and a program website, along with other tools that help grantees translate ideas into operational changes.

A central expectation is that the Center will help grantees improve quality and consistency of care through quality improvement (QI) supports that promote comprehensive, coordinated, family-centered epilepsy care within a medical home model. In practice, this means giving grantees usable methods, templates, coaching, and other implementation supports that help primary care and community partners coordinate services, close care gaps, and improve patient and family experience. The Center is also expected to organize ongoing opportunities for grantees to present model programs, exchange best practices, and strengthen their capacity to manage data and complete performance reporting requirements, which is often one of the most challenging parts of multi-site public health programs.

Another major responsibility is building and supporting primary care learning communities, with a strong emphasis on medically underserved areas. These learning communities are intended to help primary care teams adopt and integrate evidence-based or evidence-informed clinical guidelines for epilepsy diagnosis and management, and to model team-based care that includes patients, families, primary care clinicians, and subspecialists. The announcement also highlights the need to address transitions in care, specifically helping adolescents and young adults with epilepsy move successfully from pediatric systems into adult healthcare systems. This transition focus signals that the Coordinating Center should not only support clinical practices, but also the care planning, self-management preparation, and coordination steps that reduce drop-off in care during adolescence and early adulthood.

The opportunity also places strong weight on family and youth engagement. The Coordinating Center must support grantee efforts to build the knowledge and skills of children and youth with epilepsy and their families so they can actively partner in decision making and care management. This includes improving shared decision making and ensuring families can navigate medical homes, understand treatment plans, and connect with relevant community-based supports. The grant further emphasizes public health and primary care collaboration, especially for improved data sharing and community engagement around epilepsy, implying that the Center should help bridge clinical care, public health systems, and community organizations so information and resources move more smoothly.

Evaluation and accountability are not optional elements in this program; they are core requirements. The Coordinating Center must work with a Cross-Site Evaluation Team (made up of representatives from the H98 epilepsy awardees) to identify a common set of evaluation tools and performance metrics that can be used across sites for both quantitative and qualitative assessment. The Center must also develop and implement a detailed plan describing how it will collect data to track improvements tied to the program objectives and expected outcomes. HRSA explicitly frames evaluation as part of federal expectations for fiscal transparency and demonstrable results, meaning awardees are expected to document processes, policies, activities, and outcomes in a way that supports monitoring and continuous program improvement.

The announcement lists specific expected outcomes and objectives that the Coordinating Center and its grantees should be working toward. These include increasing family and provider awareness of epilepsy signs, symptoms, and co-occurring conditions; increasing the number of families satisfied with their role in shared decision making; increasing the number of children and youth in rural and medically underserved communities who have access to a medical home; improving care coordination and communication among providers; increasing reported linkages to relevant community-based organizations; increasing the ease with which children, youth, and families can access and use services; increasing the number of youth and young adults who take responsibility for their own healthcare needs; and expanding the use of advanced technology, including health information technology, to reach and serve underserved populations.

Partnership building is another explicit deliverable. The Coordinating Center is expected to coordinate, when appropriate, with other MCHB-funded cooperative agreements such as the National Coordinating Center for the Regional Genetic and Newborn Screening Service Collaboratives and the seven Regional Genetic and Newborn Screening Service Collaboratives, and with HRSA partners like AMCHP and NACHC. The Center is also expected to promote public-private partnerships and align efforts with other federal agencies doing epilepsy-related work, including CDC, NIH, and CMS. To keep the program grounded in real-world needs, the Center must convene an active advisory committee of stakeholders, explicitly including youth and young adults with epilepsy and family members (parents and siblings), Epilepsy Foundation affiliates, and organizations with expertise in Children with Special Health Care Needs and MCHB-related programs. This advisory body is intended to guide and shape the Center's activities, not just provide symbolic input.

From an administrative perspective, this is a discretionary HRSA opportunity in the health category, offered as a cooperative agreement (which typically indicates substantial federal involvement and ongoing collaboration during the project). Only one award was expected. There is no cost sharing or matching requirement listed. Eligibility is limited to national organizations that can demonstrate both knowledge of epilepsy and expertise in caring for individuals with epilepsy and educating health professionals; applications that do not clearly demonstrate this experience would not be considered. The opportunity was posted May 10, 2013, with a closing date of June 17, 2013, and it was later archived, but the scope and structure provide a clear picture of what HRSA was seeking: a national-level coordinating entity capable of standardizing support, spreading best practices, strengthening primary care capacity, elevating family partnership, and proving results through shared evaluation across multiple state and regional epilepsy initiatives.

FAQs: HRSA-13-203 Coordinating Center for Access to Services for Children and Youths with Epilepsy

What is HRSA-13-203?

HRSA-13-203 is a Health Resources and Services Administration (HRSA) grant opportunity titled Coordinating Center for Access to Services for Children and Youths with Epilepsy. It funds a single national Coordinating Center under a cooperative agreement to strengthen how state and regional epilepsy grantees serve children and youth with epilepsy (CYE), especially those in rural and medically underserved communities.

What is the purpose of the Coordinating Center?

The Coordinating Center is intended to function as the backbone for the broader HRSA Epilepsy Program. Its purpose is to improve early identification of epilepsy and co-occurring conditions, expand access to health care and supportive services, and encourage consistent, high-quality care across settings by supporting and coordinating the work of state and regional epilepsy grantees.

How many awards were expected under this opportunity?

Only one award was expected. The funding supports a single national Coordinating Center.

What type of grant mechanism is this?

This is a cooperative agreement. That structure typically means HRSA has substantial federal involvement and ongoing collaboration with the awardee during the project period.

Is cost sharing or matching required?

No. The announcement indicates there is no cost sharing or matching requirement listed.

Who is eligible to apply?

Eligibility is limited to national organizations that can demonstrate both:

  • Knowledge of epilepsy, and
  • Expertise in caring for individuals with epilepsy and educating health professionals.

Applications that do not clearly demonstrate this experience would not be considered.

When was the opportunity posted and when did it close?

The opportunity was posted on May 10, 2013 and closed on June 17, 2013. It was later archived.

Who is the program trying to help?

The program focuses on children and youth with epilepsy (CYE), with particular emphasis on those living in rural and medically underserved communities. The work also includes a strong focus on families and on adolescents and young adults transitioning from pediatric to adult care systems.

What is a major theme or strategy emphasized in the announcement?

A major theme is moving epilepsy care closer to where families already receive services. Practically, this includes improving how primary care practices recognize, manage, and coordinate epilepsy care in partnership with specialty providers and community organizations.

What are the core responsibilities of the Coordinating Center for state and regional grantees?

The Coordinating Center is expected to:

  • Provide ongoing coordination and technical assistance to funded state and regional epilepsy grantees.
  • Create structured ways for grantees to communicate, share lessons learned, and exchange best practices.
  • Track progress toward program goals and support performance reporting.
  • Disseminate promising approaches and best practices so they can be replicated and sustained beyond individual project periods.

What dissemination channels does HRSA anticipate for sharing best practices?

HRSA anticipates practical dissemination channels such as webinars, topic-focused communities of practice, and a program website, along with other tools that help grantees translate ideas into operational changes.

What does the opportunity say about quality improvement (QI)?

The Coordinating Center is expected to support grantees with quality improvement (QI) aimed at comprehensive, coordinated, family-centered epilepsy care within a medical home model. This includes providing usable methods, templates, coaching, and implementation supports to help partners coordinate services, close care gaps, and improve patient and family experience.

What are "primary care learning communities" in this program?

The announcement calls for building and supporting primary care learning communities, with a strong emphasis on medically underserved areas. These learning communities are intended to help primary care teams adopt and integrate evidence-based or evidence-informed clinical guidelines for epilepsy diagnosis and management, and to model team-based care that includes patients, families, primary care clinicians, and subspecialists.

How does the program address transitions from pediatric to adult care?

The opportunity specifically highlights transitions in care, focusing on helping adolescents and young adults with epilepsy move successfully from pediatric systems into adult healthcare systems. This implies support for care planning, self-management preparation, and coordination steps that reduce drop-off in care during adolescence and early adulthood.

How are families and youth expected to be engaged?

Family and youth engagement is a central expectation. The Coordinating Center must support grantee efforts to build the knowledge and skills of children and youth with epilepsy and their families so they can actively partner in decision making and care management. This includes improving shared decision making and helping families navigate medical homes, understand treatment plans, and connect with community-based supports.

What does the opportunity say about collaboration between public health and primary care?

The announcement emphasizes public health and primary care collaboration, including improved data sharing and community engagement around epilepsy. The Coordinating Center is expected to help bridge clinical care, public health systems, and community organizations so information and resources move more smoothly.

What are the evaluation and accountability requirements?

Evaluation and accountability are core requirements. The Coordinating Center must work with a Cross-Site Evaluation Team (made up of representatives from the H98 epilepsy awardees) to identify a common set of evaluation tools and performance metrics that can be used across sites for both quantitative and qualitative assessment. The Center must also develop and implement a detailed plan for data collection to track improvements tied to program objectives and expected outcomes.

What is the Cross-Site Evaluation Team?

The Cross-Site Evaluation Team is described as a group made up of representatives from the H98 epilepsy awardees. The Coordinating Center must work with this team to select common evaluation tools and performance metrics that can be applied across multiple sites.

What are the expected outcomes and objectives mentioned in the announcement?

The announcement lists multiple expected outcomes and objectives, including:

  • Increasing family and provider awareness of epilepsy signs, symptoms, and co-occurring conditions.
  • Increasing the number of families satisfied with their role in shared decision making.
  • Increasing the number of children and youth in rural and medically underserved communities who have access to a medical home.
  • Improving care coordination and communication among providers.
  • Increasing reported linkages to relevant community-based organizations.
  • Increasing the ease with which children, youth, and families can access and use services.
  • Increasing the number of youth and young adults who take responsibility for their own healthcare needs.
  • Expanding the use of advanced technology, including health information technology, to reach and serve underserved populations.

What role does health information technology play in this program?

Among the expected outcomes is expanding the use of advanced technology, including health information technology, to better reach and serve underserved populations.

What partnerships is the Coordinating Center expected to build or coordinate with?

The Coordinating Center is expected to coordinate, when appropriate, with other MCHB-funded cooperative agreements such as the National Coordinating Center for the Regional Genetic and Newborn Screening Service Collaboratives and the seven Regional Genetic and Newborn Screening Service Collaboratives. The Center is also expected to coordinate with HRSA partners like AMCHP and NACHC, promote public-private partnerships, and align efforts with other federal agencies working on epilepsy-related efforts, including CDC, NIH, and CMS.

Is an advisory committee required?

Yes. The Coordinating Center must convene an active advisory committee to guide and shape the Center's activities.

Who should be included on the advisory committee?

The advisory committee must explicitly include stakeholders such as:

  • Youth and young adults with epilepsy
  • Family members (including parents and siblings)
  • Epilepsy Foundation affiliates
  • Organizations with expertise in Children with Special Health Care Needs and MCHB-related programs

What does it mean that the advisory committee should shape activities and not be symbolic?

The announcement indicates the advisory body is intended to guide and shape the Coordinating Center's activities, meaning it should have an active role in influencing priorities and approaches rather than serving as a purely formal or ceremonial group.

What does HRSA mean by strengthening care in a "medical home model"?

Within this announcement, the medical home model is tied to providing comprehensive, coordinated, family-centered epilepsy care and improving quality and consistency across settings by helping primary care and community partners coordinate services and close care gaps.

What is meant by "moving epilepsy care closer to where families already receive services"?

This refers to strengthening epilepsy recognition, management, and coordination in primary care and community settings, and improving collaboration between primary care practices, specialty providers, and community organizations so families can access consistent support without relying exclusively on specialty centers.

What are some of the most challenging program requirements that the Coordinating Center is expected to help with?

The announcement highlights that completing performance reporting requirements is often one of the most challenging parts of multi-site public health programs. The Coordinating Center is expected to strengthen grantee capacity to manage data and complete performance reporting.

What is the broader goal beyond a single project period?

The Coordinating Center is expected to actively disseminate promising approaches and best practices so successful strategies can be replicated and sustained beyond individual project periods.

What category and general type of opportunity is HRSA-13-203?

From an administrative perspective, this is a discretionary HRSA opportunity in the health category.

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