Opportunity Information: Apply for HRSA 16 056
Apply for HRSA 16 056
- The HHS-HRSA in the health sector is offering a public funding opportunity titled "Coordinating Center for Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110.
- This funding opportunity was created on Mar 07, 2016 and posted on Mar 07, 2016.
- Applicants must submit their applications by May 17, 2016. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
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Opportunity Summary:
The HRSA/Maternal and Child Health Bureau (MCHB) grant opportunity HRSA-16-056 funds a single national Coordinating Center, awarded as a cooperative agreement, to support and align the work of separate epilepsy-focused demonstration grantees funded under HRSA-16-055. The basic idea is that HRSA is not only funding on-the-ground projects to improve care for children and youth with epilepsy (CYE), but is also funding one central hub to provide structure, technical help, shared tools, and consistent evaluation across those projects so improvements spread faster and are easier to measure. The initiative is explicitly aimed at improving access to coordinated and comprehensive, high-quality care, with special focus on children and youth experiencing health disparities and those living in medically underserved or rural communities.
A major emphasis of the Coordinating Center is quality improvement (QI) infrastructure. The awardee is expected to design and run a QI learning collaborative for the HRSA-16-055 grantees, including a protocol that supports team-based testing and implementation of changes in real clinical settings. The collaborative content is centered on three linked priorities: expanding telehealth/telemedicine and mobile health (mhealth) approaches to extend specialty expertise and follow-up; strengthening youth transition from pediatric to adult-oriented care; and promoting patient- and family-centered care models, especially the patient/family-centered medical home approach. The Coordinating Center is also responsible for ensuring grantees can readily access and apply evidence-based models and best practices, including the Got Transition Six Core Elements of Health Care Transition Framework as a common, practical roadmap for transition planning.
Beyond facilitating peer learning, the Coordinating Center has a strong technical assistance and dissemination role. It must provide training and ongoing assistance to grantees through webinars, conferences, shared web-based resources, and other learning opportunities, while also identifying and spreading effective tools for outreach, collaboration, communication, and broader information dissemination. The Center is expected to help grantees locate and implement evidence-based and promising practices in key domains that are central to improving epilepsy care systems: youth and family engagement and activation; outreach that effectively reaches diverse populations; health care system transformation related to pediatric epilepsy; practical uses of health information technology to improve access and quality; operationalizing the medical home approach; clinician education and training; stakeholder partnership building; and long-term project sustainability so gains persist after grant funding.
A second major deliverable is strengthening the primary care workforce. The Coordinating Center must identify and implement an education and training system for primary care providers focused on pediatric epilepsy, and it must develop and support primary care provider learning communities where clinicians can learn from each other, share challenges, and adopt better workflows. In parallel, the Center is required to establish a cross-site state learning community for the funded awardees to compare progress, troubleshoot barriers, and coordinate solutions, helping the separate projects function like a connected network rather than isolated pilots. The Center must also convene an annual awardee meeting and produce a quarterly newsletter that highlights grantee initiatives, the Center's own activities, and practical, evidence-based information relevant to pediatric epilepsy care and systems improvement.
Evaluation and performance monitoring are central expectations, not an afterthought. The Coordinating Center must conduct ongoing assessments of grantee outcomes and objectives, including data collection and analysis, and it must provide timely performance improvement feedback back to grantees. Where feasible, the notice expects real-time or near-real-time data feedback to help teams adjust their QI efforts quickly. The awardee must implement an evaluation plan and update it annually, covering whether program objectives are being met, whether strategies are working to overcome barriers, and how data are collected, monitored, and reported across all project strategies. This positions the Coordinating Center as both a capacity builder (helping sites improve) and an accountability mechanism (ensuring progress is tracked consistently across the portfolio).
The Coordinating Center also has an explicit partnership and governance role. It must develop and maintain collaborative partnerships with relevant public and private entities, and it must convene a multidisciplinary advisory committee to guide the work. That committee must include children and youth with epilepsy and their families, alongside subject matter experts in systems of services for children and youth with special health care needs, cultural competency, rural health, health disparities, health information technology, and pediatric epilepsy. The opportunity also calls for inclusion of representatives from state Title V Children with Special Health Care Needs programs and Medicaid/CHIP agencies, reflecting the reality that sustainable access improvements often depend on coverage policy, care coordination financing, and state-level program alignment.
The funding notice sets concrete, time-bound program objectives, with progress measured as increases over baseline by August 2019. Two outcome objectives focus on practice change and collaboration: a 10 percent increase in the share of primary care providers reporting changes in how they deliver care to CYE (including adoption of medical home approaches and transition planning) as a result of training, and a 10 percent increase in partnerships created between primary care and epilepsy subspecialists attributable to the initiative. The process measures target adoption of enabling infrastructure and knowledge gains: a 10 percent increase in the proportion of clinical sites reporting increased use of health technology methods such as telehealth/telemedicine and/or mhealth; a 10 percent increase in the proportion of clinical sites implementing the Got Transition Six Core Elements framework; and a 10 percent increase in the proportion of primary care providers and families reporting increased knowledge about pediatric epilepsy within a coordinated system of services.
In short, HRSA-16-056 is designed to create a central, national backbone organization that accelerates improvement across multiple epilepsy access projects by standardizing QI support, expanding telehealth and transition best practices, building primary care capability, strengthening partnerships between primary and specialty care, and maintaining rigorous evaluation and feedback loops. The larger intended impact is a more coordinated, comprehensive system of care for children and youth with epilepsy, especially for families who face the biggest barriers due to geography, workforce shortages, or longstanding inequities in health access and outcomes.
FAQs: HRSA-16-056 (Epilepsy Coordinating Center)
What is the HRSA-16-056 funding opportunity?
HRSA-16-056 is a Maternal and Child Health Bureau (MCHB) grant opportunity that funds a single national Coordinating Center. The award is structured as a cooperative agreement, and its job is to support, align, and accelerate the work of separate epilepsy-focused demonstration grantees funded under HRSA-16-055.
How is HRSA-16-056 different from HRSA-16-055?
HRSA-16-055 funds the on-the-ground demonstration projects focused on improving care for children and youth with epilepsy (CYE). HRSA-16-056 funds one central hub (the Coordinating Center) that provides shared quality improvement infrastructure, technical assistance, common tools, and consistent evaluation across those separate HRSA-16-055 projects.
How many awards are made under HRSA-16-056?
The opportunity funds a single national Coordinating Center awardee.
What is the overall purpose of the Coordinating Center?
The Coordinating Center is meant to function as a national backbone organization that helps multiple epilepsy access projects move in the same direction, learn from each other faster, use shared evidence-based approaches, and report progress in a consistent way. The intended impact is improved access to coordinated, comprehensive, high-quality care for CYE.
Who is the initiative intended to benefit?
The initiative focuses on improving care for children and youth with epilepsy, with special emphasis on those experiencing health disparities and those living in medically underserved or rural communities.
What are the main work areas the Coordinating Center must support?
The Coordinating Center is expected to build and run a quality improvement (QI) learning collaborative, provide technical assistance and dissemination support, strengthen the primary care workforce related to pediatric epilepsy, convene cross-site learning communities, and implement robust evaluation and performance monitoring with feedback to grantees.
What is the quality improvement (QI) learning collaborative, and what must it include?
The Coordinating Center must design and run a QI learning collaborative for HRSA-16-055 grantees. This includes a QI protocol that supports team-based testing and implementation of changes in real clinical settings, so participating sites can try improvements, measure results, and spread what works.
What priority topics must the QI collaborative focus on?
The QI collaborative content is centered on three linked priorities: (1) expanding telehealth/telemedicine and mobile health (mhealth) approaches, (2) strengthening youth transition from pediatric to adult-oriented care, and (3) promoting patient- and family-centered care models, especially the patient/family-centered medical home approach.
Does the opportunity require use of any specific transition framework?
Yes. The Coordinating Center is expected to help grantees access and apply evidence-based models and best practices, including the Got Transition Six Core Elements of Health Care Transition Framework as a common roadmap for transition planning.
What technical assistance (TA) and training activities are expected?
The Coordinating Center must provide training and ongoing assistance through webinars, conferences, shared web-based resources, and other learning opportunities. It must also identify and spread effective tools for outreach, collaboration, communication, and broader information dissemination.
What kinds of evidence-based or promising practices must the Coordinating Center help sites implement?
The notice highlights several domains where the Center should help grantees identify and implement evidence-based and promising practices, including: youth and family engagement and activation; outreach that reaches diverse populations; health care system transformation related to pediatric epilepsy; practical uses of health information technology to improve access and quality; operationalizing the medical home approach; clinician education and training; stakeholder partnership building; and long-term sustainability after grant funding ends.
What is meant by expanding telehealth/telemedicine and mhealth in this initiative?
Telehealth/telemedicine and mhealth are emphasized as strategies to extend specialty expertise and improve follow-up, particularly where families face barriers such as distance, rural location, and limited specialty workforce availability.
How does HRSA-16-056 address the transition from pediatric to adult-oriented care?
Transition is one of the three core QI priorities. The Coordinating Center is expected to promote consistent transition planning practices across grantees, including supporting implementation of the Got Transition Six Core Elements framework.
How does HRSA-16-056 promote patient- and family-centered care?
Patient- and family-centered care is a required focus area, with particular emphasis on the patient/family-centered medical home approach. The Coordinating Center is expected to help grantees adopt models that center family engagement, coordination, and comprehensive care planning.
What is the Coordinating Center expected to do to strengthen the primary care workforce?
The Coordinating Center must identify and implement an education and training system for primary care providers focused on pediatric epilepsy. It must also develop and support primary care provider learning communities so clinicians can share challenges, learn from each other, and adopt improved workflows.
What is the cross-site state learning community, and why is it required?
The Coordinating Center is required to establish a cross-site state learning community for funded awardees. The purpose is to compare progress, troubleshoot barriers, coordinate solutions, and help separate projects operate as a connected network rather than isolated pilots.
Are there required convenings or regular communications?
Yes. The Coordinating Center must convene an annual awardee meeting and produce a quarterly newsletter highlighting grantee initiatives, the Center's activities, and practical, evidence-based information relevant to pediatric epilepsy care and systems improvement.
How important is evaluation and performance monitoring in HRSA-16-056?
Evaluation and performance monitoring are central expectations. The Coordinating Center must conduct ongoing assessments of grantee outcomes and objectives, including data collection and analysis, and provide timely performance improvement feedback to grantees.
Does the grant expect real-time data feedback to project sites?
Where feasible, the notice expects real-time or near-real-time data feedback so teams can adjust their QI efforts quickly.
What are the evaluation plan requirements?
The awardee must implement an evaluation plan and update it annually. The plan should address whether program objectives are being met, whether strategies are working to overcome barriers, and how data are collected, monitored, and reported across all project strategies.
What partnerships and governance structures are required?
The Coordinating Center must develop and maintain collaborative partnerships with relevant public and private entities and convene a multidisciplinary advisory committee to guide the work.
Who must be represented on the advisory committee?
The advisory committee must include children and youth with epilepsy and their families, along with experts in systems of services for children and youth with special health care needs, cultural competency, rural health, health disparities, health information technology, and pediatric epilepsy. The opportunity also calls for representatives from state Title V Children with Special Health Care Needs programs and Medicaid/CHIP agencies.
Why does the notice mention Title V and Medicaid/CHIP agencies?
The inclusion reflects the role of state programs and coverage policy in making access improvements sustainable, including issues like care coordination financing and alignment with state-level systems that serve children and youth with special health care needs.
What specific performance objectives are included in the funding notice?
The notice sets time-bound objectives measured as increases over baseline by August 2019. These include two outcome objectives focused on practice change and collaboration and several process measures focused on infrastructure adoption and knowledge gains.
What are the outcome objectives the program is aiming to improve?
By August 2019 (over baseline), the notice targets: (1) a 10 percent increase in the share of primary care providers reporting changes in how they deliver care to CYE as a result of training (including adoption of medical home approaches and transition planning), and (2) a 10 percent increase in partnerships created between primary care and epilepsy subspecialists attributable to the initiative.
What are the process measures related to technology, transition, and knowledge?
By August 2019 (over baseline), the notice targets: (1) a 10 percent increase in the proportion of clinical sites reporting increased use of health technology methods such as telehealth/telemedicine and/or mhealth; (2) a 10 percent increase in the proportion of clinical sites implementing the Got Transition Six Core Elements framework; and (3) a 10 percent increase in the proportion of primary care providers and families reporting increased knowledge about pediatric epilepsy within a coordinated system of services.
How does HRSA-16-056 encourage collaboration between primary care and epilepsy subspecialists?
Collaboration is embedded in the program goals and measured as an outcome objective, with a target increase in partnerships between primary care providers and epilepsy subspecialists attributable to the initiative.
What role does dissemination play in this grant?
Dissemination is a core responsibility. The Coordinating Center must help identify and spread effective tools, best practices, and practical information through trainings, web-based resources, newsletters, and broader information-sharing mechanisms so successful approaches can be adopted more widely.
How does this opportunity address sustainability after the grant ends?
The notice specifically lists long-term project sustainability as a domain the Coordinating Center must support, with the goal that improvements and gains persist beyond the period of grant funding.
What is the intended long-term impact of HRSA-16-056?
The larger intended impact is a more coordinated and comprehensive system of care for children and youth with epilepsy, especially for families facing major barriers due to geography, workforce shortages, and longstanding inequities in health access and outcomes.
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