Opportunity Information: Apply for HRSA 12 127
Apply for HRSA 12 127
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Critical Congenital Heart Disease Newborn Screening Demonstration Program" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on Nov 30, 2011 and posted on Nov 30, 2011.
- Applicants must submit their applications by Jan 17, 2012. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $2,100,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $300,000.00 in funding.
- The number of recipients for this funding is limited to 7 candidate(s).
- Eligible applicants include: State governments Special district governments Others (see text field entitled Additional Information on Eligibility for clarification).
- Eligible applicants include a state or a political subdivision of a state a consortium of two or more states or political subdivisions of states a territory a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service or any other entity with appropriate expertise in newborn screening. Applicants must have significant experience with newborn screening and genetics, and must show support and substantial collaboration with the state newborn screening program. In addition, to be eligible for an award, an applicant must assure that it has either (a) adopted, and implemented or (b) is in the process of adopting and implementing the guidelines and recommendations of the Advisory Committee that are adopted by the Secretary and added to the RUSP at the time the grant is awarded or renewed. Committee recommendations are available at http://www.hrsa.gov/heritabledisorderscommittee/. Eligible applicants must create a network of the state public health department and hospitals and/or birth facilities. Applications must include memoranda of agreement from the state public health department (if it is not the primary applicant) as well as participating hospitals and birthing facilities.
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Opportunity Summary:
The Critical Congenital Heart Disease (CCHD) Newborn Screening Demonstration Program is a federal grant opportunity from the Health Resources and Services Administration (HRSA) designed to help states and partner organizations strengthen how newborns are screened for critical congenital heart disease at the point of care. The core clinical approach emphasized in this program is pulse oximetry, meaning the measurement of a newborn's blood oxygen saturation shortly after birth as a way to detect serious heart defects that might otherwise be missed before a baby leaves the hospital. The program is framed as a demonstration effort, so the goal is not only to perform screening, but to develop, validate, and spread workable screening protocols and the supporting systems that make those protocols reliable and consistent across hospitals and birthing facilities.
A major focus of the funding is building and improving statewide screening infrastructure, particularly the ability to electronically report, exchange, and collect screening information from hospitals. In practice, this means establishing or expanding an electronic health information exchange or similar reporting system so that screening results can be transmitted to public health programs, tracked over time, linked to follow-up care, and analyzed for quality and outcomes. The program places a strong emphasis on turning screening into an organized public health function, not a standalone test, by ensuring results are captured, acted on quickly, and used to monitor performance across facilities.
Applicants are expected to propose work that fits into four main activity areas. First, projects should enhance or expand the capacity of state and local public health agencies and hospitals to provide screening counseling, connect screening results to appropriate follow-up health care services, and carry out quality assurance, outcomes analysis, and other surveillance activities. This includes the behind-the-scenes public health responsibilities that make screening programs effective, such as monitoring false positives/negatives, assessing timeliness of follow-up, and evaluating whether screening is actually improving detection and outcomes. Second, the program supports education and training for health care professionals and newborn screening personnel, specifically around newborn screening practices and newer technologies relevant to CCHD screening, including proper use of pulse oximetry and the protocols that guide repeat testing and referral. Third, funded projects should develop and deliver educational materials and programs for parents, families, and advocacy or support groups, with attention to appropriate literacy levels and clear explanations of screening, counseling, testing, follow-up steps, treatment pathways, and access to specialty services. Fourth, recipients are expected to establish, maintain, and operate a coordinated system to organize and assess CCHD screening and follow-up, reinforcing the idea that screening must be integrated into an ongoing statewide network rather than implemented in a fragmented way.
In terms of who can apply, eligibility is broad but still tied closely to newborn screening expertise and state collaboration. Eligible applicants include state governments, political subdivisions of states, consortia of two or more states or subdivisions, U.S. territories, Indian Health Service-operated facilities or programs (or those run through IHS contracts or grants), and other entities that can demonstrate appropriate expertise in newborn screening. Applicants must show significant experience with newborn screening and genetics and must demonstrate support and substantial collaboration with the state newborn screening program. A key requirement is that applicants either have adopted and implemented, or are actively in the process of adopting and implementing, the relevant guidelines and recommendations from the Advisory Committee on Heritable Disorders in Newborns and Children that have been adopted by the Secretary and added to the Recommended Uniform Screening Panel (RUSP) at the time of award or renewal. Another practical eligibility condition is that applicants must create a network connecting the state public health department with hospitals and/or birth facilities, and applications must include memoranda of agreement from the state public health department (if it is not the lead applicant) and from participating hospitals and birthing facilities, signaling formal commitments to participate in data sharing, screening workflows, and follow-up coordination.
This opportunity (Funding Opportunity Number HRSA-12-127; CFDA 93.110) was offered as a discretionary grant with no cost sharing or matching requirement. HRSA anticipated making 7 awards, with an estimated total funding level of $2.1 million and an award ceiling of $300,000 per award. The opportunity was posted on November 30, 2011, with an application closing date of January 17, 2012, and it was archived on February 14, 2012. Overall, the grant is aimed at helping states and partners move beyond simply adopting pulse oximetry screening and toward building durable systems that standardize protocols, train staff, educate families, ensure rapid referral and follow-up care, and produce high-quality data for ongoing quality improvement and public health surveillance.
Frequently Asked Questions (FAQs): Critical Congenital Heart Disease (CCHD) Newborn Screening Demonstration Program
What is the CCHD Newborn Screening Demonstration Program?
The Critical Congenital Heart Disease (CCHD) Newborn Screening Demonstration Program is a federal grant opportunity from the Health Resources and Services Administration (HRSA). It is designed to help states and partner organizations strengthen how newborns are screened for CCHD at the point of care, and to build the public health systems needed to make screening reliable and consistent across hospitals and birthing facilities.
What is the primary screening method emphasized by this program?
The program emphasizes pulse oximetry, which measures a newborn's blood oxygen saturation shortly after birth. This is used to help identify serious heart defects that might otherwise be missed before a baby leaves the hospital.
Is this program only about performing the screening test?
No. The program is framed as a demonstration effort. The goal is not only to perform screening, but also to develop, validate, and spread workable screening protocols and the supporting systems that make those protocols reliable, consistent, and sustainable across facilities.
What does HRSA mean by a "demonstration" program in this context?
In this context, "demonstration" means funded projects are expected to show how screening can be implemented effectively in real-world settings, including the protocols, data systems, training, education, follow-up workflows, and quality monitoring needed for strong statewide performance.
What is the grant trying to improve at the statewide level?
A major focus is building and improving statewide screening infrastructure, especially the ability to electronically report, exchange, and collect screening information from hospitals. The aim is to make screening an organized public health function where results are captured, acted on quickly, tracked over time, and analyzed for quality and outcomes.
Why is electronic reporting and information exchange such a major focus?
Electronic reporting helps ensure screening results can be transmitted to public health programs, linked to follow-up care, tracked across facilities, and analyzed for quality improvement and outcomes. This supports consistent implementation and reduces the risk that results are lost, delayed, or not connected to appropriate follow-up.
What are the main activity areas applicants are expected to address?
Applicants are expected to propose work that fits into four main activity areas:
- Enhancing or expanding capacity for screening counseling, connecting results to follow-up health care services, and conducting quality assurance, outcomes analysis, and surveillance.
- Providing education and training for health care professionals and newborn screening personnel on CCHD screening practices and relevant technologies (including proper pulse oximetry use and screening/referral protocols).
- Developing and delivering educational materials and programs for parents, families, and advocacy or support groups, written at appropriate literacy levels and covering screening, counseling, follow-up, treatment pathways, and access to specialty services.
- Establishing, maintaining, and operating a coordinated system to organize and assess CCHD screening and follow-up as an integrated statewide network.
What kinds of "public health" functions are included beyond the bedside screening?
The program highlights responsibilities such as quality assurance, outcomes analysis, and surveillance activities. Examples described include monitoring false positives and false negatives, assessing timeliness of follow-up, and evaluating whether screening improves detection and outcomes across facilities.
Does the program support training for hospital staff and screening personnel?
Yes. Education and training for health care professionals and newborn screening personnel is one of the core activity areas, including training on newborn screening practices and newer technologies relevant to CCHD screening, such as the correct use of pulse oximetry and protocols for repeat testing and referral.
Does the program include education for parents and families?
Yes. Funded projects are expected to develop and deliver educational materials and programs for parents, families, and advocacy or support groups. The materials should use appropriate literacy levels and clearly explain screening, counseling, testing, follow-up steps, treatment pathways, and access to specialty services.
What does it mean to "connect screening results to follow-up care"?
Based on the program description, this means ensuring screening results are not treated as isolated information. Results should be transmitted and acted on quickly, linked to appropriate follow-up health care services, and incorporated into systems that track referrals and outcomes over time.
Who is eligible to apply for this grant opportunity?
Eligible applicants include state governments, political subdivisions of states, consortia of two or more states or subdivisions, U.S. territories, Indian Health Service (IHS)-operated facilities or programs (or those run through IHS contracts or grants), and other entities that can demonstrate appropriate expertise in newborn screening.
Is eligibility limited to state agencies only?
No. While state governments and subdivisions are eligible, the opportunity also allows consortia, territories, IHS-operated (or IHS-supported) entities, and other organizations that can demonstrate appropriate newborn screening expertise, as long as they can show strong collaboration with the state newborn screening program.
What experience or expertise must applicants demonstrate?
Applicants must show significant experience with newborn screening and genetics. They must also demonstrate support and substantial collaboration with the state newborn screening program.
What collaboration with the state newborn screening program is required?
Applications must demonstrate support and substantial collaboration with the state newborn screening program, and must establish a network connecting the state public health department with hospitals and/or birthing facilities.
Are memoranda of agreement (MOAs) required as part of the application?
Yes. Applications must include memoranda of agreement from the state public health department (if it is not the lead applicant) and from participating hospitals and birthing facilities. These MOAs signal formal commitments related to participation in data sharing, screening workflows, and follow-up coordination.
What network is the applicant required to create?
The applicant must create a network connecting the state public health department with hospitals and/or birth facilities. The intent is to support coordinated screening and follow-up and to enable statewide data collection and quality monitoring.
Is there a requirement tied to national newborn screening guidelines or the RUSP?
Yes. A key requirement is that applicants either have adopted and implemented, or are actively adopting and implementing, the relevant guidelines and recommendations from the Advisory Committee on Heritable Disorders in Newborns and Children that have been adopted by the Secretary and added to the Recommended Uniform Screening Panel (RUSP) at the time of award or renewal.
Does this funding require cost sharing or a matching contribution?
No. This opportunity was offered with no cost sharing or matching requirement.
How many awards did HRSA anticipate making and what was the total funding?
HRSA anticipated making 7 awards, with an estimated total funding level of $2.1 million.
What was the maximum award amount?
The award ceiling was $300,000 per award.
What is the Funding Opportunity Number and CFDA number for this program?
The Funding Opportunity Number is HRSA-12-127 and the CFDA number is 93.110.
When was the opportunity posted and when did applications close?
The opportunity was posted on November 30, 2011, and the application closing date was January 17, 2012.
Is this funding opportunity still open?
No. The opportunity was archived on February 14, 2012.
What is the overall purpose of the grant in practical terms?
The grant is aimed at helping states and partners move beyond simply adopting pulse oximetry screening. It focuses on building durable systems that standardize protocols across facilities, train staff, educate families, ensure rapid referral and follow-up care, and produce high-quality data for ongoing quality improvement and public health surveillance.
What does the program mean by making screening an "organized public health function"?
It means the screening program should function as a coordinated statewide system rather than a standalone test at individual hospitals. Results should be captured electronically, shared appropriately, acted on quickly, and used to monitor performance and outcomes across hospitals and birthing facilities.
Does the program expect projects to evaluate screening performance?
Yes. The described activities include quality assurance, outcomes analysis, and surveillance, including monitoring false positives/negatives, assessing timeliness of follow-up, and evaluating whether screening is improving detection and outcomes.
Are hospitals and birthing facilities directly involved in the expected work?
Yes. The opportunity emphasizes consistent screening at the point of care and requires a network that connects hospitals and/or birthing facilities with the state public health department. It also requires formal agreements from participating hospitals and birthing facilities.
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