Opportunity Information: Apply for RFA HL 16 011
Apply for RFA HL 16 011
- The National Institutes of Health in the health sector is offering a public funding opportunity titled "Data Coordinating Center for Sickle Cell Disease Implementation Consortium (SCDIC) Using Implementation Science to Optimize Care of Adolescents and Adults with Sickle Cell Disease (U24)" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.307 Minority Health and Health Disparities Research 93.839 Blood Diseases and Resources Research.
- This funding opportunity was created on Jul 15, 2015 and posted on Jul 15, 2015.
- Applicants must submit their applications by Nov 12, 2015. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $824,000.00 to eligible and selected applicants.
- Eligible applicants include: Public and State controlled institutions of higher education State governments Special district governments Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Native American tribal governments (Federally recognized) Independent school districts Public housing authorities/Indian housing authorities Private institutions of higher education City or township governments Others (see text field entitled Additional Information on Eligibility for clarification) For profit organizations other than small businesses County governments Small businesses Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Native American tribal organizations (other than Federally recognized tribal governments).
- Other Eligible Applicants include the following Alaska Native and Native Hawaiian Serving Institutions Asian American Native American Pacific Islander Serving Institutions (AANAPISISs) Eligible Agencies of the Federal Government Faith based or Community based Organizations Hispanic serving Institutions Historically Black Colleges and Universities (HBCUs) Indian/Native American Tribal Governments (Other than Federally Recognized) Non domestic (non U.S.) Entities (Foreign Organizations) Regional Organizations Tribally Controlled Colleges and Universities (TCCUs) U.S. Territory or Possession Non domestic (non U.S.) Entities (Foreign Institutions) are not eligible to apply. Non domestic (non U.S.) components of U.S. Organizations are not eligible to apply. Foreign components, as defined in the NIH Grants Policy Statement, are not allowed.
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Opportunity Summary:
This opportunity (RFA-HL-16-011) is a National Institutes of Health (NIH) cooperative agreement (U24) to establish and run a Data Coordinating Center (DCC) for the Sickle Cell Disease Implementation Consortium (SCDIC). The consortium’s broader goal is to improve the health and well-being of adolescents and adults living with sickle cell disease (SCD) in the United States by designing and testing multi-modal, multi-sector interventions that increase the proportion of people with SCD who receive routine primary care. In practical terms, NIH is looking for a central coordinating hub that can support multiple participating clinical sites (funded under the companion clinical site announcement referenced as RFA-HL-16-010) by providing the shared data infrastructure, coordination, and analytic backbone needed to run a multi-site implementation science effort at scale.
The DCC’s role in this FOA is not to function as a standalone clinical program, but as the operational and scientific engine that makes a consortium work: standardizing data collection across sites, ensuring data quality and consistency, supporting common measures and outcomes, managing timelines and reporting, and enabling cross-site analyses that answer implementation science questions. Because the emphasis is on implementation science and improving routine primary care uptake for adolescents and adults with SCD, the coordinating center is expected to help the consortium track not only clinical outcomes, but also implementation-related outcomes such as reach, adoption, fidelity, sustainability, and other metrics tied to how interventions are delivered across real-world settings and sectors. The “multi-sector†language signals that interventions may extend beyond hematology clinics into primary care, community-based organizations, social services, schools, and other systems that shape access and continuity of care, so the DCC must be prepared to support data capture and harmonization that spans more than one type of setting.
From a funding and administrative standpoint, the award mechanism is a cooperative agreement, which typically means NIH intends to have substantial scientific and programmatic involvement during the project period. Applicants should therefore expect an environment with active coordination among NIH, the DCC, and the clinical sites, including shared governance structures, consortium-wide decision-making, and collaboratively developed protocols and deliverables. The FOA is categorized under health and is associated with CFDA numbers 93.307 (Minority Health and Health Disparities Research) and 93.839 (Blood Diseases and Resources Research), reflecting both the clinical focus on blood disorders and the strong health equity dimension of SCD.
The estimated total funding listed for this opportunity is $824,000. No cost sharing or matching is required. The opportunity was posted on July 15, 2015, with an original and current closing date of November 12, 2015, and it was archived on December 13, 2015. Even though it is archived, the details remain useful as a model for how NIH structures consortium-based coordinating centers and what capabilities are typically expected for multi-site implementation initiatives.
Eligibility is broad and includes a wide range of domestic organizations: public and private institutions of higher education, nonprofits (including 501(c)(3) and certain non-501(c)(3) entities), for-profit organizations (other than small businesses) as well as small businesses, state and local governments (including county, city/township, special districts), independent school districts, public housing authorities/Indian housing authorities, and tribal governments and organizations (including federally recognized and other-than-federally recognized entities), as well as regional organizations and U.S. territories or possessions. The FOA explicitly includes various mission- and population-focused institutions such as HBCUs, Hispanic-serving institutions, tribally controlled colleges and universities, Alaska Native and Native Hawaiian serving institutions, and AANAPISI institutions, and it also notes eligibility for faith-based or community-based organizations and eligible federal agencies. At the same time, non-U.S. entities are not eligible to apply, and foreign components are not allowed under NIH policy for this announcement; non-domestic components of U.S. organizations are also not eligible.
Overall, this FOA is best understood as NIH funding for the shared “data and coordination headquarters†of a national SCD implementation consortium, with the specific mission of enabling multiple clinical sites to test and refine real-world interventions that increase routine primary care engagement among adolescents and adults with sickle cell disease. The DCC is expected to provide the technical and methodological foundation that allows the consortium to produce credible, comparable, multi-site evidence about what works, for whom, and under what conditions, while also ensuring smooth operations, consistent measurement, high-quality data, and reliable reporting across the entire network.
Full announcement information was provided through NIH’s RFA page: http://grants.nih.gov/grants/guide/rfa-files/RFA-HL-16-011.html. For access issues, NIH listed the Office of Extramural Research (OER) webmaster contact at FBOWebmaster@OD.NIH.GOV.
FAQs: NIH RFA-HL-16-011 (U24) Data Coordinating Center for the Sickle Cell Disease Implementation Consortium
What is RFA-HL-16-011?
RFA-HL-16-011 is a National Institutes of Health (NIH) funding opportunity announcement for a cooperative agreement (U24) to establish and operate a Data Coordinating Center (DCC) for the Sickle Cell Disease Implementation Consortium (SCDIC).
What is the purpose of the Sickle Cell Disease Implementation Consortium (SCDIC)?
The consortium aims to improve the health and well-being of adolescents and adults living with sickle cell disease (SCD) in the United States by designing and testing multi-modal, multi-sector interventions that increase the proportion of people with SCD who receive routine primary care.
What is NIH looking for under this opportunity?
NIH is seeking a central coordinating hub that supports multiple participating clinical sites by providing shared data infrastructure, coordination, and analytic support needed to run a multi-site implementation science effort at scale.
What does the Data Coordinating Center (DCC) do in this consortium?
The DCC serves as the operational and scientific engine of the consortium by standardizing data collection across sites, ensuring data quality and consistency, supporting common measures and outcomes, managing timelines and reporting, and enabling cross-site analyses focused on implementation science questions.
Is the DCC intended to function as a clinical program?
No. The DCC is not intended to be a standalone clinical program. Its role is to provide the infrastructure, coordination, and analytic backbone that allows the consortium of clinical sites to function effectively.
What kinds of outcomes is the DCC expected to support?
In addition to clinical outcomes, the DCC is expected to support implementation-related outcomes tied to how interventions are delivered in real-world settings, including reach, adoption, fidelity, sustainability, and related measures.
What does "multi-sector" mean in the context of this funding opportunity?
"Multi-sector" indicates that interventions may extend beyond hematology clinics into settings such as primary care, community-based organizations, social services, schools, and other systems that influence access to and continuity of care. The DCC should be prepared to support data capture and harmonization across more than one type of setting.
How are clinical sites involved, and is there a companion announcement?
The DCC is expected to support multiple participating clinical sites funded under a companion clinical site announcement referenced as RFA-HL-16-010.
What is the award mechanism and what does it imply for how the project will be run?
The award mechanism is a cooperative agreement (U24). This typically implies substantial NIH scientific and programmatic involvement during the project period, with active coordination among NIH, the DCC, and the clinical sites, including shared governance, consortium-wide decision-making, and collaboratively developed protocols and deliverables.
What is the estimated total funding amount for this opportunity?
The estimated total funding listed for this opportunity is $824,000.
Is cost sharing or matching required?
No. The opportunity states that no cost sharing or matching is required.
What is the funding category and what CFDA numbers are associated with this FOA?
The FOA is categorized under health and is associated with CFDA numbers 93.307 (Minority Health and Health Disparities Research) and 93.839 (Blood Diseases and Resources Research).
Why are these CFDA numbers relevant to the opportunity?
They reflect both the clinical focus on blood disorders (SCD) and the health equity dimension of the research and implementation effort.
When was the opportunity posted and when did it close?
The opportunity was posted on July 15, 2015. The original and current closing date listed is November 12, 2015.
Is this opportunity still open?
No. The announcement was archived on December 13, 2015, and the closing date was November 12, 2015.
If the opportunity is archived, why might the information still be useful?
Even though it is archived, the description provides a useful model of how NIH structures consortium-based coordinating centers and the types of capabilities and responsibilities NIH typically expects for multi-site implementation initiatives.
Who is eligible to apply?
Eligibility is broad and includes many types of domestic organizations, including public and private institutions of higher education; nonprofits (including 501(c)(3) and certain non-501(c)(3) entities); for-profit organizations (including small businesses and other than small businesses); state and local governments; independent school districts; public housing authorities/Indian housing authorities; tribal governments and organizations; regional organizations; and U.S. territories or possessions. The FOA also explicitly includes faith-based or community-based organizations, eligible federal agencies, and various mission- and population-focused institutions such as HBCUs and other designated serving institutions.
Are non-U.S. organizations eligible to apply?
No. Non-U.S. entities are not eligible to apply under this announcement.
Are foreign components allowed?
No. Foreign components are not allowed under NIH policy for this announcement, and non-domestic components of U.S. organizations are also not eligible.
What types of institutions are explicitly mentioned as eligible?
The FOA explicitly mentions eligibility for institutions such as Historically Black Colleges and Universities (HBCUs), Hispanic-serving institutions, tribally controlled colleges and universities, Alaska Native and Native Hawaiian serving institutions, and AANAPISI institutions, among others.
What is the practical mission of this FOA in plain language?
NIH is funding the shared "data and coordination headquarters" for a national SCD implementation consortium, with the goal of enabling multiple clinical sites to test real-world interventions that increase routine primary care engagement among adolescents and adults with sickle cell disease.
Where can the full announcement be found?
The full announcement was provided through NIH's RFA page at: http://grants.nih.gov/grants/guide/rfa-files/RFA-HL-16-011.html
Who is listed as the contact for access issues related to the announcement page?
For access issues, NIH listed the Office of Extramural Research (OER) webmaster contact: FBOWebmaster@OD.NIH.GOV
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