Opportunity Information: Apply for HRSA 09 242
Apply for HRSA 09 242
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Effective Follow up in Newborn Screening" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on Jun 29, 2009 and posted on Jun 3, 2009.
- Applicants must submit their applications by Jul 15, 2009. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $1,200,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $400,000.00 in funding.
- The number of recipients for this funding is limited to 3 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- Friendship House Scranton, PA 141,570 RelateNow New Clarus, WI 282,150
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Opportunity Summary:
The Effective Follow up in Newborn Screening grant opportunity (HRSA-09-242) is a Health Resources and Services Administration (HRSA) discretionary funding program offered as a cooperative agreement, grounded in federal authority under the Public Health Service Act (42 U.S.C. 300b-10) as amended by the Newborn Screening Saves Lives Act of 2008. The program is tied specifically to Section 1109 of that law, which addresses improvements in newborn and child screening for heritable disorders. In practical terms, the grant is meant to strengthen how newborn screening programs and their partners track, communicate, and support care after a baby has been screened, especially once a condition is identified and the child needs ongoing services.
A central theme of the opportunity is improving both short-term and long-term follow-up by using electronic health information exchange (HIE). HRSA is looking for projects that use meaningful, structured electronic information sharing to reduce gaps between the many groups involved in newborn screening and lifelong care. That includes families and patients, primary and specialty clinicians, laboratories, public health agencies, researchers, and community-based support organizations. The idea is that timely, accurate data flow and shared access to key information can prevent missed diagnoses, delays in treatment, and loss to follow-up, while also supporting better outcomes as children grow into adolescence and adulthood.
The announcement emphasizes that applicants should align proposed activities with the Advisory Committee on Heritable Disorders in Newborns and Children statement on long-term follow-up after diagnosis. That guidance frames long-term follow-up as a lifespan responsibility, not a short handoff after the initial screen. The stated goal of long-term follow-up is to assure the best possible outcomes for individuals identified through newborn screening. The key features of that follow-up are the assurance and provision of three ongoing elements: quality chronic disease management, condition-specific treatment, and age-appropriate preventive care over the individual’s lifetime. In other words, the program is not only about confirming diagnoses and starting treatment quickly, but also about sustaining the right care over time and across transitions (for example, pediatric to adult care).
The grant also highlights four core components that strong long-term follow-up systems should include. First is care coordination through a medical home model, meaning care is organized around a consistent, patient-centered clinical setting that can coordinate across specialists and services. Second is evidence-based treatment, with care guided by proven standards and clinical best practices for each condition. Third is continuous quality improvement, so programs do not just build a process once but regularly measure performance, find weaknesses, and make targeted changes. Fourth is new knowledge discovery, reflecting the expectation that better data and coordinated systems can help generate insights about outcomes, effective interventions, and long-term benefits for individuals identified through newborn screening.
In terms of what funded projects are expected to do, HRSA anticipates grantees will implement and test models that enable electronic HIE to support effective long-term follow-up for children and youth with newborn screening-identified conditions. An important part of this is evaluation: applicants should plan to assess the benefits of improved follow-up and information exchange, including benefits that accumulate over the person’s life rather than only immediately after diagnosis. This points to tracking outcomes and system performance in a way that can demonstrate real improvements, such as better continuity of care, fewer missed appointments or lost cases, faster initiation of appropriate treatment, and stronger coordination across providers and agencies.
Administratively, the opportunity was posted June 3, 2009, with an application closing date of July 15, 2009, and an archive date of August 29, 2009. HRSA expected to make three awards, with an estimated total funding amount of $1.2 million and an award ceiling of $400,000 per award. There was no cost-sharing or matching requirement listed. The CFDA number associated with the program is 93.110 (Maternal and Child Health Federal Consolidated Programs). Eligibility is described broadly as “Others,†with additional details referenced in the full announcement; the posting also includes examples of named entities and amounts under eligibility information, indicating that applicants needed to consult the official HRSA guidance for precise eligibility rules and expectations.
For access issues or questions about the full announcement, HRSA directed applicants to the HRSA Call Center (CallCenter@HRSA.GOV) and provided phone contact options. The full announcement was hosted through HRSA’s grants portal via the additional information link included in the notice.
FAQs: Effective Follow up in Newborn Screening (HRSA-09-242)
What is the Effective Follow up in Newborn Screening grant opportunity (HRSA-09-242)?
HRSA-09-242 is a Health Resources and Services Administration (HRSA) discretionary funding opportunity offered as a cooperative agreement. It is designed to strengthen how newborn screening programs and their partners track, communicate, and support care after a baby has been screened, especially when a condition is identified and the child needs ongoing services.
What is the legal authority for this program?
The opportunity is grounded in federal authority under the Public Health Service Act (42 U.S.C. 300b-10), as amended by the Newborn Screening Saves Lives Act of 2008. It is tied specifically to Section 1109 of that law, which focuses on improvements in newborn and child screening for heritable disorders.
What is the main purpose of the grant?
The main purpose is to improve both short-term and long-term follow-up in newborn screening by strengthening electronic health information exchange (HIE) and coordinated, structured information sharing. The intent is to reduce gaps between the many groups involved in newborn screening and lifelong care so fewer children experience delays in treatment or are lost to follow-up.
What does HRSA mean by "follow-up" in this opportunity?
In this announcement, follow-up goes beyond confirming a diagnosis and starting treatment quickly. It includes sustained, long-term follow-up after diagnosis to support appropriate care across childhood, adolescence, and adulthood.
What is the focus on electronic health information exchange (HIE)?
HRSA emphasizes meaningful, structured electronic information sharing to enable timely, accurate data flow and shared access to key information across the newborn screening and care continuum. The goal is to prevent missed diagnoses, reduce delays, and improve coordination among the parties responsible for ongoing services.
Which groups are expected to benefit from improved electronic information exchange?
The opportunity specifically references information sharing among families and patients, primary and specialty clinicians, laboratories, public health agencies, researchers, and community-based support organizations.
What guidance should applicants align with for long-term follow-up?
Applicants are expected to align proposed activities with the Advisory Committee on Heritable Disorders in Newborns and Children statement on long-term follow-up after diagnosis.
How is long-term follow-up defined in the announcement?
Long-term follow-up is framed as a lifespan responsibility. The stated goal is to assure the best possible outcomes for individuals identified through newborn screening.
What elements of care does the long-term follow-up goal include?
The announcement highlights three ongoing elements to be assured and provided over an individual’s lifetime: quality chronic disease management, condition-specific treatment, and age-appropriate preventive care.
What are the four core components of strong long-term follow-up systems described in the notice?
The notice highlights four core components: (1) care coordination through a medical home model, (2) evidence-based treatment, (3) continuous quality improvement, and (4) new knowledge discovery.
What does "care coordination through a medical home model" mean in this context?
It refers to care organized around a consistent, patient-centered clinical setting that can coordinate across specialists and services, supporting continuity as needs change over time.
What does the announcement mean by "evidence-based treatment"?
It means care guided by proven standards and clinical best practices for each condition identified through newborn screening.
What is meant by "continuous quality improvement" for this program?
Continuous quality improvement means programs are expected to measure performance, identify weaknesses, and implement targeted changes over time rather than building a one-time process and leaving it unchanged.
What is "new knowledge discovery" and why is it included?
New knowledge discovery reflects the expectation that improved data and coordinated systems can generate insights about outcomes, effective interventions, and long-term benefits for individuals identified through newborn screening.
What types of projects does HRSA expect grantees to implement?
HRSA anticipates grantees will implement and test models that enable electronic HIE to support effective long-term follow-up for children and youth with conditions identified through newborn screening.
Is evaluation required or encouraged under this opportunity?
Evaluation is emphasized. Applicants are expected to plan to assess the benefits of improved follow-up and information exchange, including benefits that accrue over the person’s life, not only immediately after diagnosis.
What kinds of improvements might evaluation focus on, based on the notice?
The notice points to improvements such as better continuity of care, fewer missed appointments or lost cases, faster initiation of appropriate treatment, and stronger coordination across providers and agencies.
What type of funding mechanism is used?
This opportunity is offered as a cooperative agreement.
When was the opportunity posted and when were applications due?
The opportunity was posted on June 3, 2009. The application closing date was July 15, 2009.
What is the archive date listed for the opportunity?
The archive date was August 29, 2009.
How many awards did HRSA expect to make?
HRSA expected to make three awards.
What was the estimated total funding amount and the maximum award size?
The estimated total funding amount was $1.2 million. The award ceiling was $400,000 per award.
Was cost sharing or a match required?
No cost-sharing or matching requirement was listed in the information provided.
What is the CFDA number associated with this program?
The CFDA number associated with the program is 93.110 (Maternal and Child Health Federal Consolidated Programs).
Who was eligible to apply?
Eligibility is described broadly as "Others," with additional details referenced in the full announcement. The posting indicates that applicants needed to consult the official HRSA guidance for precise eligibility rules and expectations.
Where could applicants find the full announcement?
The full announcement was hosted through HRSA’s grants portal via the additional information link included in the notice.
Who should applicants contact for access issues or questions?
HRSA directed applicants to the HRSA Call Center at CallCenter@HRSA.GOV and provided phone contact options in the notice.
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