Opportunity Information: Apply for CDC RFA DD12 1206

  • The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "Hemoglobinopathies Surveillance, Health Promotion, and Laboratory Capacity Demonstration Project" and is now available to receive applicants.
  • Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.184 Disabilities Prevention.
  • This funding opportunity was created on Mar 30, 2012 and posted on Mar 30, 2012.
  • Applicants must submit their applications by May 30, 2012. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
  • The funding agency has allocated a total of $1,200,000.00 to eligible and selected applicants.
  • Each selected applicant is eligible to receive up to $250,000.00 in funding.
  • The number of recipients for this funding is limited to 3 candidate(s).
  • Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
  • A state governmental agency, its bona fide agent or its equivalent, as designated by the Governor, Health Office, or other state executive as the official applicant for this program. For this announcement, the term State includes the 50 states, the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, the Commonwealth of the Northern Marianna Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau.
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Opportunity Summary:

The Hemoglobinopathies Surveillance, Health Promotion, and Laboratory Capacity Demonstration Project (Funding Opportunity Number CDC RFA DD12-1206) was a Centers for Disease Control and Prevention (CDC) cooperative agreement designed to build on the earlier Registry and Surveillance for Hemoglobinopathies (RuSH) initiative. Its main goal was to expand and strengthen state-based efforts related to hemoglobinopathies (inherited blood disorders such as sickle cell disease and thalassemias) while aligning that work with the Healthy People 2020 focus area on Blood Disorders and Blood Safety. Rather than being limited to data collection alone, the opportunity was framed as a demonstration project, meaning funded recipients were expected to show workable, scalable approaches that could inform broader public health practice.

The project emphasized three connected areas. First, it focused on public health surveillance, supporting states in improving how they identify, track, and understand hemoglobinopathy-affected populations over time. This includes building or enhancing registry-like functions, using reliable case definitions, and strengthening the ability to describe disease burden, outcomes, and service needs across communities. Second, it supported health promotion and prevention awareness activities, reflecting the idea that better data should translate into better public-facing education, targeted outreach, and prevention-oriented messaging for affected individuals, families, and providers. Third, it aimed to build laboratory capacity, recognizing that hemoglobinopathy surveillance and care depend heavily on accurate testing, confirmatory diagnostics, and strong laboratory systems that can support population-level monitoring and quality assurance.

Administratively, this was a discretionary funding opportunity using a cooperative agreement mechanism, which typically means CDC would have substantial involvement beyond simply issuing funds, such as providing technical assistance, coordination, or shared implementation expectations. The total estimated funding amount was 1,200,000 dollars, with an expected three awards. The listed award ceiling was 250,000 dollars per award (with no stated award floor), and there was no cost sharing or matching requirement.

Eligibility was limited to state governmental agencies (or their bona fide agents or equivalents) officially designated by a governor, health office, or other state executive authority. The announcement defined "state" broadly to include not only the 50 states, but also the District of Columbia and multiple U.S. territories and freely associated states, including Puerto Rico, the U.S. Virgin Islands, the Commonwealth of the Northern Mariana Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau. The program was associated with CFDA 93.184 under Disabilities Prevention.

The opportunity was posted March 30, 2012, with an application closing date of May 30, 2012, and it was archived June 29, 2012. For access issues or submission-related questions at the time, CDC directed applicants to contact the Procurement and Grants Office (PGO), Technical Information and Management Section (TIMS), via the provided phone line (770-488-2700).

Frequently Asked Questions (FAQs)

What is the full name of this funding opportunity?

The opportunity was titled the Hemoglobinopathies Surveillance, Health Promotion, and Laboratory Capacity Demonstration Project.

What is the Funding Opportunity Number (FONO)?

The Funding Opportunity Number was CDC RFA DD12-1206.

Which federal agency offered this opportunity?

This opportunity was offered by the Centers for Disease Control and Prevention (CDC).

What type of funding mechanism was used?

It was a CDC cooperative agreement, described as a discretionary funding opportunity.

What does it mean that this was a cooperative agreement?

A cooperative agreement generally indicates CDC would have substantial involvement beyond issuing funds, such as providing technical assistance, coordination, or shared implementation expectations.

What was the overall purpose of the project?

The main goal was to expand and strengthen state-based efforts related to hemoglobinopathies (inherited blood disorders such as sickle cell disease and thalassemias) and align that work with the Healthy People 2020 focus area on Blood Disorders and Blood Safety.

How did this project relate to the earlier RuSH initiative?

It was designed to build on the earlier Registry and Surveillance for Hemoglobinopathies (RuSH) initiative.

Why was this described as a "demonstration project"?

Because funded recipients were expected to demonstrate workable, scalable approaches that could inform broader public health practice, rather than focusing only on data collection.

What health conditions were the focus of this opportunity?

The focus was on hemoglobinopathies, described as inherited blood disorders such as sickle cell disease and thalassemias.

What were the three major program emphasis areas?

The project emphasized three connected areas: (1) public health surveillance, (2) health promotion and prevention awareness activities, and (3) laboratory capacity building.

What kinds of activities were included under public health surveillance?

Surveillance efforts included improving how states identify, track, and understand hemoglobinopathy-affected populations over time, including building or enhancing registry-like functions, using reliable case definitions, and strengthening the ability to describe disease burden, outcomes, and service needs across communities.

What was meant by health promotion and prevention awareness activities?

The opportunity emphasized that better data should translate into education and outreach, including public-facing education, targeted outreach, and prevention-oriented messaging for affected individuals, families, and providers.

What did "laboratory capacity" refer to in this project?

Laboratory capacity focused on accurate testing, confirmatory diagnostics, and strong laboratory systems that support population-level monitoring and quality assurance for hemoglobinopathy surveillance and care.

Who was eligible to apply?

Eligibility was limited to state governmental agencies (or their bona fide agents or equivalents) that were officially designated by a governor, health office, or other state executive authority.

How was the term "state" defined for eligibility purposes?

"State" was defined broadly to include the 50 states, the District of Columbia, and certain U.S. territories and freely associated states.

Which territories and freely associated states were explicitly included?

The announcement included Puerto Rico, the U.S. Virgin Islands, the Commonwealth of the Northern Mariana Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau.

What was the total estimated funding amount?

The total estimated funding amount was $1,200,000.

How many awards were expected?

CDC expected to make three awards.

What was the maximum award amount (award ceiling) per recipient?

The listed award ceiling was $250,000 per award.

Was there a minimum award amount (award floor)?

No award floor was stated in the provided information.

Was cost sharing or matching required?

No cost sharing or matching requirement was listed.

What CFDA number was associated with this program?

The opportunity was associated with CFDA 93.184 under Disabilities Prevention.

When was the opportunity posted?

The opportunity was posted on March 30, 2012.

What was the application closing date?

The application closing date was May 30, 2012.

When was the opportunity archived?

The opportunity was archived on June 29, 2012.

Who could applicants contact for access issues or submission-related questions?

CDC directed applicants to contact the Procurement and Grants Office (PGO), Technical Information and Management Section (TIMS).

What phone number was provided for applicant support?

The phone line provided was 770-488-2700.

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