Opportunity Information: Apply for RFA DD 09 004
Apply for RFA DD 09 004
- The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "Impact of Tic Disorders, including Tourette Syndrome, in Youth, on Individuals, Families and Communities (U01)" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.283 Centers for Disease Control and PreventionInvestigations and Technical Assistance.
- This funding opportunity was created on Feb 12, 2009 and posted on Feb 9, 2009.
- Applicants must submit their applications by Apr 9, 2009 Letter of Intent Deadline March 09, 2009 Application Deadline April 09, 2009. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $400,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $400,000.00 in funding.
- The number of recipients for this funding is limited to 2 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- Eligible Organizations Public nonprofit organizations private nonprofit organizations for profit organizations small, minority, and women owned businesses universities colleges research institutions hospitals community based organizations faith based organizations federally recognized or state recognized American Indian/Alaska Native tribal governments American Indian/Alaska Native tribally designated organizations Alaska Native health corporations urban Indian health organizations tribal epidemiology centers state and local governments or their Bona Fide Agents (this includes the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, the Commonwealth of the Northern Marianna Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau) and political subdivisions of states (in consultation with states.) A Bona Fide Agent is an agency/ organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application. If you are applying as a bona fide agent of a state or local government, you must provide required documentation from the state or local government as documentation of your status. Attach this documentation behind the first page of your application form or for electronic applications, use a PDF file and attach as Other Documents and label as appropriate.
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Opportunity Summary:
The grant opportunity "Impact of Tic Disorders, including Tourette Syndrome, in Youth, on Individuals, Families and Communities (U01)" (Funding Opportunity Number RFA DD 09 004) is a CDC-funded cooperative agreement designed to build a clearer, data-driven understanding of how tic disorders affect young people and the people and settings around them. The central purpose is not simply to describe Tourette Syndrome and other tic disorders clinically, but to examine their real-world impact across multiple levels: the child or adolescent, the family unit, and the broader community environments where youth live and develop (such as schools, health care settings, and social networks). Because the award mechanism is a U01 cooperative agreement, recipients should expect substantial scientific and programmatic involvement from the CDC during the project period, meaning the work is intended to be collaborative rather than completely investigator-directed.
The FOA focuses on collecting and analyzing data that capture both tic-related burden and the broader set of challenges that frequently accompany tic disorders. A key emphasis is assessing the impact of tic symptom severity and associated morbidity, which typically includes functional impairment, interference with school performance, social participation, and emotional well-being. Just as important, the announcement highlights co-occurring psychiatric conditions, specifically calling out attention deficit hyperactivity disorder (ADHD) while also allowing for the study of other comorbidities that commonly occur alongside tic disorders. The intent is to understand how combinations of symptoms and diagnoses shape outcomes for youth and families, recognizing that impairment often reflects the interaction of tics with comorbid anxiety, ADHD-related difficulties, obsessive-compulsive symptoms, mood concerns, or behavioral issues rather than tic frequency alone.
From a family and community perspective, the opportunity is aimed at documenting how tic disorders influence caregiver stress, family functioning, and the resources families must mobilize to obtain diagnosis, treatment, educational accommodations, and mental health support. This can include measuring the practical and economic burdens on families (time spent coordinating care, out-of-pocket costs, missed work), as well as the social impact (stigma, peer relationships, and the ways families navigate misunderstanding from schools or community members). At the community level, the CDC is looking for evidence that can inform public health understanding and potentially guide future strategies related to awareness, service needs, and system-level supports for affected youth.
Administratively, this is a discretionary health funding opportunity offered by the Centers for Disease Control and Prevention under CFDA 93.283 (CDC Investigations and Technical Assistance). The FOA anticipated making 2 awards, with an estimated total funding level of $400,000 and an award ceiling of $400,000 (no award floor specified). There is no cost sharing or matching requirement, which lowers barriers for organizations that may not have access to substantial non-federal funds.
The timeline reflects a typical federal competition cycle for that period. The opportunity was posted February 9, 2009, with a Letter of Intent deadline of March 9, 2009, and an application deadline of April 9, 2009. The archive date was May 9, 2009, indicating it is no longer open, but the summary remains useful for understanding CDC priorities and how similar opportunities may be structured.
Eligibility is broad and includes public and private nonprofit organizations, for-profit entities (including small, minority-, and women-owned businesses), universities and colleges, research institutions, hospitals, community-based and faith-based organizations, and a range of governmental and tribal entities. State and local governments and their bona fide agents may apply, with the requirement that bona fide agents provide formal documentation from the relevant government entity confirming their status. This wide eligibility suggests the CDC anticipated proposals from both academic research teams and community or health-system partners capable of accessing affected youth populations and capturing meaningful family and community impact data.
For applicants needing assistance obtaining the full announcement, the CDC provided a point of contact through the CDC Procurement and Grants Office Technical Information Management (TIMS) at 770-488-2700. The FOA also references an additional information link for CDC Grant Funding Opportunity Announcements, which would typically include the full narrative requirements, reporting expectations, and cooperative agreement terms and conditions.
Frequently Asked Questions (FAQs)
What is the name of this grant opportunity?
The opportunity is titled "Impact of Tic Disorders, including Tourette Syndrome, in Youth, on Individuals, Families and Communities (U01)."
What is the Funding Opportunity Number (FOA number)?
The Funding Opportunity Number is RFA DD 09 004.
Which federal agency is offering this opportunity?
This is a discretionary health funding opportunity offered by the Centers for Disease Control and Prevention (CDC).
What type of award is this (grant vs. cooperative agreement)?
This opportunity uses a U01 cooperative agreement mechanism. That means CDC is expected to have substantial scientific and programmatic involvement during the project period, and the work is intended to be collaborative rather than entirely investigator-directed.
What is the main purpose of the project described in this FOA?
The central purpose is to build a clearer, data-driven understanding of how tic disorders (including Tourette Syndrome) affect youth and the people and settings around them, including impacts at the level of the individual, the family, and the broader community.
Is the goal limited to clinical description of Tourette Syndrome and tic disorders?
No. The FOA emphasizes examining real-world impact rather than only describing tic disorders clinically.
What kinds of data are applicants expected to collect and analyze?
The FOA focuses on collecting and analyzing data that capture tic-related burden and the broader challenges that often accompany tic disorders, including symptom severity, associated morbidity, functional impairment, and effects on daily life and environments like school and social settings.
What does the FOA mean by "impact" at the youth level?
Examples of youth-level impact highlighted include functional impairment, interference with school performance, effects on social participation, and emotional well-being, particularly in relation to tic symptom severity and associated morbidity.
Does the opportunity include study of co-occurring conditions?
Yes. The FOA specifically calls out attention deficit hyperactivity disorder (ADHD) and also allows for study of other comorbidities commonly associated with tic disorders.
Why does the FOA emphasize comorbidities like ADHD?
The FOA notes that impairment often reflects the interaction of tics with co-occurring conditions (such as ADHD-related difficulties, anxiety, obsessive-compulsive symptoms, mood concerns, or behavioral issues) rather than tic frequency alone.
What family-related impacts does the FOA aim to document?
The FOA aims to document how tic disorders influence caregiver stress, family functioning, and the resources families must mobilize to obtain diagnosis, treatment, educational accommodations, and mental health support.
Does the FOA mention economic or practical burdens on families?
Yes. It includes measuring practical and economic burdens such as time spent coordinating care, out-of-pocket costs, and missed work.
Does the FOA address stigma or social impacts?
Yes. The summary notes social impacts such as stigma, peer relationships, and how families navigate misunderstanding from schools or community members.
What community-level impacts are of interest?
At the community level, the FOA seeks evidence that can inform public health understanding and potentially guide future strategies related to awareness, service needs, and system-level supports for affected youth.
What types of community environments are mentioned?
The FOA mentions broader community environments where youth live and develop, such as schools, health care settings, and social networks.
What is the CFDA number for this opportunity?
The CFDA is 93.283, titled "CDC Investigations and Technical Assistance."
How many awards were anticipated?
The FOA anticipated making 2 awards.
What was the estimated total funding level?
The estimated total funding level was $400,000.
What was the maximum award amount (award ceiling)?
The award ceiling was $400,000.
Was there an award floor (minimum award amount)?
No award floor was specified in the provided summary.
Is cost sharing or matching required?
No. The FOA states there is no cost sharing or matching requirement.
When was the opportunity posted?
The opportunity was posted on February 9, 2009.
Was a Letter of Intent (LOI) required, and when was it due?
A Letter of Intent was part of the timeline, with a deadline of March 9, 2009.
When was the application deadline?
The application deadline was April 9, 2009.
Is this FOA still open?
No. The archive date was May 9, 2009, indicating the opportunity is no longer open.
Who was eligible to apply?
Eligibility was broad and included public and private nonprofit organizations, for-profit entities (including small, minority-, and women-owned businesses), universities and colleges, research institutions, hospitals, community-based and faith-based organizations, and governmental and tribal entities.
Could state and local governments apply?
Yes. State and local governments and their bona fide agents could apply.
What is required for a "bona fide agent" to apply?
Bona fide agents were required to provide formal documentation from the relevant government entity confirming their status.
Does the broad eligibility suggest any intended types of applicants?
Yes. The summary indicates CDC anticipated proposals from both academic research teams and community or health-system partners capable of accessing affected youth populations and capturing meaningful data on family and community impacts.
Where could applicants get help obtaining the full announcement?
Applicants could contact the CDC Procurement and Grants Office Technical Information Management (TIMS) at 770-488-2700 for assistance obtaining the full announcement.
Does the FOA reference any additional source for CDC funding announcements?
Yes. It references an additional information link for CDC Grant Funding Opportunity Announcements, which typically includes full narrative requirements, reporting expectations, and cooperative agreement terms and conditions.
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