Opportunity Information: Apply for HRSA 12 135
Apply for HRSA 12 135
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "National Hemophilia Program Coordinating Center" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on Nov 17, 2011 and posted on Nov 16, 2011.
- Applicants must submit their applications by Dec 30, 2011. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $800,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $800,000.00 in funding.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education County governments Others (see text field entitled Additional Information on Eligibility for clarification) State governments Special district governments City or township governments Native American tribal organizations (other than Federally recognized tribal governments) Native American tribal governments (Federally recognized).
- Eligible applicants include public and nonprofit entities, including faith based and community based organizations, Tribes, and tribal organizations. Applicants must have significant familiarity and/or experience with hemophilia and clotting disorders, quality assessment and improvement, public health, and primary care and collaboration with other programs and organizations for individuals with bleeding and clotting disorders and their families. Any applicant that can serve in a national capacity to coordinate services among the regional collaborative activities is eligible to apply. Applicants may NOT apply concurrently to become the lead organization for funding as both the National Hemophilia Program Coordinating Center (NHPCC) (HRSA 12 135) and a RHN (HRSA 12 133). If an applicant does apply for both funding opportunities, they will be considered non responsive and both applications will be disqualified. RHN applicants are allowed to be included as partners of any applicants for the National Hemophilia Program Coordinating Center (HRSA 12 135).
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Opportunity Summary:
The National Hemophilia Program Coordinating Center (NHPCC) grant opportunity (HRSA 12-135) is a Health Resources and Services Administration (HRSA) cooperative agreement designed to create a single, national coordinating hub for the federal hemophilia diagnostic and treatment center program authorized under Section 501 of the Social Security Act. The core idea is to strengthen and connect the existing Regional Hemophilia Networks (RHNs) into a more integrated, collaborative national system that improves access to comprehensive, high-quality care for people living with hemophilia and other bleeding disorders, as well as certain clotting disorders such as thrombophilia. The coordinating center is expected to serve as the organizing and accountability point for planning, alignment, communication, and evaluation across regions, while also helping elevate key issues affecting service access and utilization at national, state, and community levels.
Functionally, the NHPCC is meant to facilitate, coordinate, and evaluate the work carried out by the RHNs, with a strong emphasis on creating consistency and measurable improvement across the country. A major part of the role is providing technical assistance to the regional networks, particularly in program evaluation and workforce stability (including recruitment and retention of staff), and in modernizing the program by incorporating genetics and public health approaches into hemophilia and bleeding/clotting disorder care. The program is framed around the idea that these conditions should be managed as chronic conditions requiring coordinated, lifelong care, and that regional cooperation is essential to maintaining full access to both health care and supportive social services.
The funding level is approximately $800,000 per year for one awardee, with about $300,000 specifically set aside for projects considered "of national significance" that will be undertaken in collaboration with RHN grantees. There is no cost sharing or matching requirement. Because the award is a cooperative agreement, applicants should expect substantial involvement from the federal program in shaping priorities, coordination expectations, and performance/evaluation requirements, rather than a hands-off grant relationship.
Program goals and required activities focus on standardization, planning, evaluation, and stakeholder engagement. The NHPCC is expected to coordinate national and regional activities to promote uniformity in standards of care, improve accessibility, and support dissemination of resources and information related to bleeding and clotting disorders and genetics services. A central deliverable is technical assistance to RHNs to develop a coordinated, comprehensive needs assessment approach and to translate needs assessment findings into actionable priorities. This includes helping regions define assessment criteria for service components, build qualitative and quantitative measurement strategies, create benchmarks, and develop logic models. Using results from eight regional needs assessments, the NHPCC must also help the RHNs set measurable program goals and priorities for the National Hemophilia Program and implement a national evaluation plan with key indicators that can track progress over time across regions and nationally.
Another major expectation is that the NHPCC will convene and sustain an ongoing national forum that brings together hematology and genetic medicine expertise and enables timely, interactive communication among key stakeholders. The announcement explicitly mentions collaboration with organizations and bodies such as the National Hemophilia Foundation (NHF), medical/scientific advisory groups, thrombosis and hemostasis networks, the HHS Advisory Committee on Blood Safety and Availability (ACBSA), professional and policy organizations, state leadership groups like the National Council of State Legislators and the National Governors Association, and also engagement with the private sector and the media when relevant. The point of this forum is not simply information sharing, but also analysis and development of policy proposals tied to delivery systems, financing, and reimbursement for hematologic services, which are ongoing barriers for many patients needing specialized, high-cost care.
A defining feature of the opportunity is the push to integrate advances in genetic medicine and broader public health strategies into routine hemophilia and bleeding/clotting disorder services. The successful applicant is expected to take substantial steps to improve how current scientific knowledge is used in practice, including genetic medicine, health promotion, disease causation understanding, and illness management. This includes encouraging partnerships that connect hematologists and specialty centers with medical homes and primary care providers, and supporting the integration of population-based screening concepts, genetic risk assessment, prevention strategies, and coordinated chronic-care models. The announcement emphasizes sharing both longstanding and new resources to close gaps in care and improve the consistency of assessment and evaluation within and across regions, including coordination among core hemophilia treatment centers and other treatment centers throughout a region.
Eligibility is broad but capability-driven. Eligible applicants include public and nonprofit entities (including faith-based and community-based organizations), state and local governments, tribes and tribal organizations, and other public entities, provided they can operate in a national capacity to coordinate services and regional collaborative activities. HRSA expects applicants to have significant familiarity and/or experience with hemophilia and clotting disorders, quality assessment and improvement, public health and primary care frameworks, and cross-program collaboration for individuals with bleeding and clotting disorders and their families. A key restriction is that an organization cannot apply to be both the NHPCC (HRSA 12-135) and a Regional Hemophilia Network lead (HRSA 12-133) at the same time; doing so makes both applications non-responsive and disqualified. However, RHN applicants can participate as partners on an NHPCC application.
Administratively, this was a discretionary funding opportunity in the health category under CFDA 93.110 (Maternal and Child Health Federal Consolidated Programs). The opportunity was posted in November 2011 with an original/current closing date of December 30, 2011, and archived February 28, 2012. The main takeaway is that HRSA was seeking one national organization to coordinate and strengthen a multi-region hemophilia network by setting shared priorities, building consistent evaluation infrastructure, advancing genetics and public health integration, and creating durable stakeholder collaboration to improve policy, access, and quality of care nationwide.
Frequently Asked Questions (FAQs): National Hemophilia Program Coordinating Center (NHPCC) - HRSA 12-135
What is the NHPCC grant opportunity (HRSA 12-135)?
The National Hemophilia Program Coordinating Center (NHPCC) opportunity (HRSA 12-135) is a Health Resources and Services Administration (HRSA) cooperative agreement to create a single, national coordinating hub for the federal hemophilia diagnostic and treatment center program authorized under Section 501 of the Social Security Act.
What is the main purpose of the NHPCC?
The NHPCC is intended to strengthen and connect existing Regional Hemophilia Networks (RHNs) into a more integrated national system, with the goal of improving access to comprehensive, high-quality care for people living with hemophilia and other bleeding disorders, as well as certain clotting disorders such as thrombophilia.
How is the NHPCC expected to work with the Regional Hemophilia Networks (RHNs)?
The NHPCC is expected to facilitate, coordinate, and evaluate the work carried out by the RHNs. It serves as the organizing and accountability point for planning, alignment, communication, and evaluation across regions, and it provides technical assistance to support consistent, measurable improvement across the country.
What makes this award a cooperative agreement rather than a typical grant?
Because this is a cooperative agreement, applicants should expect substantial involvement from the federal program. This includes federal participation in shaping priorities, coordination expectations, and performance and evaluation requirements, rather than a largely hands-off relationship.
How much funding is available under HRSA 12-135?
The funding level is approximately $800,000 per year for one awardee.
Is any funding specifically set aside for certain projects?
Yes. About $300,000 is specifically set aside for projects considered "of national significance" that will be undertaken in collaboration with RHN grantees.
How many awards does HRSA expect to make?
HRSA indicated funding for one awardee to serve as the national coordinating center.
Is cost sharing or matching required?
No. There is no cost sharing or matching requirement described for this opportunity.
What types of conditions and populations does the program focus on?
The program focuses on people living with hemophilia and other bleeding disorders, and also includes certain clotting disorders such as thrombophilia. The approach is framed around managing these conditions as chronic conditions requiring coordinated, lifelong care.
What are the major goals and required activities for the NHPCC?
The required activities emphasize standardization, planning, evaluation, and stakeholder engagement. The NHPCC is expected to coordinate national and regional activities to promote uniform standards of care, improve accessibility, and support dissemination of resources and information related to bleeding and clotting disorders and genetics services.
What technical assistance is the NHPCC expected to provide to RHNs?
The NHPCC is expected to provide technical assistance with a strong emphasis on program evaluation and workforce stability, including recruitment and retention of staff. It is also expected to help modernize the program by incorporating genetics and public health approaches into hemophilia and bleeding/clotting disorder care.
What is the role of needs assessments in this program?
A central deliverable is helping RHNs develop a coordinated, comprehensive needs assessment approach and translate findings into actionable priorities. This includes helping regions define assessment criteria for service components, build qualitative and quantitative measurement strategies, create benchmarks, and develop logic models.
How does the NHPCC use the regional needs assessment results?
Using results from eight regional needs assessments, the NHPCC must help the RHNs set measurable program goals and priorities for the National Hemophilia Program and implement a national evaluation plan with key indicators that can track progress over time across regions and nationally.
What is expected regarding evaluation and performance measurement?
The NHPCC is expected to support the development of consistent measurement strategies, benchmarks, and logic models, and to implement a national evaluation plan with key indicators that allow tracking of progress over time both regionally and nationally.
What does the opportunity require related to stakeholder engagement?
The NHPCC is expected to convene and sustain an ongoing national forum that brings together hematology and genetic medicine expertise and enables timely, interactive communication among key stakeholders.
Which stakeholders are specifically mentioned for collaboration or engagement?
The announcement explicitly mentions collaboration with organizations and bodies such as the National Hemophilia Foundation (NHF), medical/scientific advisory groups, thrombosis and hemostasis networks, the HHS Advisory Committee on Blood Safety and Availability (ACBSA), professional and policy organizations, state leadership groups like the National Council of State Legislators and the National Governors Association, and engagement with the private sector and the media when relevant.
What is the purpose of the national forum?
The forum is intended to support more than information sharing. It is meant to facilitate analysis and the development of policy proposals tied to delivery systems, financing, and reimbursement for hematologic services, which are described as ongoing barriers for many patients requiring specialized, high-cost care.
How does this opportunity address genetics and public health integration?
A defining feature of the opportunity is integrating advances in genetic medicine and broader public health strategies into routine services. The successful applicant is expected to improve how scientific knowledge is used in practice, including genetics, health promotion, disease causation understanding, and illness management.
What kinds of care delivery partnerships does the announcement encourage?
The announcement encourages partnerships that connect hematologists and specialty centers with medical homes and primary care providers, and supports the integration of population-based screening concepts, genetic risk assessment, prevention strategies, and coordinated chronic-care models.
What is meant by improving consistency across regions?
The NHPCC is expected to close gaps in care and improve the consistency of assessment and evaluation within and across regions, including coordination among core hemophilia treatment centers and other treatment centers throughout a region.
Who is eligible to apply for the NHPCC cooperative agreement?
Eligible applicants include public and nonprofit entities (including faith-based and community-based organizations), state and local governments, tribes and tribal organizations, and other public entities, as long as they can operate in a national capacity to coordinate services and regional collaborative activities.
What capabilities does HRSA expect the applicant organization to have?
HRSA expects applicants to have significant familiarity and/or experience with hemophilia and clotting disorders, quality assessment and improvement, public health and primary care frameworks, and cross-program collaboration for individuals with bleeding and clotting disorders and their families.
Can an organization apply to be both the NHPCC and a Regional Hemophilia Network lead?
No. An organization cannot apply to be both the NHPCC (HRSA 12-135) and a Regional Hemophilia Network lead (HRSA 12-133) at the same time. Submitting both makes both applications non-responsive and disqualified.
Can Regional Hemophilia Network applicants still be involved with an NHPCC application?
Yes. RHN applicants can participate as partners on an NHPCC application.
What CFDA number is associated with this opportunity?
This opportunity is associated with CFDA 93.110 (Maternal and Child Health Federal Consolidated Programs).
What was the timeline for this funding opportunity?
The opportunity was posted in November 2011, had an original/current closing date of December 30, 2011, and was archived on February 28, 2012.
What is the broader intended impact of the NHPCC?
HRSA sought a national organization to coordinate and strengthen a multi-region hemophilia network by setting shared priorities, building consistent evaluation infrastructure, advancing genetics and public health integration, and creating durable stakeholder collaboration to improve policy, access, and quality of care nationwide.
What kinds of barriers is the NHPCC expected to help address?
The NHPCC is expected to help elevate and address key issues affecting service access and utilization at national, state, and community levels, including delivery system challenges and financing and reimbursement barriers for specialized hematologic services.
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