Opportunity Information: Apply for RFA DD 11 001
Apply for RFA DD 11 001
- The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "National Spina Bifida Patient Registry Clinic Demonstration Project (U01)" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.283 Centers for Disease Control and PreventionInvestigations and Technical Assistance.
- This funding opportunity was created on Nov 16, 2010 and posted on Aug 31, 2010.
- Applicants must submit their applications by Dec 7, 2010. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $1,260,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $40,000.00 in funding.
- The number of recipients for this funding is limited to 12 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- You may submit an application(s) if your organization has any of the following characteristics Public nonprofit organizations Private nonprofit organizations For profit organizations Small, minority, and women owned businesses Universities Colleges Research institutions Hospitals Community based organizations Faith based organizations Federally recognized or state recognized American Indian/Alaska Native tribal governments American Indian/Alaska Native tribally designated organizations Alaska Native health corporations Urban Indian health organizations Tribal epidemiology centers State and local governments or their Bona Fide Agents (this includes the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, the Commonwealth of the Northern Marianna Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau) Political subdivisions of States (in consultation with States) A Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application. If you are applying as a bona fide agent of a state or local government, you must provide a letter from the state or local government as documentation of your status. Attach this documentation behind the first page of your application form or for electronic applications, use a PDF file and attach as Other Documents and label as appropriate.
[Watch] Creating a grant proposal using the step-by-step wizard inside the applicant portal:
Opportunity Summary:
The National Spina Bifida Patient Registry Clinic Demonstration Project (U01) is a CDC cooperative agreement opportunity (Funding Opportunity Number RFA DD 11 001) run through the National Center on Birth Defects and Developmental Disabilities (NCBDDD) within HHS. The overall purpose is to strengthen and expand participation in the National Spina Bifida Patient Registry (NSBPR) by supporting spina bifida clinics across the United States to use a standardized registry tool to collect consistent, comparable patient data. This work is framed as part of the federal public health agenda tied to Healthy People 2010 priorities (including Disability and Secondary Conditions, Maternal, Infant, and Child Health, and the prevention of birth defects and developmental disabilities) and to performance measurement expectations under the Government Performance and Results Act (GPRA). In practical terms, the registry is positioned as a way to measure outcomes, track quality of care, and support continuous improvement in clinical services for people living with spina bifida.
The project focuses on real-world clinic participation rather than purely academic research. Funded clinics are expected to enroll and collect information on patients affected by spina bifida, submit those data to a centralized repository, and take part in collaborative analysis activities. Beyond routine data collection, the demonstration aspect is important: clinics are also expected to help refine the registry itself by proposing improvements or additions to the data elements, strengthening data collection methods, and suggesting process changes that make the registry more useful and workable in clinical settings. A key expectation is that registry findings will be used to inform changes in clinical practice, with the explicit aim of improving the quality of care and outcomes for individuals with spina bifida. Because the award mechanism is a cooperative agreement (U01), CDC involvement is typically more hands-on than a standard grant, meaning recipients should anticipate active collaboration, shared decision-making around registry operations, and ongoing coordination with CDC and the broader NSBPR network.
The funding profile listed for the opportunity indicates an estimated total of $1,260,000 with an expected 12 awards, and an award ceiling of $40,000 (award floor listed as $0). The assistance listing is under CFDA 93.283 (CDC Investigations and Technical Assistance). There is no cost sharing or matching requirement stated. The opportunity was posted August 31, 2010, with an application deadline of December 7, 2010, and an archive date of January 6, 2011, which means it is a historical funding announcement rather than an open competition today.
Eligibility is broad and includes public and private nonprofit organizations, for-profit organizations, small and minority- or women-owned businesses, universities and colleges, research institutions, hospitals, community-based and faith-based organizations, and a wide range of governmental and tribal entities. State and local governments and their bona fide agents may apply; however, bona fide agents must provide documentation (a letter from the state or local government) confirming their status, and the announcement specifies how that documentation should be attached in the application package.
For administrative questions or difficulty accessing the full announcement, the notice provides the CDC Procurement and Grants Office as the point of contact (Phone: 770-488-2700; Email: pgotim@cdc.gov).
Frequently Asked Questions (FAQs)
What is the National Spina Bifida Patient Registry Clinic Demonstration Project (U01)?
It is a CDC cooperative agreement funding opportunity intended to strengthen and expand participation in the National Spina Bifida Patient Registry (NSBPR). The project supports spina bifida clinics across the United States in using a standardized registry tool to collect consistent, comparable patient data.
Which federal agency runs this opportunity?
The opportunity is run by the Centers for Disease Control and Prevention (CDC), within the U.S. Department of Health and Human Services (HHS). It is administered through CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD).
What is the Funding Opportunity Number (FON) for this announcement?
The Funding Opportunity Number is RFA DD 11 001.
What is the overall purpose of the NSBPR clinic demonstration project?
The purpose is to expand clinic participation in the NSBPR by supporting use of a standardized registry tool so clinics can collect comparable patient data. The registry is positioned to help measure outcomes, track quality of care, and support continuous improvement in clinical services for people living with spina bifida.
How is this project connected to federal public health priorities?
The work is framed as part of the federal public health agenda tied to Healthy People 2010 priorities, including Disability and Secondary Conditions, Maternal, Infant, and Child Health, and prevention of birth defects and developmental disabilities. It is also aligned with performance measurement expectations under the Government Performance and Results Act (GPRA).
Is this primarily a research grant or a clinic participation project?
The announcement emphasizes real-world clinic participation rather than purely academic research. Funded clinics are expected to enroll patients, collect and submit registry data, and participate in collaborative analysis activities.
What are funded clinics expected to do under this cooperative agreement?
Based on the announcement, funded clinics are expected to:
- Enroll and collect information on patients affected by spina bifida.
- Use a standardized registry tool to collect consistent and comparable data.
- Submit collected data to a centralized repository.
- Participate in collaborative analysis activities with the broader registry network.
What does the "demonstration" aspect of the project mean for participating clinics?
In addition to routine data collection and submission, clinics are expected to help refine and improve the registry. This includes proposing improvements or additions to registry data elements, strengthening data collection methods, and suggesting process changes that make the registry more useful and workable in clinical settings.
How are registry findings expected to be used?
A key expectation described in the announcement is that registry findings will be used to inform changes in clinical practice, with the explicit aim of improving quality of care and outcomes for individuals with spina bifida.
What does it mean that the award mechanism is a cooperative agreement (U01)?
A U01 cooperative agreement typically involves more hands-on federal involvement than a standard grant. The announcement indicates recipients should anticipate active collaboration, shared decision-making around registry operations, and ongoing coordination with CDC and the broader NSBPR network.
What is the total estimated funding and how many awards were expected?
The opportunity lists an estimated total funding amount of $1,260,000, with an expected 12 awards.
What is the award ceiling and award floor?
The award ceiling is listed as $40,000, and the award floor is listed as $0.
What CFDA number is associated with this opportunity?
The assistance listing is under CFDA 93.283 (CDC Investigations and Technical Assistance).
Is cost sharing or matching required?
No cost sharing or matching requirement is stated in the information provided.
When was this funding opportunity posted, and what were the key dates?
The opportunity was posted on August 31, 2010. The application deadline was December 7, 2010, and the archive date was January 6, 2011.
Is this opportunity currently open?
No. The archive date of January 6, 2011 indicates this is a historical funding announcement rather than an open competition today.
Who was eligible to apply for this opportunity?
Eligibility is described as broad and includes:
- Public and private nonprofit organizations
- For-profit organizations
- Small businesses and minority- or women-owned businesses
- Universities and colleges
- Research institutions
- Hospitals
- Community-based organizations and faith-based organizations
- Governmental entities (state and local governments and their bona fide agents)
- Tribal entities
Can state and local governments apply? What about bona fide agents?
State and local governments and their bona fide agents may apply. However, bona fide agents must provide documentation confirming their status in the form of a letter from the state or local government.
How should bona fide agent documentation be included with the application?
The announcement specifies that a bona fide agent must attach the documentation letter in the application package, and it indicates how that documentation should be attached within the package.
What is the central activity that connects funded sites?
Participating clinics are expected to submit patient registry data to a centralized repository and take part in collaborative analysis activities as part of the NSBPR network.
Who can be contacted for administrative questions or problems accessing the full announcement?
The CDC Procurement and Grants Office is listed as the point of contact for administrative questions or difficulty accessing the full announcement. Phone: 770-488-2700; Email: pgotim@cdc.gov.
Which office within CDC is associated with this opportunity?
The opportunity is run through CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD).
Browse more opportunities from the same category: Health
Next opportunity: Cognitive radio Low energy signal Analysis Sensor ICs (CLASIC)
Previous opportunity: National Park Service Phase III Documentation, Analysis and Conservation of Architectural Surface Finishes at Front Country Sites, Mesa Verde National Park.
USGrants.org Applicant Portal:
Are you interested in learning about about how to apply for this government funding opportunity? You can create a free applicant account and receive instant access to our applicant portal that many business owners like you have benefited from.
Apply for RFA DD 11 001
[Watch] how do funding administrators access proposals?
Applicants also applied for:
Applicants who have applied for this opportunity (RFA DD 11 001) also looked into and applied for these:
| Funding Opportunity |
|---|
| Ancillary Studies to Large Ongoing Clinical Projects (R01) Apply for RFA AR 11 012 Funding Number: RFA AR 11 012 Agency: National Institutes of Health Category: Health Funding Amount: $250,000 |
| Ancillary Studies to Large Ongoing Clinical Projects (R21) Apply for RFA AR 11 013 Funding Number: RFA AR 11 013 Agency: National Institutes of Health Category: Health Funding Amount: $200,000 |
| Protein Structure InitiativeBiology Materials Repository (PSIBiology MR) (U01) Apply for RFA GM 11 008 Funding Number: RFA GM 11 008 Agency: National Institutes of Health Category: Health Funding Amount: Case Dependent |
| NIOSH Support for Conferences and Scientific Meetings (R13) Apply for PAR 10 272 Funding Number: PAR 10 272 Agency: Centers for Disease Control and Prevention Category: Health Funding Amount: $20,000 |
| Mind/Body Research Program (R01) Apply for CDC RFA DP 10 010 Funding Number: CDC RFA DP 10 010 Agency: Centers for Disease Control and Prevention Category: Health Funding Amount: $45,000 |
| Mind/Body Research Program (R01) Apply for CDC RFA DP10 010 Funding Number: CDC RFA DP10 010 Agency: Centers for Disease Control and Prevention Category: Health Funding Amount: Case Dependent |
| Planning Grant for Chronic, Non Communicable Diseases and Disorders Across the Lifespan Fogarty International Research Training Planning Award (NCD LIFESPAN) (D71) Apply for PAR 10 277 Funding Number: PAR 10 277 Agency: National Institutes of Health Category: Health Funding Amount: Case Dependent |
| Dynamics of Host Associated Microbial Communities (R01) Apply for RFA GM 12 001 Funding Number: RFA GM 12 001 Agency: National Institutes of Health Category: Health Funding Amount: $250,000 |
| NIDCD Otopathology Research Collaboration Network (U24) Apply for RFA DC 11 003 Funding Number: RFA DC 11 003 Agency: National Institutes of Health Category: Health Funding Amount: $300,000 |
| NIAAA Collaborative Centers for HIV/AIDS and Alcohol Outcomes Research (U01, U24) Apply for RFA AA 11 003 Funding Number: RFA AA 11 003 Agency: National Institutes of Health Category: Health Funding Amount: Case Dependent |
| Healthy Tomorrows Partnership For Children Program Apply for HRSA 11 029 Funding Number: HRSA 11 029 Agency: Health Resources and Services Administration Category: Health Funding Amount: $50,000 |
| Program Projects for Collaborative Research on the Basic Biology of Pluripotency and Reprogramming (P01) Apply for RFA GM 11 005 Funding Number: RFA GM 11 005 Agency: National Institutes of Health Category: Health Funding Amount: $100,000 |
| Collaborative Hubs for International Research on Mental Health (U19) Apply for RFA MH 11 070 Funding Number: RFA MH 11 070 Agency: National Institutes of Health Category: Health Funding Amount: $500,000 |
| NEI Translational Research Program on Therapy for Visual Disorders (R24) Apply for PAR 10 281 Funding Number: PAR 10 281 Agency: National Institutes of Health Category: Health Funding Amount: Case Dependent |
| Pilot and Feasibility Clinical Research Grants in Arthritis and Musculoskeletal and Skin Diseases (R21) Apply for PAR 10 282 Funding Number: PAR 10 282 Agency: National Institutes of Health Category: Health Funding Amount: $200,000 |
| Ryan White Part B Supplemental Apply for HRSA 11 099 Funding Number: HRSA 11 099 Agency: Health Resources and Services Administration Category: Health Funding Amount: Case Dependent |
| National Institute on Aging Revision Requests for Active Program Projects (P01) Apply for PAR 10 284 Funding Number: PAR 10 284 Agency: National Institutes of Health Category: Health Funding Amount: Case Dependent |
| Alliance for Information on Maternal and Child Health (AIM) Cooperative Agreement Program Apply for HRSA 11 111 Funding Number: HRSA 11 111 Agency: Health Resources and Services Administration Category: Health Funding Amount: $200,000 |
| Universal Newborn Hearing Screening and Intervention Apply for HRSA 11 039 Funding Number: HRSA 11 039 Agency: Health Resources and Services Administration Category: Health Funding Amount: $300,000 |
| NHLBI Program Project Applications (P01) Apply for PAR 10 285 Funding Number: PAR 10 285 Agency: National Institutes of Health Category: Health Funding Amount: Case Dependent |
Grant application guides and resources
It is always free to apply for government grants. However the process may be very complex depending on the funding opportunity you are applying for. Let us help you!
Apply for Grants
Premium leads for funding administrators, grant writers, and loan issuers
Thousands of people visit our website for their funding needs every day. When a user creates a grant proposal and files for submission, we pass the information on to funding administrators, grant writers, and government loan issuers.
If you manage government grant programs, provide grant writing services, or issue personal or government loans, we can help you reach your audience.
Subscribe to Leads
Request more information:
Would you like to learn more about this funding opportunity, similar opportunities to "RFA DD 11 001", eligibility, application service, and/or application tips? Submit an inquiry below:
Don't forget to subscribe to our grant alerts mailing list to receive weekly alerts on new and updated grant funding opportunities like this one in your email.