Opportunity Information: Apply for HRSA 14 085
Apply for HRSA 14 085
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Newborn Screening Clearinghouse" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on Apr 16, 2014 and posted on Apr 16, 2014.
- Applicants must submit their applications by Jun 2, 2014. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $725,000.00 to eligible and selected applicants.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- As cited in 42 CFR Part 51a.3(a), any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b) is eligible to apply for this Federal funding opportunity. Faith based and community organizations are eligible to apply for this Federal funding opportunity.
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Opportunity Summary:
The Newborn Screening Clearinghouse grant (HRSA-14-085) is a Health Resources and Services Administration (HRSA) cooperative agreement focused on building and sustaining a single, central online hub for newborn screening information in the United States. The core idea is to give parents, families, expectant individuals, and professionals a trusted place to find up-to-date educational materials, research, data, and practical resources tied to newborn screening, including family support and follow-up services. A major emphasis is not just on sharing information, but on improving understanding of newborn screening and newborn conditions, while also keeping current performance and quality measurement data (such as false positive rates and other indicators identified by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children, or DACHDNC).
At the heart of the project is an interactive, web-based clearinghouse designed for multiple audiences. The site is expected to present information in a clear, organized way that works for the general public as well as clinicians, educators, policymakers, industry representatives, and other stakeholders. HRSA expects the Clearinghouse to promote dissemination of authoritative and evidence-based materials, including plain-language education for families, community training resources, provider-focused educational tools, and newborn screening best practices and guidelines. Another stated priority is culturally sensitive, health-literate communication so that the information supports informed decision-making across diverse communities.
The opportunity also stresses proactive outreach, not just passive posting of content. Applicants are expected to conduct activities that increase awareness and understanding of newborn screening among parents and families of newborns, expectant individuals and families, health professionals, policymakers, and the broader public. This includes education around newborn screening policies as determined by DACHDNC, and efforts that help communities understand how newborn screening works in their own state or region. The Clearinghouse is also meant to promote national and state policies and best practices, helping users see what is recommended, what is being implemented, and where to find reliable guidance.
A key operational expectation is that the Clearinghouse be continuously accessible online and updated at least quarterly. Content should include links to credible newborn screening information sources, such as government-sponsored and nonprofit resources, and also laboratory websites with demonstrated newborn screening expertise that provide research-based information on currently available screening tests across the country. The program also calls for state-specific information: applicants must provide information and/or links describing the newborn screening conditions and services available in each state, sourced from certified newborn screening laboratories, and include supplemental screening options when available. In addition, the Clearinghouse must link to current research on conditions that have available newborn screening tests and provide information about federal funding availability related to newborn and child screening for heritable disorders.
Partnership development is treated as a central strategy rather than an optional add-on. The funded organization is expected to collaborate with a wide range of stakeholders, including HRSA Maternal and Child Health Bureau (MCHB) funded grantees and other federal and non-federal organizations. The goal of these partnerships is coordination, avoiding duplication, supporting aligned messaging, and improving dissemination and educational outreach. The announcement also makes clear that the Clearinghouse should supplement existing information-sharing efforts rather than replace them, so applicants need to show how their approach fills gaps and connects users to resources that already exist.
Quality improvement and performance measurement are another major pillar. The Clearinghouse is expected to support HHS-funded organizations and other stakeholders in data collection efforts that improve the newborn screening system and to provide links to current quality indicators used to measure newborn screening performance. This includes maintaining access to indicators like false positive rates and other measures determined by DACHDNC, reinforcing the Clearinghouse as both an educational resource and a reference point for system performance and improvement.
The grant requires a strong, methodologically sound evaluation plan. Beyond tracking basic outputs, the evaluation is expected to directly assess the Clearinghouse website for usability, accuracy, completeness, currency (how up to date it is), and objectivity. It must also evaluate reach, meaning who is being served and how effectively information is being disseminated. HRSA also expects both qualitative and quantitative data collection to measure real-world impact, not just website activity, so applicants should be prepared to evaluate learning, awareness, engagement, and practical use of the resources.
From an eligibility and funding standpoint, this opportunity was posted April 16, 2014, and closed June 2, 2014 (archived August 1, 2014). It anticipated one award with an estimated total funding amount of $725,000, under CFDA 93.110 (Maternal and Child Health Federal Consolidated Programs). There was no cost sharing or matching requirement. Eligibility was broad: any public or private entity could apply, including Indian tribes and tribal organizations, and faith-based and community organizations were explicitly eligible, consistent with 42 CFR Part 51a.3(a).
Newborn Screening Clearinghouse Grant (HRSA-14-085) FAQs
What is the Newborn Screening Clearinghouse grant (HRSA-14-085)?
HRSA-14-085 is a Health Resources and Services Administration (HRSA) cooperative agreement to build and sustain a single, central online hub for newborn screening information in the United States. The Clearinghouse is intended to provide a trusted place for families, expectant individuals, and professionals to find up-to-date educational materials, research, data, and practical resources related to newborn screening.
What is the main goal of the Clearinghouse?
The main goal is to maintain an interactive, web-based clearinghouse that improves understanding of newborn screening and newborn conditions while also sharing authoritative, evidence-based information and current performance and quality measurement data tied to newborn screening systems.
Who is the Clearinghouse meant to serve?
The Clearinghouse is designed for multiple audiences, including parents and families, expectant individuals and families, clinicians and other health professionals, educators, policymakers, industry representatives, and other newborn screening stakeholders.
What kinds of information is the Clearinghouse expected to provide?
The Clearinghouse is expected to provide educational materials, practical resources, research and data, and links to credible sources. This includes plain-language education for families, community training resources, provider-focused educational tools, and newborn screening best practices and guidelines.
Does the opportunity emphasize health literacy and cultural sensitivity?
Yes. A stated priority is culturally sensitive, health-literate communication so the information supports informed decision-making across diverse communities.
Is the Clearinghouse only a content library, or is outreach required?
Outreach is required. The opportunity emphasizes proactive activities to increase awareness and understanding of newborn screening among parents and families of newborns, expectant individuals and families, health professionals, policymakers, and the broader public.
What policy-related topics should the Clearinghouse help explain?
The Clearinghouse is expected to support education around newborn screening policies as determined by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children (DACHDNC) and help communities understand how newborn screening works in their state or region.
How should the Clearinghouse handle state-specific newborn screening information?
The Clearinghouse must provide information and/or links describing newborn screening conditions and services available in each state, sourced from certified newborn screening laboratories. It should also include supplemental screening options when available.
What types of external sources should the Clearinghouse link to?
It should link to credible newborn screening information sources, including government-sponsored and nonprofit resources, and laboratory websites with demonstrated newborn screening expertise that provide research-based information on currently available screening tests across the country.
Is the Clearinghouse expected to include research information?
Yes. The Clearinghouse must link to current research on conditions that have available newborn screening tests.
Does the Clearinghouse need to include information about federal funding availability?
Yes. The Clearinghouse must provide information about federal funding availability related to newborn and child screening for heritable disorders.
How often must the Clearinghouse be updated?
The Clearinghouse is expected to be continuously accessible online and updated at least quarterly.
What is meant by performance and quality measurement data in this grant?
The Clearinghouse is expected to maintain access to current quality indicators used to measure newborn screening performance, including measures such as false positive rates and other indicators identified by DACHDNC.
Is the Clearinghouse expected to support quality improvement efforts?
Yes. The Clearinghouse is expected to support HHS-funded organizations and other stakeholders in data collection efforts that improve the newborn screening system, and to provide links to current quality indicators used to measure newborn screening performance.
Are partnerships required under this cooperative agreement?
Yes. Partnership development is treated as a central strategy. The funded organization is expected to collaborate with a wide range of stakeholders, including HRSA Maternal and Child Health Bureau (MCHB) funded grantees and other federal and non-federal organizations.
Why are partnerships emphasized?
Partnerships are intended to support coordination, avoid duplication, align messaging, and improve dissemination and educational outreach. The Clearinghouse is also expected to supplement existing information-sharing efforts rather than replace them.
What does HRSA expect regarding duplication of existing resources?
HRSA expects the Clearinghouse to supplement existing information-sharing efforts, fill gaps, and connect users to resources that already exist, rather than replacing other newborn screening information sources.
What are the evaluation expectations for applicants?
Applicants are required to propose a strong, methodologically sound evaluation plan that goes beyond basic output tracking. The evaluation must assess the website for usability, accuracy, completeness, currency (how up to date it is), and objectivity.
How should reach and impact be evaluated?
HRSA expects evaluation of reach (who is being served and how effectively information is being disseminated) and expects both qualitative and quantitative data collection to measure real-world impact, such as learning, awareness, engagement, and practical use of the resources.
When was this funding opportunity posted and when did it close?
The opportunity was posted on April 16, 2014, and closed on June 2, 2014. It was archived on August 1, 2014.
How many awards were anticipated and what was the estimated funding amount?
The announcement anticipated one award with an estimated total funding amount of $725,000.
What CFDA program is associated with this grant?
The grant is under CFDA 93.110, Maternal and Child Health Federal Consolidated Programs.
Was cost sharing or matching required?
No. The announcement specified no cost sharing or matching requirement.
Who was eligible to apply?
Eligibility was broad: any public or private entity could apply, including Indian tribes and tribal organizations. Faith-based and community organizations were explicitly eligible, consistent with 42 CFR Part 51a.3(a).
What makes this a cooperative agreement?
The opportunity is described as a cooperative agreement, indicating HRSA involvement in the funded effort. The announcement frames expectations around maintaining the Clearinghouse, coordinating with partners, and meeting ongoing performance, outreach, and evaluation requirements.
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