Opportunity Information: Apply for HRSA 14 089
Apply for HRSA 14 089
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Newborn Screening Data Repository and Technical Assistance Center" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on Apr 3, 2014 and posted on Apr 3, 2014.
- Applicants must submit their applications by May 5, 2014. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $850,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $850,000.00 in funding.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- As cited in the Public Health Service Act, 1109 (42 U.S.C. 300b 8), eligible applicants include a State or a political subdivision of a State a consortium of two (2) or more States or political subdivisions of States a territory a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service or any other entity with appropriate expertise in newborn screening. Applicants should have significant familiarity and experience with newborn screening programs, quality assessment and improvement, public health, database development and management, and collaboration with public health and community programs, professional organizations, and State and Federal agencies, as well as other programs and organizations that collaborate to improve and provide newborn screening. Any applicant that can serve in a national capacity to coordinate services among the state newborn screening programs is eligible to apply.
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Opportunity Summary:
The Health Resources and Services Administration (HRSA) announced a discretionary cooperative agreement opportunity titled "Newborn Screening Data Repository and Technical Assistance Center" (Funding Opportunity Number HRSA-14-089). The program is designed to support a single national awardee that can strengthen and coordinate newborn screening efforts across states and other jurisdictions by building and operating a centralized data repository and providing hands-on technical assistance. In practical terms, HRSA is looking for an organization with the expertise and reach to help public health agencies and partners improve how newborn screening data are collected, managed, analyzed, and used to improve early identification and care for infants and children with heritable conditions.
The central purpose of the cooperative agreement is to improve the overall capacity of state and local public health systems to deliver high-quality newborn screening-related services. That includes helping agencies expand or enhance screening, counseling, and health care services for newborns and children who have, or may be at risk for, congenital, genetic, and metabolic disorders. Beyond testing itself, the opportunity emphasizes the full continuum of care, meaning the work is expected to support not just identification of conditions but also follow-up, referral pathways, treatment coordination, and long-term management considerations. The data repository component is intended to help create a more consistent and usable picture of newborn screening performance and outcomes, which can be critical for quality improvement, tracking timeliness, identifying gaps, and supporting evidence-based policy and practice.
Another major focus is education and workforce development. The awardee is expected to assist in providing health care professionals and newborn screening laboratory personnel with education about newborn screening and training on relevant and emerging technologies. This speaks to the rapidly evolving nature of screening science and laboratory methods, and it signals that the program values ongoing professional development, shared standards, and dissemination of best practices. The technical assistance center role also implies direct support to programs that may be adopting new screening methods, improving laboratory workflows, strengthening quality assurance, or integrating better data systems for reporting and follow-up.
The announcement also highlights the need for public-facing education that is accessible and appropriately tailored. Specifically, the awardee is expected to develop and deliver educational programs at appropriate literacy levels for parents, families, and patient advocacy and support groups. These materials and programs are meant to cover counseling, testing, follow-up, treatment options, and how to access specialty services. This reflects a recognition that newborn screening only reaches its potential when families understand results, know what steps to take next, and can navigate care systems, especially when results indicate a need for confirmatory testing or specialized treatment.
A further required function is establishing, maintaining, and operating a system to assess and coordinate treatment related to congenital, genetic, and metabolic disorders. This indicates the award is not limited to data collection for reporting purposes; it is intended to support practical coordination and assessment of treatment systems, likely by helping stakeholders understand whether children who screen positive are getting timely confirmatory testing, entering appropriate care, and receiving ongoing management. The language suggests a national-level coordinating role that can connect and support state programs and align efforts across jurisdictions.
Funding for this opportunity was set at an estimated total of $850,000, with an award ceiling and floor both listed as $850,000, indicating HRSA anticipated one award at that amount. The expected number of awards was 1, reinforcing that HRSA intended to fund a single entity capable of operating at national scale. There was no cost sharing or matching requirement. The opportunity was posted on April 3, 2014, with an application closing date of May 5, 2014, and it was later archived on July 4, 2014. The program falls under CFDA 93.110 (Maternal and Child Health Federal Consolidated Programs).
Eligibility, as cited in the Public Health Service Act, Section 1109 (42 U.S.C. 300b-8), was broad and included states or political subdivisions of states, consortia of two or more states or political subdivisions, U.S. territories, Indian Health Service-operated facilities or programs (or those operated under IHS contract/grant), and other entities with appropriate newborn screening expertise. HRSA made it clear that applicants should bring substantial familiarity and experience in newborn screening programs, public health, quality assessment and improvement, database development and management, and collaboration with community programs, professional organizations, and state and federal agencies. Importantly, HRSA emphasized that any applicant able to serve in a national capacity to coordinate services among state newborn screening programs could apply, which underscores the expectation of nationwide coordination rather than a single-state project.
For applicants or interested parties who needed help accessing the full announcement, HRSA directed inquiries to the HRSA Grants Application Center and the HRSA Call Center (CallCenter@HRSA.GOV; 877-464-4772).
Frequently Asked Questions (FAQs)
What is the title of this HRSA funding opportunity?
The discretionary cooperative agreement opportunity is titled "Newborn Screening Data Repository and Technical Assistance Center".
What is the Funding Opportunity Number (FON)?
The Funding Opportunity Number is HRSA-14-089.
Which federal agency announced this opportunity?
The opportunity was announced by the Health Resources and Services Administration (HRSA).
What type of funding mechanism is this?
This opportunity is a discretionary cooperative agreement, which is designed to support a national-level awardee working closely to strengthen and coordinate newborn screening efforts.
What is the main purpose of the cooperative agreement?
The central purpose is to improve the overall capacity of state and local public health systems to deliver high-quality newborn screening-related services. This includes strengthening screening programs and improving how newborn screening data are collected, managed, analyzed, and used to support early identification and care for infants and children with heritable conditions.
How many awards did HRSA expect to make?
HRSA expected to make one (1) award, indicating a single national awardee.
What was the estimated total funding amount?
The estimated total program funding was $850,000.
What were the award ceiling and award floor?
Both the award ceiling and award floor were listed as $850,000, consistent with a single anticipated award at that amount.
Is cost sharing or matching required?
No. The opportunity stated there was no cost sharing or matching requirement.
What does HRSA mean by a "single national awardee"?
Based on the announcement, HRSA was seeking one organization that can operate at national scale to strengthen and coordinate newborn screening efforts across states and other jurisdictions, including building and operating a centralized data repository and providing hands-on technical assistance.
What are the core program activities expected of the awardee?
The announcement describes several major functions, including:
- Building and operating a centralized newborn screening data repository
- Providing hands-on technical assistance to support improvement of newborn screening programs and related data systems
- Strengthening and coordinating newborn screening efforts across states and other jurisdictions
- Supporting the continuum of care, including follow-up, referrals, treatment coordination, and long-term management considerations
- Education and workforce development for health professionals and newborn screening laboratory personnel (including training on relevant and emerging technologies)
- Public-facing education for parents, families, and patient advocacy/support groups at appropriate literacy levels
- Establishing, maintaining, and operating a system to assess and coordinate treatment related to congenital, genetic, and metabolic disorders
What is the purpose of the centralized data repository?
The repository is intended to support a more consistent and usable picture of newborn screening performance and outcomes. The announcement emphasizes that this can support quality improvement, tracking timeliness, identifying gaps, and enabling evidence-based policy and practice.
Does the opportunity focus only on testing?
No. The opportunity emphasizes the full continuum of care, including identification of conditions, follow-up, referral pathways, treatment coordination, and long-term management considerations, not screening tests alone.
What kinds of conditions are referenced in the program description?
The announcement references newborns and children who have, or may be at risk for, congenital, genetic, and metabolic disorders, and more broadly refers to heritable conditions.
What kind of technical assistance is envisioned?
The description indicates a hands-on technical assistance center role supporting agencies and partners to improve how newborn screening data are collected, managed, analyzed, and used. It also implies direct support for programs adopting new screening methods, improving laboratory workflows, strengthening quality assurance, and integrating improved data systems for reporting and follow-up.
What education and training activities are expected for professionals?
The awardee is expected to assist in providing health care professionals and newborn screening laboratory personnel with education about newborn screening and training on relevant and emerging technologies.
What public education activities are required?
The awardee is expected to develop and deliver educational programs at appropriate literacy levels for parents, families, and patient advocacy and support groups. These programs are expected to address counseling, testing, follow-up, treatment options, and how to access specialty services.
What does it mean to "assess and coordinate treatment" in this opportunity?
The announcement requires establishing, maintaining, and operating a system to assess and coordinate treatment related to congenital, genetic, and metabolic disorders. This suggests the award is intended to support practical coordination and assessment of treatment systems, including whether children who screen positive receive timely confirmatory testing, enter appropriate care, and receive ongoing management.
What is the CFDA number for this program?
The program is listed under CFDA 93.110 (Maternal and Child Health Federal Consolidated Programs).
When was the opportunity posted and when did it close?
The opportunity was posted on April 3, 2014, and the application closing date was May 5, 2014.
Is this opportunity still active?
No. The announcement indicates the opportunity was archived on July 4, 2014.
Who was eligible to apply?
Eligibility (cited under the Public Health Service Act, Section 1109 (42 U.S.C. 300b-8)) was broad and included:
- States or political subdivisions of states
- Consortia of two or more states or political subdivisions
- U.S. territories
- Indian Health Service (IHS)-operated facilities or programs (or those operated under IHS contract/grant)
- Other entities with appropriate newborn screening expertise
What experience or capabilities did HRSA emphasize for applicants?
HRSA emphasized that applicants should bring substantial familiarity and experience in:
- Newborn screening programs
- Public health
- Quality assessment and improvement
- Database development and management
- Collaboration with community programs, professional organizations, and state and federal agencies
Did HRSA restrict applicants to a single state or local area?
No. The announcement emphasized that any applicant able to serve in a national capacity to coordinate services among state newborn screening programs could apply, underscoring an expectation of nationwide coordination.
What jurisdictions are referenced as being supported?
The program is described as strengthening and coordinating newborn screening efforts across states and other jurisdictions, including U.S. territories and IHS-related programs/facilities as part of the eligibility language.
Where could applicants get help accessing the full announcement?
HRSA directed inquiries to the HRSA Grants Application Center and the HRSA Call Center.
What contact information was provided for HRSA assistance?
Applicants or interested parties could contact the HRSA Call Center at CallCenter@HRSA.GOV or 877-464-4772.
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