Opportunity Information: Apply for HRSA 12 070
Apply for HRSA 12 070
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Newborn Screening Technical Assistance and Data Repository Program" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on Jan 17, 2012 and posted on Jan 17, 2012.
- Applicants must submit their applications by Feb 14, 2012. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $850,000.00 to eligible and selected applicants.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification) Native American tribal organizations (other than Federally recognized tribal governments).
- As cited in 42 CFR Part 51a.3(a), any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b) is eligible to apply for this federal funding opportunity. Faith based and community organizations are eligible to apply for this federal funding opportunity. Applicants must have significant familiarity and/or experience with newborn screening programs, quality assessment and improvement, public health, and collaboration with public health and community programs, professional organizations, and state and federal agencies, as well as other programs and organizations that collaborate to improve and provide newborn screening. Any applicant that can serve in a national capacity to coordinate services among the state newborn screening programs is eligible to apply.
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Opportunity Summary:
The Newborn Screening Technical Assistance and Data Repository Program is a federal cooperative agreement offered by the Health Resources and Services Administration (HRSA) to strengthen and modernize how newborn screening and related genetics services are carried out across the United States. The program is designed to provide national leadership and hands-on support to state and territorial public health newborn screening systems. Its focus goes beyond day-to-day screening operations and targets the broader infrastructure that makes newborn screening effective, consistent, and accountable, including technical assistance, workforce training, education, policy support, disorder surveillance, evaluation, and coordinated collaboration with both federal and non-federal partners.
A central aim of the opportunity is to improve the quality and consistency of newborn screening by helping states address practical gaps in knowledge and implementation. The awardee is expected to develop and coordinate educational materials and training activities tailored to the needs of providers and public health professionals, especially where information gaps have been identified. Another major requirement is the use of health information technology to build and operate a National Newborn Screening Quality Measures Data Repository. This repository is intended to standardize the collection and reporting of quantitative quality measures, maintain and analyze those data, and use them to monitor and evaluate state and territorial newborn screening program performance. In addition to program-level monitoring, the repository is meant to support short-term monitoring of children with congenital conditions detected through newborn screening, helping public health systems better understand outcomes and timeliness.
The program also emphasizes systems integration and stronger follow-up across the newborn screening continuum. Proposed activities should improve connections between child health information systems, laboratory performance and quality assurance processes, and both short- and long-term follow-up after an abnormal screening result. The intent is to strengthen how laboratories, public health agencies, and community-based systems communicate and coordinate at community, state, regional, and national levels. Alongside these integration goals, the program is expected to provide a forum for timely, interactive communication among key newborn screening stakeholders, supporting rapid information sharing and alignment on emerging issues, best practices, and policy considerations.
Another key deliverable is the development and implementation of a national quality assurance and enhancement certification effort called the Newborn Screening Quality Certification. The awardee would be expected to create this certification program for state newborn screening systems in partnership with HRSA and in coordination with the Centers for Disease Control and Prevention (CDC) and the Association of Public Health Laboratories (APHL). This component is meant to drive measurable improvement, encourage adoption of effective standards, and create a clearer national picture of program quality. The opportunity also explicitly includes support for training opportunities for public health practitioners working in newborn screening, reinforcing the workforce development and capacity-building mission of the cooperative agreement.
Finally, the awardee is expected to coordinate with and provide assistance to Maternal and Child Health Bureau (MCHB)-funded programs tied to newborn screening infrastructure, including the National Coordinating Center for the Regional Collaboratives, the Regional Genetic and Newborn Screening Service Collaboratives, and the Clearinghouse of Newborn Screening Information. A strong partnership model is built into the opportunity: applicants are expected to collaborate widely with stakeholders, including federal and non-federal organizations, and to pursue innovative approaches to data collection, quality improvement, and educational outreach. Overall, the program is positioned as a national backbone effort intended to increase awareness and understanding of newborn screening, reduce fragmentation across jurisdictions, harmonize practices where possible, and use innovation and technology to improve quality and outcomes nationwide.
From a funding and eligibility standpoint, this was a discretionary HRSA cooperative agreement (Funding Opportunity Number HRSA-12-070) with an estimated total funding amount of $850,000 and an expectation of a single award. There was no cost sharing or matching requirement. Eligible applicants included any public or private entity able to serve nationally and demonstrate significant experience with newborn screening programs, quality assessment and improvement, public health practice, and collaboration with state and federal agencies, professional organizations, and community partners. Eligibility also extended to Indian tribes and tribal organizations as defined in federal law, as well as faith-based and community organizations, as reflected in the governing eligibility language. The opportunity was posted on January 17, 2012, with an original and final closing date of February 14, 2012, and it was later archived on April 14, 2012.
Frequently Asked Questions (FAQs)
What is the Newborn Screening Technical Assistance and Data Repository Program?
The Newborn Screening Technical Assistance and Data Repository Program is a federal cooperative agreement offered by the Health Resources and Services Administration (HRSA). It is intended to strengthen and modernize how newborn screening and related genetics services are carried out across the United States by providing national leadership and hands-on support to state and territorial public health newborn screening systems.
What is the main purpose of this cooperative agreement?
The main purpose is to improve the quality, consistency, and accountability of newborn screening systems nationwide by focusing on the infrastructure behind newborn screening, not just day-to-day screening operations. This includes technical assistance, workforce training, education, policy support, surveillance, evaluation, and coordinated collaboration with federal and non-federal partners.
Who is the federal sponsor of this opportunity?
The opportunity is sponsored by the Health Resources and Services Administration (HRSA).
What type of funding opportunity is this?
This opportunity was a discretionary HRSA cooperative agreement.
What is the Funding Opportunity Number (FON)?
The Funding Opportunity Number listed for this program is HRSA-12-070.
How much funding was available?
The estimated total funding amount was $850,000.
How many awards were expected?
The opportunity indicated an expectation of a single award.
Was there a cost sharing or matching requirement?
No. The opportunity stated there was no cost sharing or matching requirement.
Who was eligible to apply?
Eligible applicants included any public or private entity able to serve nationally and demonstrate significant experience with newborn screening programs, quality assessment and improvement, public health practice, and collaboration with state and federal agencies, professional organizations, and community partners. Eligibility also extended to Indian tribes and tribal organizations (as defined in federal law), as well as faith-based and community organizations, consistent with the governing eligibility language.
What does it mean that applicants must be able to serve nationally?
Based on the opportunity description, the awardee is expected to provide national leadership and support across states and territories, including coordination, technical assistance, and collaboration with a wide range of partners. The eligibility language therefore emphasizes applicants that can operate at a national level rather than within a single jurisdiction.
When was the opportunity posted and when did it close?
The opportunity was posted on January 17, 2012. The original and final closing date was February 14, 2012.
Is this opportunity still open?
No. The opportunity was archived on April 14, 2012, and the final closing date was February 14, 2012.
What is the program expected to do for state and territorial newborn screening systems?
The awardee is expected to provide national leadership and hands-on support to improve infrastructure and performance. This includes offering technical assistance, coordinating education and training, supporting policy and evaluation efforts, enabling better data collection and monitoring, and improving collaboration across jurisdictions and partners.
Does the program focus on day-to-day newborn screening operations?
The focus goes beyond day-to-day screening operations. The program targets the broader infrastructure that makes newborn screening effective, consistent, and accountable.
What kinds of support activities are emphasized?
The opportunity emphasizes technical assistance, workforce training and education, policy support, disorder surveillance, evaluation, and coordinated collaboration with federal and non-federal partners.
What role do education and training play in this program?
Education and training are central requirements. The awardee is expected to develop and coordinate educational materials and training activities tailored to the needs of providers and public health professionals, particularly where information gaps have been identified. The program also explicitly includes support for training opportunities for public health practitioners working in newborn screening.
What is the National Newborn Screening Quality Measures Data Repository?
The opportunity requires the use of health information technology to build and operate a National Newborn Screening Quality Measures Data Repository. The repository is intended to standardize the collection and reporting of quantitative quality measures, maintain and analyze those data, and use them to monitor and evaluate state and territorial newborn screening program performance.
What is the intended use of quality measures data?
The quality measures data are intended to support standardized quantitative reporting, ongoing monitoring, and evaluation of newborn screening program performance across states and territories, creating a more consistent and comparable national picture of quality.
Does the data repository relate to follow-up after screening?
Yes. In addition to program-level monitoring, the repository is meant to support short-term monitoring of children with congenital conditions detected through newborn screening, helping public health systems better understand outcomes and timeliness.
What does the program mean by "systems integration"?
The program emphasizes improving connections across the newborn screening continuum, including stronger links between child health information systems, laboratory performance and quality assurance processes, and short- and long-term follow-up after an abnormal screening result.
What improvements are expected for follow-up across the newborn screening continuum?
Proposed activities should strengthen both short- and long-term follow-up after an abnormal screening result and improve coordination and communication among laboratories, public health agencies, and community-based systems at community, state, regional, and national levels.
How does the program support communication among newborn screening stakeholders?
The program is expected to provide a forum for timely, interactive communication among key newborn screening stakeholders, supporting rapid information sharing and alignment on emerging issues, best practices, and policy considerations.
What is the Newborn Screening Quality Certification?
The Newborn Screening Quality Certification is described as a national quality assurance and enhancement certification effort. A key deliverable under this opportunity is the development and implementation of this certification program for state newborn screening systems.
Who is involved in developing the Newborn Screening Quality Certification?
The awardee would be expected to create the certification program for state newborn screening systems in partnership with HRSA and in coordination with the Centers for Disease Control and Prevention (CDC) and the Association of Public Health Laboratories (APHL).
What is the intended impact of the certification effort?
The certification effort is meant to drive measurable improvement, encourage adoption of effective standards, and create a clearer national picture of state newborn screening program quality.
Which other newborn screening infrastructure programs must the awardee coordinate with?
The awardee is expected to coordinate with and provide assistance to Maternal and Child Health Bureau (MCHB)-funded programs tied to newborn screening infrastructure, including the National Coordinating Center for the Regional Collaboratives, the Regional Genetic and Newborn Screening Service Collaboratives, and the Clearinghouse of Newborn Screening Information.
What partnership expectations are included in the opportunity?
A strong partnership model is built into the opportunity. Applicants are expected to collaborate widely with stakeholders, including federal and non-federal organizations, and to pursue innovative approaches to data collection, quality improvement, and educational outreach.
What broad national challenges is the program trying to address?
The opportunity positions the program as a national backbone effort intended to increase awareness and understanding of newborn screening, reduce fragmentation across jurisdictions, harmonize practices where possible, and use innovation and technology to improve quality and outcomes nationwide.
What kinds of applicant experience were emphasized?
The opportunity emphasized applicants with significant experience with newborn screening programs, quality assessment and improvement, public health practice, and collaboration with state and federal agencies, professional organizations, and community partners.
Is this opportunity limited to government agencies?
No. The eligibility language included any public or private entity meeting the national service and experience expectations, and it also included Indian tribes and tribal organizations, as well as faith-based and community organizations, as reflected in the governing eligibility language.
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