Opportunity Information: Apply for RFA CA 13 008

  • The National Institutes of Health in the education food and nutrition health sector is offering a public funding opportunity titled "Person Centered Outcomes Research Resource (U2C)" and is now available to receive applicants.
  • Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.173 Research Related to Deafness and Communication Disorders 93.213 Research and Training in Complementary and Integrative Health 93.242 Mental Health Research Grants 93.279 Drug Abuse and Addiction Research Programs 93.313 NIH Office of Research on Womens Health 93.361 Nursing Research 93.395 Cancer Treatment Research 93.837 Cardiovascular Diseases Research 93.846 Arthritis, Musculoskeletal and Skin Diseases Research 93.847 Diabetes, Digestive, and Kidney Diseases Extramural Research 93.853 Extramural Research Programs in the Neurosciences and Neurological Disorders 93.866 Aging Research.
  • This funding opportunity was created on Jul 3, 2013 and posted on Jun 19, 2013.
  • Applicants must submit their applications by Sep 26, 2013. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
  • The number of recipients for this funding is limited to 1 candidate(s).
  • Eligible applicants include: Native American tribal governments (Federally recognized) State governments Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Others (see text field entitled Additional Information on Eligibility for clarification) County governments City or township governments For profit organizations other than small businesses Private institutions of higher education Special district governments Public housing authorities/Indian housing authorities Independent school districts Public and State controlled institutions of higher education Native American tribal organizations (other than Federally recognized tribal governments) Small businesses.
  • Other Eligible Applicants include the following Alaska Native and Native Hawaiian Serving Institutions Asian American Native American Pacific Islander Serving Institutions (AANAPISISs) Eligible Agencies of the Federal Government Faith based or Community based Organizations Hispanic serving Institutions Historically Black Colleges and Universities (HBCUs) Indian/Native American Tribal Governments (Other than Federally Recognized) Regional Organizations Tribally Controlled Colleges and Universities (TCCUs) U.S. Territory or Possession Non domestic (non U.S.) Entities (Foreign Institutions) are not eligible to apply. Non domestic (non U.S.) components of U.S. Organizations are not eligible to apply. Foreign components, as defined in the NIH Grants Policy Statement, are not allowed.
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Opportunity Summary:

The Person Centered Outcomes Research Resource (PCORR) grant opportunity (Funding Opportunity Number RFA-CA-13-008) is a National Institutes of Health (NIH) cooperative agreement (U2C) designed to build a shared research resource infrastructure that makes it easier to run studies focused on person-centered health outcomes. In practical terms, the FOA is about creating a central, well-supported capability that investigators across many health areas can rely on when they want to include standardized, high-quality outcome measures that reflect how people feel and function, not just clinical lab values or disease markers. The intent is to improve consistency, usability, and reach of person-centered outcomes tools so they can be deployed more efficiently in research investigations.

A core feature of the PCORR is that it is meant to support and enhance four major NIH-funded measurement information systems that were already being supported as separate programs at the time: (1) PROMIS (Patient-Reported Outcomes Measurement Information System), which provides validated measures of symptoms, functioning, and quality of life from the patient perspective; (2) the NIH Toolbox for Assessment of Neurological and Behavioral Function, which offers a set of performance-based assessments spanning cognitive, emotional, sensory, and motor function; (3) Neuro-QOL (Quality of Life Outcomes in Neurological Disorders), which focuses on quality-of-life measurement relevant to neurological conditions; and (4) ASCQ-Me (Adult Sickle Cell Quality of Life Measurement Information System), which targets outcomes most meaningful to adults living with sickle cell disease. The overarching goal is not to fund brand-new, unrelated measures, but to provide infrastructure that helps researchers use these systems more easily and to support improvements that increase their value, integration, and real-world research utility.

Because the award mechanism is a cooperative agreement (U2C), NIH anticipates substantial programmatic involvement during the life of the award. This generally signals that the funded effort is expected to operate more like a national resource or platform than a typical investigator-initiated research project, with close coordination, shared goals, and active stewardship to ensure the infrastructure meets broad community needs. The FOA anticipates making a single award (Expected Awards: 1), emphasizing that NIH intended one primary awardee to lead and coordinate the resource.

The opportunity is categorized as discretionary funding, with an activity focus that spans education, food and nutrition, and health, reflecting the broad applicability of person-centered measurement across many research domains. The listed CFDA numbers indicate that multiple NIH Institutes and Centers have interests aligned with this resource, including areas such as mental health, drug abuse, nursing research, cancer treatment research, cardiovascular disease, arthritis and musculoskeletal conditions, diabetes and kidney diseases, neuroscience and neurological disorders, aging, and women’s health. This breadth reinforces that PCORR is meant to be cross-cutting infrastructure usable across diseases and populations rather than limited to one specialty.

Eligibility is wide and includes many types of U.S.-based organizations: state, county, city, township, and special district governments; public housing authorities; independent school districts; public and private institutions of higher education; nonprofits with or without 501(c)(3) status (with the noted exception categories); for-profit organizations (other than small businesses, with small businesses also listed separately as eligible); and Native American tribal governments and tribal organizations. The FOA also explicitly includes a range of institution types such as HBCUs, Hispanic-serving institutions, AANAPISIs, TCCUs, Alaska Native and Native Hawaiian Serving Institutions, faith-based or community-based organizations, regional organizations, and U.S. territories or possessions. Foreign institutions are not eligible, and foreign components of U.S. organizations are not allowed, consistent with NIH policy restrictions described in the announcement.

Administratively, the opportunity was posted June 19, 2013, with a closing date of September 26, 2013, and it was archived October 27, 2013. There is no cost sharing or matching requirement. NIH provides an additional information link to the full FOA on the NIH grants website, and for access or linking issues, the NIH Office of Extramural Research (OER) webmaster contact is provided (FBOWebmaster@OD.NIH.GOV).

FAQs: Person Centered Outcomes Research Resource (PCORR) Grant Opportunity (RFA-CA-13-008)

What is the PCORR grant opportunity (RFA-CA-13-008)?

The Person Centered Outcomes Research Resource (PCORR) is an NIH cooperative agreement (U2C) funding opportunity intended to build a shared research resource infrastructure that makes it easier to run studies focused on person-centered health outcomes. The resource is meant to help investigators use standardized, high-quality outcome measures that capture how people feel and function, not just clinical lab values or disease markers.

What is the main purpose of the PCORR resource?

The purpose is to improve the consistency, usability, and reach of person-centered outcomes tools so they can be deployed more efficiently in research investigations. The emphasis is on creating a central, well-supported capability that many investigators across many health areas can rely on.

Is this funding meant to create brand-new outcome measurement systems?

No. The overarching goal is not to fund brand-new, unrelated measures. Instead, the FOA focuses on providing infrastructure that helps researchers use existing NIH-funded measurement systems more easily and supports improvements that increase their value, integration, and real-world research utility.

Which measurement information systems does PCORR support and enhance?

The PCORR is meant to support and enhance four NIH-funded measurement information systems:

  • PROMIS (Patient-Reported Outcomes Measurement Information System) - validated measures of symptoms, functioning, and quality of life from the patient perspective.
  • NIH Toolbox for Assessment of Neurological and Behavioral Function - performance-based assessments spanning cognitive, emotional, sensory, and motor function.
  • Neuro-QOL (Quality of Life Outcomes in Neurological Disorders) - quality-of-life measurement relevant to neurological conditions.
  • ASCQ-Me (Adult Sickle Cell Quality of Life Measurement Information System) - outcomes most meaningful to adults living with sickle cell disease.

What does it mean that this is an NIH cooperative agreement (U2C)?

A cooperative agreement (U2C) indicates NIH anticipates substantial programmatic involvement during the life of the award. In practice, this signals the funded effort is expected to operate more like a national resource or platform than a typical investigator-initiated research project, with close coordination and active stewardship to ensure the infrastructure meets broad community needs.

How many awards did NIH expect to make under this opportunity?

The FOA anticipated making a single award (Expected Awards: 1), meaning NIH intended one primary awardee to lead and coordinate the resource.

What types of research outcomes are emphasized by this program?

The program emphasizes person-centered outcomes, including standardized measures reflecting how people feel and function. This includes patient-reported outcomes and performance-based assessments (such as cognitive, emotional, sensory, and motor function), as reflected by the four supported measurement systems.

What is the funding type and general activity focus for this opportunity?

The opportunity is categorized as discretionary funding, with an activity focus spanning education, food and nutrition, and health. This reflects the broad applicability of person-centered measurement across many research domains.

Is the PCORR resource intended to be cross-cutting across health areas?

Yes. The breadth of listed CFDA numbers indicates that multiple NIH Institutes and Centers have interests aligned with this resource, reinforcing that PCORR is intended as cross-cutting infrastructure usable across diseases and populations rather than limited to one specialty.

Which NIH interest areas are represented by the CFDA breadth described in the opportunity?

The CFDA breadth described suggests alignment with multiple NIH areas, including mental health, drug abuse, nursing research, cancer treatment research, cardiovascular disease, arthritis and musculoskeletal conditions, diabetes and kidney diseases, neuroscience and neurological disorders, aging, and women’s health.

Who is eligible to apply?

Eligibility is broad and includes many U.S.-based organizations, including:

  • State, county, city, township, and special district governments
  • Public housing authorities
  • Independent school districts
  • Public and private institutions of higher education
  • Nonprofits with or without 501(c)(3) status (with noted exception categories in the FOA)
  • For-profit organizations (other than small businesses), with small businesses also listed separately as eligible
  • Native American tribal governments and tribal organizations
  • HBCUs, Hispanic-serving institutions, AANAPISIs, TCCUs
  • Alaska Native and Native Hawaiian Serving Institutions
  • Faith-based or community-based organizations
  • Regional organizations
  • U.S. territories or possessions

Are foreign institutions eligible to apply?

No. Foreign institutions are not eligible.

Are foreign components of U.S. organizations allowed?

No. Foreign components of U.S. organizations are not allowed, consistent with NIH policy restrictions described in the announcement.

Is cost sharing or matching required?

No. The opportunity specifies there is no cost sharing or matching requirement.

When was this opportunity posted and when did it close?

The opportunity was posted on June 19, 2013, and had a closing date of September 26, 2013.

Is this funding opportunity still active?

No. The opportunity was archived on October 27, 2013.

Where can applicants find the full FOA details?

NIH provides an additional information link to the full FOA on the NIH grants website.

Who should be contacted if there are access or linking issues with the FOA?

For access or linking issues, the NIH Office of Extramural Research (OER) webmaster contact is provided: FBOWebmaster@OD.NIH.GOV.

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