Opportunity Information: Apply for CDC RFA DD09 909
Apply for CDC RFA DD09 909
- The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "Population based Surveillance for Hemoglobinopathies" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.184 Disabilities Prevention.
- This funding opportunity was created on Apr 16, 2009 and posted on Apr 16, 2009.
- Applicants must submit their applications by Jun 15, 2009 Letter of Intent Deadline May 15, 2009 Application Deadline June 15, 2009. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $3,000,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $750,000.00 in funding.
- The number of recipients for this funding is limited to 6 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- Eligible applicants that can apply for this funding opportunity are listed below State governments, their Bona Fide Agents (this includes the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, the Commonwealth of the Northern Marianna Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau), or New York City government. The entities listed above are uniquely qualified for the activities under this FOA. They have the public health authority and/or legislative mandate to conduct activities which gives them unique and specific access to datasets from multiple data sources that are required to implement the activities outlined in this FOA. The activities outlined are a pilot project to collect and link data on selected samples of patients for population based estimates. A Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application. If applying as a bona fide agent of a state or local government, a letter from the state or local government as documentation of the status is required. Attach with Other Attachment Forms when submitting via www.grants.gov.
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Opportunity Summary:
The Centers for Disease Control and Prevention (CDC) funding opportunity titled "Population based Surveillance for Hemoglobinopathies" (Funding Opportunity Number CDC RFA DD09-909) supported state-level public health work to improve population-based estimates of hemoglobinopathies by collecting, linking, and analyzing data from multiple sources. Structured as a cooperative agreement (rather than a typical grant), it emphasized active collaboration with CDC and focused on non-research public health surveillance activities. The core aim was to help jurisdictions build a clearer, more accurate picture of how conditions like sickle cell disease and other hemoglobin disorders affect people within their populations, using linked datasets and selected patient samples to generate population-based estimates.
The announcement was organized into two modules that reflected different starting points and needs across jurisdictions. Module A, "Surveillance of Hemoglobinopathies in States," was intended for states that already had some capacity or infrastructure to conduct surveillance and could move more directly into implementing data collection and linkage activities. Module B, "Capacity Building and Surveillance of Hemoglobinopathies in States with a High Historically Underserved Population," was aimed at places where the need for improved surveillance was especially urgent due to larger historically underserved populations, and where additional capacity building would be necessary to do the work well. Both modules were described as pilot programs and were intentionally designed as a learning collaborative, meaning the participating states would work alongside each other and CDC, sharing approaches, challenges, and lessons learned across a mix of state characteristics.
Funding was competitive and limited, with an expected six awards nationwide and an estimated total program funding level of $3,000,000. Individual awards were projected to range from $350,000 (floor) to $750,000 (ceiling). No cost sharing or matching funds were required, which reduced barriers to participation and emphasized federal support for essential public health surveillance development.
Eligibility was narrowly defined to entities with legal authority and practical access to the types of administrative and public health datasets needed for population-based surveillance. Eligible applicants included state governments and their bona fide agents, as well as specified U.S. jurisdictions and territories (including the District of Columbia, Puerto Rico, the U.S. Virgin Islands, the Northern Mariana Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau), plus the New York City government. The rationale for limiting eligibility was that these entities are uniquely positioned to access, combine, and manage multi-source datasets under public health authority or legislative mandate. Applicants applying as a bona fide agent were required to include formal documentation from the relevant government confirming that status.
Key timing details show that this was a time-limited opportunity posted on April 16, 2009, with a Letter of Intent due May 15, 2009 and full applications due June 15, 2009. The opportunity later entered archive status on July 15, 2009. The Catalog of Federal Domestic Assistance (CFDA) listing associated with the opportunity was 93.184, under the Disabilities Prevention program area, reinforcing the public health surveillance and prevention orientation rather than clinical research.
In practical terms, the opportunity sought to strengthen how states and large jurisdictions identify cases and track outcomes for hemoglobinopathies by enabling data linkage across systems that typically do not "talk" to each other. By supporting pilot efforts across a small number of awardees, CDC aimed to develop and refine replicable surveillance approaches, learn what methods work under different state conditions, and lay groundwork for more consistent, reliable population-based hemoglobinopathy estimates in the future. For administrative or access issues related to the full announcement, the listed point of contact was the CDC Procurement and Grants Office Technical Information Management Section (770-488-2700).
FAQs: CDC RFA DD09-909 - Population based Surveillance for Hemoglobinopathies
What is the name of this CDC funding opportunity?
The funding opportunity is titled "Population based Surveillance for Hemoglobinopathies."
What is the Funding Opportunity Number (FON)?
The Funding Opportunity Number is CDC RFA DD09-909.
What type of funding mechanism was used?
This opportunity was structured as a cooperative agreement, which emphasizes active collaboration with CDC rather than operating as a typical grant with more distance between the funder and recipient.
What was the main purpose of the program?
The core aim was to improve population-based estimates of hemoglobinopathies by collecting, linking, and analyzing data from multiple sources at the state or jurisdiction level. The intent was to help jurisdictions build a clearer and more accurate picture of how conditions such as sickle cell disease and other hemoglobin disorders affect people within their populations.
Was the focus research or public health practice?
The emphasis was on non-research public health surveillance activities. The work centered on surveillance methods, data collection, data linkage, and analysis to generate population-based estimates.
What conditions were included under "hemoglobinopathies" for this opportunity?
The description highlights sickle cell disease and other hemoglobin disorders as examples of hemoglobinopathies to be addressed through improved surveillance and population-based estimates.
How did CDC expect awardees to improve population-based estimates?
Jurisdictions were expected to strengthen case identification and outcome tracking by linking datasets across multiple systems that typically do not share information, and by using linked datasets and selected patient samples to generate population-based estimates.
How was the announcement structured?
The announcement was organized into two modules designed to match different starting points and needs across jurisdictions: Module A and Module B.
What was Module A?
Module A was titled "Surveillance of Hemoglobinopathies in States." It was intended for states that already had some capacity or infrastructure to conduct surveillance and could move more directly into implementing data collection and linkage activities.
What was Module B?
Module B was titled "Capacity Building and Surveillance of Hemoglobinopathies in States with a High Historically Underserved Population." It was aimed at jurisdictions where improved surveillance was especially urgent due to larger historically underserved populations and where additional capacity building would be necessary to conduct the work effectively.
Were Modules A and B considered pilot programs?
Yes. Both modules were described as pilot programs intended to test and refine surveillance approaches.
What does it mean that this opportunity was designed as a learning collaborative?
It means participating states and jurisdictions were expected to work alongside each other and CDC, sharing approaches, challenges, and lessons learned across a mix of state characteristics as the pilot surveillance efforts were implemented.
How many awards were expected?
The announcement indicated an expectation of six awards nationwide.
What was the estimated total program funding level?
The estimated total program funding level was $3,000,000.
What was the expected award size range?
Individual awards were projected to range from $350,000 (floor) to $750,000 (ceiling).
Was cost sharing or matching funds required?
No. The opportunity stated that no cost sharing or matching funds were required.
Who was eligible to apply?
Eligibility was limited to entities with legal authority and practical access to the administrative and public health datasets needed for population-based surveillance. Eligible applicants included state governments and their bona fide agents, specified U.S. jurisdictions and territories (including the District of Columbia, Puerto Rico, the U.S. Virgin Islands, the Northern Mariana Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau), and the New York City government.
Why was eligibility limited to governments and certain jurisdictions?
The rationale given was that these entities are uniquely positioned to access, combine, and manage multi-source datasets under public health authority or legislative mandate, which is central to population-based surveillance work.
What is a "bona fide agent" in the context of this opportunity?
A bona fide agent refers to an entity applying on behalf of a state government under an established legal/administrative relationship. The announcement required applicants applying as a bona fide agent to include formal documentation from the relevant government confirming that status.
What documentation was required for applicants applying as a bona fide agent?
Applicants applying as a bona fide agent were required to include formal documentation from the relevant government confirming the entity's bona fide agent status.
When was the opportunity posted?
The opportunity was posted on April 16, 2009.
Was a Letter of Intent (LOI) required, and when was it due?
A Letter of Intent was part of the timeline, with a due date of May 15, 2009.
When were full applications due?
Full applications were due on June 15, 2009.
What does it mean that the opportunity is in archive status?
The opportunity later entered archive status on July 15, 2009, indicating it was a time-limited funding announcement from 2009 and not an open, active solicitation after that date.
What CFDA number was associated with this opportunity?
The associated Catalog of Federal Domestic Assistance (CFDA) listing was 93.184.
What program area was tied to the CFDA listing?
The CFDA listing was under the Disabilities Prevention program area, reflecting a public health surveillance and prevention orientation rather than clinical research.
What kinds of activities did CDC intend to support through this opportunity?
The opportunity sought to support data collection, data linkage, and analysis across multiple data sources to strengthen how jurisdictions identify hemoglobinopathy cases and track outcomes, and to generate more reliable population-based estimates.
What broader goal did CDC have beyond the individual awardees?
By funding pilot efforts across a small number of awardees, CDC aimed to develop and refine replicable surveillance approaches, learn what methods work under different state conditions, and lay groundwork for more consistent and reliable population-based hemoglobinopathy estimates in the future.
Who was listed as the point of contact for administrative or access issues related to the full announcement?
The listed point of contact was the CDC Procurement and Grants Office Technical Information Management Section at 770-488-2700.
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