Opportunity Information: Apply for HRSA 12 138
Apply for HRSA 12 138
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Regional Genetic and Newborn Screening Services Collaboratives Heritable Disorders Program" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on Dec 19, 2011 and posted on Dec 19, 2011.
- Applicants must submit their applications by Jan 27, 2012. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $4,200,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $600,000.00 in funding.
- The number of recipients for this funding is limited to 7 candidate(s).
- Eligible applicants include: State governments Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Special district governments Unrestricted (i.e., open to any type of entity above), subject to any clarification in text field entitled Additional Information on Eligibility Native American tribal organizations (other than Federally recognized tribal governments).
- Eligible applicants include (1) a state or a political subdivision of a state (2) a consortium of two or more states or political subdivisions of states (3) a territory (4) a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service or (5) any other entity with appropriate expertise in newborn screening, as determined by the Secretary. Applicants that fail to show that they are based within the identified region it will serve and be part of a collaborative network of public health program entities responsible for genetic and/or newborn screening and services in all of the states and U.S. territories within that region will not be considered. In addition, applicants must have significant familiarity and experience with multi activities within the designated region that show communication and collaboration among public health and community programs genetic medicine, primary care and other subspecialty providers genetic screening and testing laboratorians and individuals at risk for or affected with heritable disorders and their families. Applicants may NOT apply concurrently for grant funding as the primary applicant for both the National Coordinating Center (HRSA 12 139) and a Regional Genetic and Newborn Screening Service Collaborative (HRSA 12 138). If an applicant does apply for both funding opportunities, both applications will be disqualified.
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Opportunity Summary:
The Regional Genetic and Newborn Screening Services Collaboratives (Heritable Disorders Program) grant opportunity, offered by the Health Resources and Services Administration (HRSA), was designed to fund a set of regional collaboratives that function as regional centers for improving newborn screening and genetic services. The core purpose was to help states and territories strengthen their capacity to deliver timely, high-quality genetic and genomic information and services to the public, especially for individuals who are affected by, or at risk for, heritable disorders and for their families. A major emphasis of the program was translating genomic medicine into real-world health care delivery systems, meaning the work was not just about generating knowledge, but about making genetic and newborn screening services more accessible, coordinated, and usable in routine care.
A key feature of the program was its regional, collaborative model. Rather than funding isolated projects in individual states, HRSA intended each Regional Collaborative (RC) to operate across an entire defined region and to be embedded in a network of public health and service entities responsible for genetic and/or newborn screening activities throughout all states and US territories within that region. The program explicitly aimed to address the uneven distribution of genetic resources across the country, such as shortages of genetics professionals, limited specialty services outside major urban centers, and inconsistent access to screening, follow-up, and long-term management support. Reducing disparities was central to the opportunity, with a stated focus on improving equity for underserved populations, including people in rural communities and groups affected by socioeconomic, racial, and ethnic inequities.
The opportunity also highlighted practical, partnership-driven strategies for reaching underserved populations and improving continuity of care. Funded collaboratives were expected to coordinate with other HRSA and Maternal and Child Health Bureau (MCHB) initiatives, including Title V services, and related MCHB programs supporting conditions and populations such as hemoglobinopathies, hemophilia, and autism. The intent was to connect newborn screening and genetic services with broader systems that families rely on, including community-based services, medical home implementation, transition planning for youth and young adults moving into adult care, and work related to health insurance and financing. In other words, the program pushed for systems-level improvements that make screening meaningful by ensuring families can access confirmatory testing, specialty evaluation, counseling, and ongoing care without losing support once the initial screen is complete.
From a funding and administrative standpoint, this was a discretionary grant program in the health category (CFDA 93.110, Maternal and Child Health Federal Consolidated Programs). HRSA anticipated making 7 awards with an estimated total funding amount of $4.2 million, and an award ceiling of $600,000. There was no cost sharing or matching requirement. The announcement was posted on December 19, 2011, with an application deadline of January 27, 2012, and it was later archived on March 27, 2012.
Eligibility was broad but specific to capacity and regional presence. Eligible applicants included state governments, political subdivisions of states, consortia of two or more states or subdivisions, US territories, Indian Health Service-operated facilities or programs (or those operated under IHS contract/grant), and other entities with appropriate newborn screening expertise as determined by the Secretary. Nonprofits with 501(c)(3) status (excluding institutions of higher education, as listed) and certain special district governments were also included under the general eligibility framing. However, HRSA made clear that applicants had to be based within the region they proposed to serve and had to demonstrate they were part of a collaborative network spanning all states and US territories in that region. Applications that did not convincingly show this regional grounding and comprehensive network participation would not be considered.
Beyond formal eligibility, HRSA emphasized experience and credibility in multi-state collaboration. Applicants needed to show substantial familiarity with, and experience coordinating among, multiple groups across the region: public health and community programs, genetic medicine providers, primary care and subspecialists, screening and testing laboratorians, and individuals and families affected by heritable disorders. This requirement reflects the practical reality of newborn screening systems, where success depends on coordinated handoffs and shared protocols across laboratories, public health programs, clinicians, and family support resources.
Finally, HRSA included an important application restriction: an organization could not apply at the same time as the primary applicant for both this Regional Collaborative funding opportunity (HRSA-12-138) and the separate National Coordinating Center opportunity (HRSA-12-139). If an applicant submitted as the primary applicant for both, HRSA stated that both applications would be disqualified. For access issues or help with the announcement, the point of contact was the HRSA Call Center (CallCenter@HRSA.GOV) and the listed phone numbers.
Frequently Asked Questions (FAQs)
What is the Regional Genetic and Newborn Screening Services Collaboratives (Heritable Disorders Program) grant?
This HRSA grant opportunity was designed to fund a set of regional collaboratives that serve as regional centers to improve newborn screening and genetic services. The program focused on strengthening states' and territories' ability to deliver timely, high-quality genetic and genomic information and services for people affected by, or at risk for, heritable disorders and for their families.
What was the main purpose of the program?
The core purpose was to help states and territories build stronger capacity for newborn screening and genetic services, with an emphasis on improving how genetic and genomic services are delivered to the public in real-world health care settings.
How did HRSA describe the program's approach to genomic medicine?
The opportunity emphasized translating genomic medicine into real-world health care delivery systems. That means the work was intended to go beyond generating knowledge and instead focus on making genetic and newborn screening services more accessible, coordinated, and usable in routine care.
What is meant by the "regional, collaborative model"?
Rather than funding isolated, single-state projects, HRSA intended each Regional Collaborative (RC) to operate across an entire defined region. The RC was expected to be embedded in a network of public health and service entities responsible for genetic and/or newborn screening activities across all states and US territories in that region.
Why did the program focus on regions instead of individual states?
HRSA explicitly aimed to address uneven distribution of genetic resources nationwide, including shortages of genetics professionals, limited specialty services outside major urban centers, and inconsistent access to screening, follow-up, and long-term management support. A regional structure was intended to support coordination and shared capacity across a broader area.
Was reducing disparities a stated goal of this grant?
Yes. Reducing disparities was central to the opportunity. The program stated a focus on improving equity for underserved populations, including people in rural communities and groups affected by socioeconomic, racial, and ethnic inequities.
What types of system improvements were encouraged for continuity of care?
The opportunity highlighted partnership-driven strategies to improve continuity of care so that screening leads to meaningful services. It emphasized connecting families to confirmatory testing, specialty evaluation, counseling, and ongoing care, rather than ending support after an initial newborn screen.
What kinds of partnerships or coordination were expected from funded collaboratives?
Funded collaboratives were expected to coordinate with other HRSA and Maternal and Child Health Bureau (MCHB) initiatives, including Title V services, as well as related MCHB programs supporting conditions and populations such as hemoglobinopathies, hemophilia, and autism.
How did the opportunity describe integration with broader family support systems?
The program pushed for connections between newborn screening/genetic services and broader systems families rely on, including community-based services, medical home implementation, transition planning for youth and young adults moving into adult care, and work related to health insurance and financing.
What was the funding mechanism and program category?
This was a discretionary grant program in the health category. It was listed under CFDA 93.110 (Maternal and Child Health Federal Consolidated Programs).
How many awards did HRSA anticipate making?
HRSA anticipated making 7 awards under this opportunity.
What was the estimated total funding amount?
The estimated total funding amount was $4.2 million.
What was the award ceiling (maximum award amount)?
The award ceiling was $600,000.
Was cost sharing or matching required?
No. The opportunity stated there was no cost sharing or matching requirement.
When was the opportunity posted and when were applications due?
The announcement was posted on December 19, 2011, and the application deadline was January 27, 2012.
Is this opportunity still active?
No. The opportunity was later archived on March 27, 2012.
Who was eligible to apply?
Eligible applicants included state governments, political subdivisions of states, consortia of two or more states or subdivisions, US territories, Indian Health Service-operated facilities or programs (or those operated under an IHS contract or grant), and other entities with appropriate newborn screening expertise as determined by the Secretary. The general eligibility framing also included nonprofits with 501(c)(3) status (excluding institutions of higher education, as listed) and certain special district governments.
Were there geographic or regional requirements for applicants?
Yes. HRSA stated that applicants had to be based within the region they proposed to serve and had to demonstrate they were part of a collaborative network spanning all states and US territories within that region.
What happened if an application did not show a full regional network?
HRSA indicated that applications would not be considered if they did not convincingly demonstrate regional grounding and comprehensive network participation across all states and US territories in the proposed region.
What experience or credibility did HRSA emphasize for applicants?
HRSA emphasized experience coordinating multi-state collaboration. Applicants were expected to show substantial familiarity with coordinating among multiple groups across the region, including public health and community programs, genetic medicine providers, primary care and subspecialists, screening and testing laboratorians, and individuals and families affected by heritable disorders.
Did HRSA include any restrictions related to applying to other opportunities?
Yes. An organization could not apply at the same time as the primary applicant for both this Regional Collaborative opportunity (HRSA-12-138) and the separate National Coordinating Center opportunity (HRSA-12-139).
What was the consequence if an organization applied as the primary applicant to both HRSA-12-138 and HRSA-12-139?
HRSA stated that if an applicant submitted as the primary applicant for both, both applications would be disqualified.
Where could applicants get help or request access assistance for the announcement?
The point of contact listed for access issues or help with the announcement was the HRSA Call Center at CallCenter@HRSA.GOV, along with the phone numbers provided in the announcement.
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