Opportunity Information: Apply for HRSA 13 244
Apply for HRSA 13 244
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "State and Regional Approaches to Improving Access to Services for Children and Youths with Epilepsy" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110 Maternal and Child Health Federal Consolidated Programs.
- This funding opportunity was created on May 14, 2013 and posted on May 14, 2013.
- Applicants must submit their applications by Jun 19, 2013. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $390,536.00 in funding.
- The number of recipients for this funding is limited to 7 candidate(s).
- Eligible applicants include: County governments For profit organizations other than small businesses Native American tribal organizations (other than Federally recognized tribal governments) Independent school districts City or township governments Small businesses State governments Others (see text field entitled Additional Information on Eligibility for clarification) Special district governments.
- Eligible entities include any public or private entity , including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b). 42 C.F.R. Part 51a.3(a).
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Opportunity Summary:
The Health Resources and Services Administration (HRSA), through its Maternal and Child Health Bureau, released this discretionary grant opportunity (HRSA-13-244) to fund state and regional efforts that make it easier for children and youths with epilepsy (CYE) to get the health and supportive services they need, especially in rural and medically underserved areas. The program is built around the idea that access problems are often driven by a maldistribution of specialists, limited local supports, and weak coordination across systems, so applicants are expected to take a statewide or multi-state regional approach rather than run a small stand-alone project. HRSA planned to make up to seven awards, and it limited awards so that no more than one funded project would be affiliated with a Regional Genetics and Newborn Screening Service Collaborative in any given region, helping to spread resources and avoid duplication.
At the center of the announcement is the expectation that grantees will replicate and expand proven or promising strategies from the earlier “Project Access” initiative (funded 2003 to 2012) that focused on increasing epilepsy awareness and improving access to coordinated, comprehensive care. Funded projects are meant to build a community-based system of services for CYE and their families. HRSA defines that system using six core components: (1) patient- and family-centered care that reflects real partnerships between professionals and families, (2) access to a culturally competent patient/family-centered medical home that coordinates comprehensive care, (3) access to adequate health insurance and workable financing for needed services, (4) early and continuous screening for epilepsy and related co-morbid conditions, (5) community services organized so families can find and use them without unnecessary hurdles, and (6) a successful transition from pediatric care into the adult system of care for adolescents and young adults.
The work is designed to align public health and child health care delivery systems, not just improve clinic-level services. Applicants are expected to develop and sustain collaborative partnerships among health and social service agencies, families, health professionals, and payers, while also using quality improvement (QI) methods to test changes and scale what works. Close coordination with the state Maternal and Child Health (Title V) program is a clear requirement, and applicants are expected to have enough infrastructure and networking capacity to operate effectively across an entire state or across multiple states in a region.
HRSA also lays out practical activity areas that grantees should implement to create this community-based service system. These include expanding the knowledge of CYE and their families about epilepsy, treatment options, and available community supports; promoting self-management and self-determination so youths and families can participate meaningfully in decision-making and care management; and strengthening resources and infrastructure that improve access to social services and quality of life. The announcement specifically calls out strategies like improving insurance coverage and access for mental health and social services, creating stronger partnerships across public health agencies, community organizations, and health systems, and exploring the use of patient/parent navigators and community health workers to help families overcome barriers. Grantees are also expected to produce or share information that is clear, culturally and linguistically appropriate, and usable across different health literacy levels, and to connect families with community-based organizations such as the Epilepsy Foundation and Family Voices.
Quality improvement and modern care models are emphasized throughout the grant. HRSA encourages learning collaboratives and improvement networks, along with advanced technology where feasible, to expand team-based medical home care for epilepsy, strengthen linkages between epilepsy specialists and primary care providers (including safety-net providers and community health centers), and improve transitions from pediatric to adult care. The announcement also prioritizes public awareness and education efforts related to seizure recognition and diagnosis, with targeted outreach to first responders, school personnel, early childhood caregivers, and other professionals working with children. Additional priorities include improving public health and primary care collaboration around data sharing and community engagement, and reducing barriers to telemedicine and health information technology adoption for distance learning and clinical practice, recognizing that these tools can be especially important in rural and underserved settings.
A major operational expectation is participation in HRSA’s Maternal and Child Health Bureau Coordinating Center for Access to Services for Children and Youths with Epilepsy. Grantees are expected to join topical communities of practice that focus on sharing model programs and best practices, implementing practice guidelines, using a common set of performance metrics, and strengthening data collection, coordination, performance reporting, and evaluation. Continuous quality improvement, ongoing evaluation, and annual impact assessments are required, carried out with the Coordinating Center and other relevant stakeholders.
The grant’s outcomes and objectives are framed in measurable, family- and system-centered terms. HRSA expects increases in family and provider awareness of epilepsy signs, symptoms, and co-occurring conditions; more families feeling satisfied with their role in shared decision-making; more CYE in rural and medically underserved communities having a true medical home; improved care coordination and provider-to-provider communication; stronger reported linkages to community-based organizations; families reporting that services are easier to access and use; more adolescents and young adults taking responsibility for their health care needs; and greater use of advanced technology, including health information technology, to reach and serve underserved populations.
On the administrative side, this opportunity was posted May 14, 2013, with an application deadline of June 19, 2013, and it was later archived (August 18, 2013). The program anticipated up to seven awards, with an award ceiling of $390,536 and no cost sharing or matching requirement. Eligibility was broad, allowing public or private entities, including state, county, city or township governments, special district governments, independent school districts, tribes and tribal organizations, and for-profit entities (including small businesses), consistent with the federal eligibility language referenced in the announcement.
Frequently Asked Questions (FAQs)
What is this grant opportunity?
This is a discretionary grant opportunity from the Health Resources and Services Administration (HRSA), through the Maternal and Child Health Bureau, identified as HRSA-13-244. It funds state and regional efforts to improve access to health and supportive services for children and youths with epilepsy (CYE), with an emphasis on rural and medically underserved areas.
Who is the target population for funded projects?
Funded projects are intended to benefit children and youths with epilepsy (CYE) and their families, including adolescents and young adults who are preparing to transition from pediatric care into the adult system of care.
What geographic areas does the program emphasize?
The program places particular emphasis on improving access in rural and medically underserved areas, where barriers often include fewer specialists, limited local supports, and weaker coordination across systems.
What approach does HRSA expect applicants to take: local, statewide, or regional?
Applicants are expected to take a statewide approach or a multi-state regional approach. The announcement indicates that access challenges are systemic and should not be addressed through a small, stand-alone project operating in isolation.
How many awards did HRSA plan to make?
HRSA planned to make up to seven awards under this opportunity.
What is the maximum award amount (award ceiling)?
The award ceiling was $390,536.
Is cost sharing or matching required?
No. The opportunity states there is no cost sharing or matching requirement.
When was the opportunity posted, and what was the application deadline?
The opportunity was posted on May 14, 2013, and the application deadline was June 19, 2013.
Is this grant opportunity still open?
No. The opportunity was later archived on August 18, 2013.
What types of organizations were eligible to apply?
Eligibility was broad and included public or private entities. Examples listed include state, county, city or township governments; special district governments; independent school districts; tribes and tribal organizations; and for-profit entities (including small businesses), consistent with the federal eligibility language referenced in the announcement.
What is the main purpose of the funded work?
The purpose is to make it easier for children and youths with epilepsy to access the health and supportive services they need by building a community-based system of services and strengthening coordination across public health and child health care delivery systems.
Why does HRSA focus on statewide or regional systems instead of clinic-level improvements alone?
The announcement frames access problems as being driven by systemic issues such as a maldistribution of specialists, limited local supports, and weak cross-system coordination. Because of that, the program expects work that aligns public health and child health care delivery systems, not just improvements limited to a single clinic or site.
What is “Project Access,” and how does it relate to this grant?
“Project Access” was an earlier initiative funded from 2003 to 2012 that focused on increasing epilepsy awareness and improving access to coordinated, comprehensive care. This opportunity expects grantees to replicate and expand proven or promising strategies from that earlier Project Access initiative.
What does HRSA mean by a “community-based system of services” for CYE?
HRSA defines the community-based system using six core components: (1) patient- and family-centered care built on partnerships between professionals and families; (2) access to a culturally competent patient/family-centered medical home that coordinates comprehensive care; (3) access to adequate health insurance and workable financing for needed services; (4) early and continuous screening for epilepsy and related co-morbid conditions; (5) community services organized so families can find and use them without unnecessary hurdles; and (6) successful transition from pediatric care to the adult system for adolescents and young adults.
What role do families play in the care model described in the announcement?
Family partnership is central. The grant emphasizes patient- and family-centered care and shared decision-making, with an expectation that families participate meaningfully in decision-making and care management.
What is the expectation around “medical home” models?
The announcement calls for access to a culturally competent patient/family-centered medical home that coordinates comprehensive care, including strengthening team-based medical home care for epilepsy where feasible.
Does the grant address insurance coverage and financing barriers?
Yes. One of the six core components is access to adequate health insurance and workable financing for needed services, and the activity areas specifically call out improving insurance coverage and access for mental health and social services.
What does the grant say about screening and co-occurring conditions?
The community-based system includes early and continuous screening for epilepsy and related co-morbid conditions, and the outcomes include increased awareness among families and providers of epilepsy signs, symptoms, and co-occurring conditions.
What kinds of partnerships are applicants expected to build?
Applicants are expected to develop and sustain collaborative partnerships among health and social service agencies, families, health professionals, and payers, operating with enough infrastructure and networking capacity to work effectively across an entire state or across multiple states in a region.
Is coordination with the state Title V program required?
Yes. Close coordination with the state Maternal and Child Health (Title V) program is described as a clear requirement.
What quality improvement (QI) expectations are included?
The announcement expects grantees to use quality improvement methods to test changes and scale what works. It also emphasizes learning collaboratives and improvement networks, along with continuous quality improvement, ongoing evaluation, and annual impact assessments.
What activity areas are grantees expected to implement?
Activity areas described include expanding the knowledge of CYE and their families about epilepsy, treatment options, and community supports; promoting self-management and self-determination; and strengthening resources and infrastructure to improve access to social services and quality of life.
Are navigators or community health workers part of the strategies mentioned?
Yes. The announcement specifically mentions exploring the use of patient/parent navigators and community health workers to help families overcome barriers.
What are the expectations for culturally and linguistically appropriate information?
Grantees are expected to produce or share information that is clear, culturally and linguistically appropriate, and usable across different health literacy levels.
Does the opportunity encourage connections with community-based organizations?
Yes. The announcement explicitly encourages connecting families with community-based organizations such as the Epilepsy Foundation and Family Voices, and it anticipates stronger reported linkages to community-based organizations as an outcome.
What does the announcement say about public awareness and education?
Public awareness and education efforts related to seizure recognition and diagnosis are prioritized. The announcement calls for targeted outreach to first responders, school personnel, early childhood caregivers, and other professionals working with children.
How does the grant address coordination between specialists and primary care providers?
The opportunity emphasizes strengthening linkages between epilepsy specialists and primary care providers, including safety-net providers and community health centers, as part of expanding coordinated, team-based care.
What does the grant say about transitions from pediatric to adult care?
Transition is one of the six core components of the system (a successful transition to adult care for adolescents and young adults). The expected outcomes include more adolescents and young adults taking responsibility for their health care needs and improved transitions from pediatric to adult care.
Is telemedicine or health information technology (HIT) addressed?
Yes. The announcement prioritizes reducing barriers to telemedicine and health information technology adoption for distance learning and clinical practice, noting these tools can be especially important in rural and underserved settings. It also expects greater use of advanced technology, including HIT, to reach and serve underserved populations.
What is the HRSA Maternal and Child Health Bureau Coordinating Center for Access to Services for CYE?
It is a Coordinating Center that supports this program area. Grantees are expected to participate, including joining topical communities of practice that focus on sharing model programs and best practices, implementing practice guidelines, using a common set of performance metrics, and strengthening data collection, coordination, performance reporting, and evaluation.
What reporting or evaluation expectations are included?
The announcement requires continuous quality improvement, ongoing evaluation, and annual impact assessments, carried out with the Coordinating Center and other relevant stakeholders.
What outcomes does HRSA expect funded projects to achieve?
Expected outcomes include: increased family and provider awareness of epilepsy signs, symptoms, and co-occurring conditions; more families satisfied with their role in shared decision-making; more CYE in rural and medically underserved communities having a true medical home; improved care coordination and provider-to-provider communication; stronger linkages to community-based organizations; families reporting that services are easier to access and use; more adolescents and young adults taking responsibility for their health care needs; and greater use of advanced technology (including health information technology) to reach underserved populations.
Were there any limits intended to reduce duplication across regions?
Yes. HRSA limited awards so that no more than one funded project would be affiliated with a Regional Genetics and Newborn Screening Service Collaborative in any given region, with the intent to spread resources and avoid duplication.
What is the role of payers in this program?
The announcement includes payers among the stakeholders with whom applicants are expected to develop and sustain collaborative partnerships, reflecting a focus on workable financing and coverage for needed services.
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