Sudden Death in the Young (SDY) Registry | Apply Online

Frequently Asked Questions (FAQs): Sudden Death in the Young (SDY) Registry (CDC RFA DP14 140303CONT16)

What is the Sudden Death in the Young (SDY) Registry grant opportunity?

The Sudden Death in the Young (SDY) Registry is a continuation cooperative agreement grant opportunity offered by the U.S. Department of Health and Human Services (HHS), Centers for Disease Control and Prevention (CDC). It supports ongoing work to operate and sustain a public health registry focused on sudden deaths among young people.

Which federal agency is offering this funding?

This opportunity is offered by HHS-CDC (U.S. Department of Health and Human Services, Centers for Disease Control and Prevention).

What is the official title of the funding opportunity?

The title shown in the opportunity summary is "Sudden Death in the Young (SDY) Registry."

What is the funding opportunity number?

The funding opportunity number listed is CDC RFA DP14 140303CONT16.

What does it mean that this is a "continuation" opportunity?

The opportunity is described as a continuation cooperative agreement, which indicates it is part of an ongoing or previously established program effort rather than a brand-new, first-time initiative. Continuation language generally signals continued support for existing infrastructure and activities tied to the SDY Registry effort.

What is the CFDA number associated with this opportunity?

The summary associates this opportunity with CFDA number 93.946.

What funding activity category does this program fall under?

The opportunity is categorized under the health funding activity area.

What is the main purpose of the SDY Registry program?

Based on the title and description, the purpose is to support and sustain a public health registry focused on sudden deaths among young people. The registry is intended to systematically identify, collect, and standardize information about sudden deaths in youth to better understand patterns, potential causes, and prevention opportunities.

What kinds of information does an SDY registry typically collect?

The description indicates that SDY registry efforts typically bring together multiple data sources. These may include death investigations, medical examiner or coroner findings, autopsy results when available, medical histories, and other relevant records. The goal is consistent and standardized information that can be used for surveillance and prevention-oriented analysis.

Why is a registry approach used for sudden deaths in young people?

A registry helps systematically gather and standardize data across cases and jurisdictions. By combining information from multiple sources, the registry can support improved surveillance, reveal patterns or contributors, and strengthen the evidence base for prevention strategies intended to reduce preventable deaths.

What makes this award a cooperative agreement?

The opportunity is described as a cooperative agreement, which generally means CDC is expected to have substantial involvement in the supported work. The description notes this involvement may include technical guidance, helping align methods across participating sites, and supporting consistent data quality and reporting.

How many awards are expected?

The opportunity summary indicates an expected 50 awards, suggesting participation by many recipients or sites, which aligns with registry and surveillance efforts that benefit from broad multi-jurisdictional coverage.

What is the application deadline (closing date)?

The opportunity lists both the original and current closing date as April 29, 2016.

When was this opportunity created and posted?

The listing indicates it was created and posted on February 8, 2016.

Is there a maximum award amount (award ceiling)?

The award ceiling is listed as 0 in the summary fields. This usually indicates that a specific maximum amount is not provided in the summary, and any funding limits or continuation funding rules would be detailed in the full announcement or governed by continuation policies and available appropriations.

Who is eligible to apply?

Eligibility is summarized as "Others (see text field entitled Additional Information on Eligibility for clarification)." This means the abbreviated summary does not limit eligibility to common categories and points applicants to the full notice for the definitive eligibility rules.

Does the summary specify exactly which organizations qualify under "Others"?

No. The summary only indicates that applicants should refer to the "Additional Information on Eligibility" section in the full announcement for clarification and definitive eligibility criteria.

What kinds of organizations commonly participate in registry and surveillance cooperative agreements (based on the description)?

The description notes, in general terms, that programs like this often involve organizations capable of handling public health data collection and coordination (for example, public health entities, research institutions, or other qualified partners). However, the summary emphasizes that the definitive answer is found in the full eligibility section referenced in the announcement.

What does the program support overall?

Overall, the opportunity supports continued operation and maintenance (and potentially expansion or strengthening) of SDY Registry infrastructure, with an emphasis on consistent collection and management of information related to sudden death in young populations across multiple awardees.

What outcomes or uses of the registry are implied by the description?

The description suggests the registry is intended to improve understanding of circumstances and contributors to sudden deaths in youth and to strengthen the evidence base for prevention. It also notes that insights from the registry can inform prevention strategies, clinical follow-up practices, family screening considerations, and broader public health interventions.

Is this opportunity intended to be national in scope?

The summary does not explicitly state "national scope," but an expected 50 awards and the registry/surveillance structure described imply broad participation across multiple sites or jurisdictions to make the registry meaningful at a wider level.

Where should applicants look for the most detailed rules (eligibility, funding limits, and requirements)?

Based on the summary, key details such as precise eligibility and any funding constraints are expected to be provided in the full announcement, including the referenced "Additional Information on Eligibility" section.