Opportunity Information: Apply for CDC RFA DD09 910

  • The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "Surveillance of Fetal Alcohol Syndrome (FAS) Utilizing the Infrastructure of Existing Surveillance Programs" and is now available to receive applicants.
  • Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.283 Centers for Disease Control and PreventionInvestigations and Technical Assistance.
  • This funding opportunity was created on Apr 9, 2009 and posted on Apr 9, 2009.
  • Applicants must submit their applications by Jun 8, 2009 Letter of Intent Deadline May 11, 2009 Application Deadline June 8, 2009. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
  • The funding agency has allocated a total of $1,200,000.00 to eligible and selected applicants.
  • Each selected applicant is eligible to receive up to $250,000.00 in funding.
  • The number of recipients for this funding is limited to 6 candidate(s).
  • Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
  • Eligible applicants that can apply for this funding opportunity are listed below Federally recognized or state recognized American Indian/Alaska Native tribal governments American Indian/Alaska native tribally designated organizations Alaska Native health corporations Urban Indian health organizations Tribal epidemiology centers State and local governments or their Bona Fide Agents (this includes the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, the Commonwealth of the Northern Marianna Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau) A Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application. If applying as a bona fide agent of a state or local government, a letter from the state or local government as documentation of the status is required. Attach with Other Attachment Forms when submitting via www.grants.gov.
Apply for CDC RFA DD09 910

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Opportunity Summary:

The CDC grant opportunity titled "Surveillance of Fetal Alcohol Syndrome (FAS) Utilizing the Infrastructure of Existing Surveillance Programs" (Funding Opportunity Number CDC RFA DD09-910; CFDA 93.283) was a discretionary cooperative agreement designed to strengthen and expand population-based surveillance of fetal alcohol syndrome. The core idea was to use and enhance the infrastructure that many jurisdictions already have in place for tracking birth defects, developmental disabilities, or similar public health conditions, and then apply a standardized, multi-source approach developed by the Fetal Alcohol Syndrome Surveillance Network (FASSNet). By building FAS surveillance into existing systems rather than creating something entirely new, the program aimed to generate more reliable prevalence estimates across defined geographic areas and improve the overall quality and consistency of FAS case identification.

A central goal of the program was to determine the prevalence of FAS within a clearly defined catchment area, which could be statewide, multi-state, or a region within a state. Importantly, the surveillance could include high-risk subgroups where FAS may be more likely to occur or be underdiagnosed. The CDC emphasized use of a common methodology and multiple data sources, reflecting the reality that FAS diagnoses and related clinical information are often spread across different systems and service settings. This multi-source approach is intended to reduce missed cases and improve the completeness of ascertainment, since relying on a single data stream (for example, only hospital discharge data or only specialty clinics) can produce an incomplete picture.

Another major purpose was capacity-building: recipients were expected to improve the ability of an existing surveillance program to find infants and children with FAS and to produce population-based data that could be used for public health decision-making. That meant enhancing case-finding procedures, strengthening data management processes, and ensuring the surveillance system could support valid estimates and potential future trend monitoring. The program also pushed applicants to establish or expand active relationships with the places most likely to diagnose or serve children with FAS. Examples highlighted in the announcement included genetics and other specialty clinics, early intervention programs, special education programs, special needs registries, and other developmental disability service settings. These partnerships matter because children with FAS may be identified not only in medical settings but also through educational and developmental services, and integrating those sources can materially improve detection.

The opportunity also required recipients to evaluate how well their surveillance methodology worked in practice. Evaluation areas included how complete the case ascertainment was, the overall quality of collected data, whether the system could credibly generate an FAS prevalence estimate, and whether the approach had enough stability and consistency to support monitoring trends over time. In other words, awardees were not just expected to collect data, but to scrutinize and document how the system performed, where it missed cases, and what improvements were needed to make the results useful and trustworthy for ongoing public health surveillance.

A further required component was provider training and education related to FAS, aimed at improving case ascertainment. This reflects a common surveillance challenge: even when data sources exist, under-recognition and inconsistent diagnostic practices can lead to undercounting. Training clinicians and other providers to recognize, document, and appropriately diagnose or refer suspected cases can increase the number of correctly identified cases and improve the consistency of records used for surveillance. This educational component served the surveillance goals by strengthening the upstream clinical and documentation practices that ultimately feed into the surveillance system.

From an administrative standpoint, the CDC anticipated making about six awards, with an estimated total funding amount of $1.2 million. Individual awards were expected to fall between $150,000 (floor) and $250,000 (ceiling). There was no cost sharing or matching requirement. Key dates were in 2009: the opportunity was posted April 9, 2009, with a letter of intent due May 11, 2009, and applications due June 8, 2009 (the archive date was July 8, 2009). Because this was a cooperative agreement, recipients would generally expect substantial involvement from the CDC beyond what is typical in a standard grant, often including technical assistance, shared methods, and collaboration on surveillance standards and evaluation.

Eligibility was broad across governmental and certain tribal entities. Eligible applicants included federally recognized or state-recognized American Indian/Alaska Native tribal governments; tribally designated organizations; Alaska Native health corporations; urban Indian health organizations; tribal epidemiology centers; and state and local governments (including U.S. territories and freely associated states listed in the announcement). The announcement also allowed applications from Bona Fide Agents of state or local governments, provided that applicants submitted documentation (a letter from the relevant government) confirming their status as a bona fide agent.

Overall, this funding opportunity was structured to help jurisdictions produce stronger, standardized, population-based FAS surveillance by leveraging existing public health surveillance platforms, expanding access to key diagnostic and service data sources, rigorously evaluating surveillance performance, and improving real-world identification through provider education. It also explicitly aligned with the Healthy People 2010 focus area of Maternal, Infant, and Child Health, framing FAS surveillance as an essential tool for understanding burden, targeting prevention, and guiding services for affected children and families.

FAQs: CDC Grant - Surveillance of Fetal Alcohol Syndrome (FAS) Utilizing the Infrastructure of Existing Surveillance Programs (CDC RFA DD09-910; CFDA 93.283)

What is the purpose of this CDC funding opportunity?

The purpose was to strengthen and expand population-based surveillance of fetal alcohol syndrome (FAS) by building FAS case-finding into infrastructure that jurisdictions already use for surveillance of birth defects, developmental disabilities, or similar public health conditions. The program promoted a standardized, multi-source approach developed by the Fetal Alcohol Syndrome Surveillance Network (FASSNet) to improve the quality, consistency, and reliability of FAS prevalence estimates.

What type of award is this?

This opportunity was a discretionary cooperative agreement. That means recipients could expect substantial CDC involvement beyond what is typical in a standard grant, including collaboration, technical assistance, shared methods, and alignment on surveillance standards and evaluation activities.

What is the main surveillance outcome the program aimed to produce?

A central goal was to determine the prevalence of FAS within a clearly defined catchment area. The catchment area could be statewide, multi-state, or a region within a state, and surveillance could also include high-risk subgroups where FAS may be more likely to occur or be underdiagnosed.

Why did CDC emphasize using existing surveillance infrastructure?

By integrating FAS surveillance into established systems rather than creating a new system from scratch, jurisdictions could leverage current staffing, processes, partnerships, and data workflows. The intent was to make surveillance more feasible, improve data quality and consistency, and generate more reliable prevalence estimates across defined geographic areas.

What does "multi-source" FAS surveillance mean in this program?

It means using multiple data sources to identify and validate potential FAS cases rather than relying on only one data stream. Because FAS diagnoses and related clinical details can be spread across medical, educational, and developmental service systems, a multi-source approach is intended to reduce missed cases and improve completeness of case ascertainment.

What standardized approach was referenced in the announcement?

The program referenced a standardized, multi-source methodology developed by the Fetal Alcohol Syndrome Surveillance Network (FASSNet). Applicants were expected to use a common methodology to improve comparability and consistency of FAS surveillance across jurisdictions.

What kinds of existing programs were expected to host or support FAS surveillance?

The funding was designed to build on jurisdictions existing surveillance programs that track birth defects, developmental disabilities, or similar public health conditions. The expectation was to enhance those platforms so they could more effectively identify infants and children with FAS and produce population-based data.

What kinds of partnerships were encouraged or required to improve case finding?

Recipients were expected to establish or expand active relationships with settings likely to diagnose or serve children with FAS. Examples highlighted included genetics and other specialty clinics, early intervention programs, special education programs, special needs registries, and other developmental disability service settings.

Why were non-medical settings (like education or early intervention) important data sources?

The announcement emphasized that children with FAS may be identified not only in medical settings but also through educational and developmental services. Integrating these sources can materially improve detection and reduce undercounting that can occur when surveillance relies only on clinical data systems.

What capacity-building activities were recipients expected to carry out?

Recipients were expected to improve the ability of an existing surveillance program to find infants and children with FAS and to produce population-based data for public health decision-making. This included enhancing case-finding procedures, strengthening data management processes, and ensuring the system could support valid prevalence estimates and potential future trend monitoring.

Was evaluation of the surveillance system required?

Yes. Recipients were required to evaluate how well the surveillance methodology worked in practice, including the completeness of case ascertainment, the quality of collected data, whether the system could credibly generate an FAS prevalence estimate, and whether the approach was stable and consistent enough to support monitoring trends over time.

What does "completeness of case ascertainment" refer to in this context?

It refers to how fully the surveillance system identifies FAS cases within the defined catchment area using the chosen data sources and methods. The multi-source approach was intended to reduce missed cases and improve completeness compared with single-source surveillance.

Why was provider training and education included as a required component?

The opportunity required provider training and education related to FAS to improve case ascertainment. The announcement recognized that under-recognition and inconsistent diagnostic practices can lead to undercounting, even when data sources exist. Training was intended to improve recognition, documentation, diagnosis, and appropriate referral, which in turn strengthens the surveillance data.

How many awards did CDC expect to make under this opportunity?

CDC anticipated making about six awards.

How much funding was available?

The estimated total funding amount was $1.2 million.

What was the expected funding range for individual awards?

Individual awards were expected to range from $150,000 (floor) to $250,000 (ceiling).

Was cost sharing or matching required?

No. The opportunity stated there was no cost sharing or matching requirement.

Who was eligible to apply?

Eligibility included federally recognized or state-recognized American Indian/Alaska Native tribal governments; tribally designated organizations; Alaska Native health corporations; urban Indian health organizations; tribal epidemiology centers; and state and local governments (including U.S. territories and freely associated states listed in the announcement).

Could a Bona Fide Agent apply on behalf of a state or local government?

Yes. The announcement allowed applications from Bona Fide Agents of state or local governments, as long as the applicant submitted documentation (a letter from the relevant government) confirming the organization is a bona fide agent.

What were the key dates for this 2009 opportunity?

The opportunity was posted on April 9, 2009. The letter of intent was due May 11, 2009. Applications were due June 8, 2009. The archive date was July 8, 2009.

What is a "catchment area" in this grant?

In this context, a catchment area is the defined geographic area covered by surveillance for the purpose of producing a population-based FAS prevalence estimate. The announcement indicated this could be statewide, multi-state, or a region within a state.

Did the grant focus only on the general population, or could it include specific groups?

The surveillance could include high-risk subgroups, particularly where FAS may be more likely to occur or be underdiagnosed, in addition to the broader defined catchment area.

What public health use was envisioned for the surveillance data?

The program aimed to generate population-based data that could be used for public health decision-making. The surveillance was framed as a tool to understand burden, improve identification, guide services for affected children and families, and support prevention efforts through better information.

How did this opportunity connect to national public health priorities?

The announcement explicitly aligned the work with Healthy People 2010, specifically the Maternal, Infant, and Child Health focus area, positioning FAS surveillance as an essential part of understanding and addressing maternal and child health needs.

What was the main problem this program was trying to address in FAS surveillance?

The announcement highlighted challenges such as missed cases and inconsistent identification when relying on a single data source or when providers under-recognize or inconsistently document FAS. The program addressed these issues through standardized multi-source methods, stronger partnerships across service settings, evaluation of system performance, and provider education aimed at improving ascertainment.

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