Opportunity Information: Apply for RFA DK 13 008
Apply for RFA DK 13 008
- The National Institutes of Health in the food and nutrition health sector is offering a public funding opportunity titled "United States Renal Data System (USRDS) Special Study Centers (U01)" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.847 Diabetes, Digestive, and Kidney Diseases Extramural Research.
- This funding opportunity was created on May 22, 2013 and posted on May 22, 2013.
- Applicants must submit their applications by Jul 25, 2013. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $1,200,000.00 to eligible and selected applicants.
- Eligible applicants include: Native American tribal organizations (other than Federally recognized tribal governments) County governments Special district governments State governments Public housing authorities/Indian housing authorities Private institutions of higher education Public and State controlled institutions of higher education Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Native American tribal governments (Federally recognized) City or township governments Small businesses Others (see text field entitled Additional Information on Eligibility for clarification) For profit organizations other than small businesses Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Independent school districts.
- Other Eligible Applicants include the following Alaska Native and Native Hawaiian Serving Institutions Asian American Native American Pacific Islander Serving Institutions (AANAPISISs) Faith based or Community based Organizations Hispanic serving Institutions Historically Black Colleges and Universities (HBCUs) Indian/Native American Tribal Governments (Other than Federally Recognized) Regional Organizations Tribally Controlled Colleges and Universities (TCCUs) U.S. Territory or Possession Non domestic (non U.S.) Entities (Foreign Institutions) are not eligible to apply. Non domestic (non U.S.) components of U.S. Organizations are not eligible to apply. Foreign components, as defined in the NIH Grants Policy Statement, are not allowed.
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Opportunity Summary:
This funding opportunity, RFA-DK-13-008, is a National Institutes of Health (NIH) cooperative agreement (U01) run through the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), specifically its Division of Kidney, Urologic and Hematologic Diseases (DKUHD). The goal is to support roughly two to three United States Renal Data System (USRDS) Special Study Centers (SSCs) that will work directly with the USRDS to carry out targeted biomedical and/or economic research focused on late-stage chronic kidney disease (CKD) and dialysis populations. In practical terms, these awards are meant to strengthen and expand what can be learned from the USRDS registry by pairing it with purpose-built special studies and by making deeper use of existing datasets.
A central expectation is that each funded Special Study Center will do more than secondary data analysis. Each SSC is required to design, pilot, and then conduct at least one special study during the project period, while also analyzing existing data resources that are relevant to the USRDS mission. These studies can be biomedical (for example, clinical and outcomes-focused research in advanced CKD or dialysis) or economic (for example, cost, utilization, and policy-relevant analyses). The intent is to generate evidence that meaningfully informs understanding of kidney failure care, outcomes, and potentially the value or impact of different approaches to treatment and delivery of care.
The award mechanism is a cooperative agreement, which signals an active partnership role for NIH rather than a purely investigator-directed grant. The USRDS Coordinating Center is responsible for overall project coordination and for the construction of the core registry data. The Special Study Centers plug into that larger infrastructure by proposing and executing special studies and analyses that complement and extend the registry. The broader initiative is described as a joint effort involving NIH/NIDDK and the Centers for Medicare and Medicaid Services (CMS), carried out in close collaboration with the US nephrology and renal transplant communities and major specialty organizations. That framing highlights that the work is meant to be nationally relevant, tied closely to the reality of kidney disease care in the US, and responsive to stakeholders who use USRDS information for clinical, policy, and research decisions.
Financially, the announcement lists an estimated total funding level of $1,200,000 for the opportunity (as posted in the source summary). The program does not require cost sharing or matching. The original posting date was May 22, 2013, with an application deadline of July 25, 2013, and an archive date of August 25, 2013, indicating this particular announcement is historical rather than currently open.
Eligibility is broad within the US, spanning many domestic organization types: public and private institutions of higher education, nonprofits (including 501(c)(3) and non-501(c)(3) entities), for-profit organizations (including small businesses and other for-profits), and a wide range of governmental entities (state, county, city/township governments, special district governments, independent school districts, and public housing authorities). The eligibility language also explicitly includes several categories of minority-serving and community-based institutions and organizations, such as Historically Black Colleges and Universities (HBCUs), Hispanic-serving institutions, tribally controlled colleges and universities, Alaska Native and Native Hawaiian serving institutions, Asian American and Pacific Islander-serving institutions, and faith-based or community-based organizations, among others. At the same time, foreign institutions are not eligible, and non-US components of US organizations are not eligible; foreign components (as defined by NIH policy) are not allowed.
For applicants trying to understand what success looks like under this announcement, the key idea is alignment with USRDS priorities and feasibility within a collaborative framework. Competitive SSC applications would be expected to propose a strong, well-justified special study in late-stage CKD and/or dialysis that can be piloted and executed during the award, while also demonstrating the capability to leverage existing datasets in ways that add value beyond standard registry reporting. Because the USRDS Coordinating Center handles overarching coordination and registry data construction, SSCs would need to show they can work effectively within that coordinated environment, share data and methods as required, and contribute analyses and study outputs that are useful to NIH, CMS, and the broader kidney community.
The full announcement was hosted by NIH at the link provided in the source (http://grants.nih.gov/grants/guide/rfa-files/RFA-DK-13-008.html). For technical issues accessing or linking to the announcement, the contact provided is the NIH Office of Extramural Research (OER) Webmaster at FBOWebmaster@OD.NIH.GOV.
Frequently Asked Questions (FAQs)
What is the funding opportunity number and title?
The opportunity is identified as RFA-DK-13-008. It is an NIH cooperative agreement (U01) focused on supporting United States Renal Data System (USRDS) Special Study Centers (SSCs) to conduct targeted research in late-stage chronic kidney disease (CKD) and dialysis populations.
Which NIH institute and division are running this opportunity?
This opportunity is run through the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), specifically its Division of Kidney, Urologic and Hematologic Diseases (DKUHD).
What is the overall purpose of this program?
The goal is to support roughly two to three USRDS Special Study Centers (SSCs) that will work directly with the USRDS to carry out targeted biomedical and/or economic research focused on late-stage CKD and dialysis populations. The program is meant to strengthen and expand what can be learned from the USRDS registry by pairing it with purpose-built special studies and by making deeper use of existing datasets.
How many awards were expected to be made?
The announcement indicates the intent to support approximately two to three USRDS Special Study Centers (SSCs).
What award mechanism is being used?
The mechanism is a cooperative agreement (U01). This reflects an active partnership role for NIH rather than a purely investigator-directed grant.
What does it mean that this is a cooperative agreement?
A cooperative agreement indicates that NIH is expected to have a substantial involvement in the project. Under this structure, the USRDS Coordinating Center provides overall project coordination and constructs the core registry data, while Special Study Centers propose and execute special studies and analyses that complement and extend the registry.
What is the USRDS, and how does it relate to these awards?
The United States Renal Data System (USRDS) is a registry and data resource related to kidney disease care in the United States. In this program, funded Special Study Centers are expected to work directly with the USRDS infrastructure to conduct special studies and analyses that expand and deepen insights beyond standard registry reporting.
Who coordinates the overall USRDS project?
The USRDS Coordinating Center is responsible for overall project coordination and for constructing the core registry data.
What is a USRDS Special Study Center (SSC) expected to do?
Each funded SSC is expected to do more than secondary data analysis. Each SSC must design, pilot, and then conduct at least one special study during the project period, while also analyzing existing data resources relevant to the USRDS mission.
Is secondary data analysis alone sufficient for this program?
No. A central expectation is that each Special Study Center will do more than secondary data analysis. Each SSC is required to design, pilot, and conduct at least one special study during the project period in addition to analyzing existing data resources.
What kinds of research topics are in scope?
Research is expected to focus on late-stage chronic kidney disease (CKD) and dialysis populations. The announcement allows for targeted biomedical research (such as clinical and outcomes-focused studies) and/or economic research (such as cost, utilization, and policy-relevant analyses).
Are both biomedical and economic studies allowed?
Yes. The announcement explicitly supports either biomedical special studies (for example, clinical and outcomes-focused research in advanced CKD or dialysis) or economic special studies (for example, cost, utilization, and policy-relevant analyses).
What outcomes is the program aiming to produce?
The intent is to generate evidence that meaningfully informs understanding of kidney failure care and outcomes, and potentially the value or impact of different approaches to treatment and delivery of care, in ways that are useful for national stakeholders.
How does this program connect to CMS and other stakeholders?
The initiative is described as a joint effort involving NIH/NIDDK and the Centers for Medicare and Medicaid Services (CMS), carried out in close collaboration with the US nephrology and renal transplant communities and major specialty organizations. This framing emphasizes national relevance and alignment with real-world kidney care in the United States.
What is the estimated total funding level for this opportunity?
The announcement summary lists an estimated total funding level of $1,200,000 for the opportunity.
Is cost sharing or matching required?
No. The program does not require cost sharing or matching.
When was this opportunity posted, and what were the key dates?
The original posting date was May 22, 2013. The application deadline was July 25, 2013. The archive date was August 25, 2013.
Is this opportunity currently open for applications?
No. Based on the provided dates (deadline July 25, 2013 and archive date August 25, 2013), this specific announcement is historical and is not currently open.
Who is eligible to apply?
Eligibility is broad for domestic (US-based) organizations. It includes public and private institutions of higher education, nonprofits (including 501(c)(3) and non-501(c)(3)), for-profit organizations (including small businesses and other for-profits), and many governmental entities (including state, county, city/township, special district governments, independent school districts, and public housing authorities).
Are minority-serving institutions and community-based organizations included in the eligibility language?
Yes. The eligibility language explicitly includes categories such as Historically Black Colleges and Universities (HBCUs), Hispanic-serving institutions, tribally controlled colleges and universities, Alaska Native and Native Hawaiian serving institutions, Asian American and Pacific Islander-serving institutions, and faith-based or community-based organizations, among others.
Are foreign institutions eligible to apply?
No. Foreign institutions are not eligible under this opportunity.
Can a US organization include a non-US component or foreign component?
No. Non-US components of US organizations are not eligible, and foreign components (as defined by NIH policy) are not allowed.
What would a competitive application generally need to demonstrate?
Based on the description provided, competitive SSC applications would be expected to align strongly with USRDS priorities, propose a well-justified special study in late-stage CKD and/or dialysis that can be piloted and executed during the award, and demonstrate the ability to leverage existing datasets to add value beyond standard registry reporting. Applicants would also need to show they can work effectively within a coordinated, collaborative environment and share data and methods as required.
What role do existing datasets play in this program?
In addition to conducting at least one new special study, SSCs are expected to analyze existing data resources relevant to the USRDS mission, with an emphasis on making deeper use of existing datasets to extend what can be learned from registry reporting alone.
Where can the full announcement be found?
The full announcement was hosted by NIH at: http://grants.nih.gov/grants/guide/rfa-files/RFA-DK-13-008.html
Who should be contacted for technical issues accessing or linking to the announcement?
For technical issues accessing or linking to the announcement, the contact provided is the NIH Office of Extramural Research (OER) Webmaster at FBOWebmaster@OD.NIH.GOV.
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