Opportunity Information: Apply for RFA DD 15 003
Apply for RFA DD 15 003
- The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.315 Rare Disorders Research, Surveillance, Health Promotion, and Education.
- This funding opportunity was created on Feb 12, 2015 and posted on Dec 19, 2014.
- Applicants must submit their applications by Mar 3, 2015 Key Dates Letter of Intent Due Date 02/03/2015 Application Due Date 03/03/2015 On time submission requires that electronic applications be error free and made available to CDC for processing from eRA Commons on or before the deadline date. Applications must be submitted to and validated successfully by Grants.gov/eRA Commons no later than 500 PM U.S. Eastern Time.. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $4,250,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $350,000.00 in funding.
- The number of recipients for this funding is limited to 5 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- Eligibility Information 1. Eligible Applicants Eligibility Category State governments County governments City or township governments Special district governments Independent school districts Public and State controlled institutions of higher education Native American tribal governments (Federally recognized) Public housing authorities/Indian housing authorities Native American tribal organizations (other than Federally recognized tribal governments) Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Nonprofits without 501(c)(3) status with the IRS, other than institutions of higher education Private institutions of higher education For profit organizations other than small businesses Small businesses The following types of Higher Education Institutions are always encouraged to apply for CDC support as Public or Private Institutions of Higher Education Hispanic serving Institutions Historically Black Colleges and Universities (HBCUs) Tribally Controlled Colleges and Universities (TCCUs) Alaska Native and Native Hawaiian Serving Institutions Nonprofits Other Than Institutions of Higher Education Nonprofits (Other than Institutions of Higher Education) Governments Eligible Agencies of the Federal Government U.S. Territory or Possession Other Native American tribal organizations (other than Federally recognized tribal governments) Faith based or Community based Organizations 12 of 41 Regional Organizations Bona Fide Agents a Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application. If applying as a bona fide agent of a state or local government, a legal, binding agreement from the state or local government as documentation of the status is required. Attach with Other Attachment Forms when submitting via www.grants.gov. 2. Foreign Organizations Foreign Organizations are not eligible to apply. Foreign components of U.S. Organizations are not eligible to apply. For this announcement, applicants may not include collaborators or consultants from foreign institutions. All applicable federal laws and policies apply. 3. Special Eligibility Requirements If your application is incomplete or non responsive to the special eligibility requirements listed in this section, it will not enter into the review process. Component C Applicants must demonstrate that their clinic capacity is greater than or equal to 30 individual fragile X syndrome patients per year.
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Opportunity Summary:
The funding opportunity titled "Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes" is a CDC discretionary grant program released under Funding Opportunity Number RFA DD 15-003. It uses a cooperative agreement mechanism, which generally means CDC expects to be actively involved with awardees during the project period through collaboration, technical input, and ongoing coordination rather than simply issuing funds and stepping back. The overall aim is public health focused: building a clearer picture of how fragile X syndrome (FXS) unfolds across the lifespan and using that knowledge to improve services, supports, and outcomes for people living with FXS.
The core purpose of the announcement is threefold. First, it seeks to strengthen understanding of the natural history of FXS using longitudinal data, meaning information collected from the same individuals over time. This emphasis reflects the practical need to understand how cognitive, behavioral, and functional characteristics change from childhood through adolescence and into adulthood, including how needs evolve as people age. Second, the FOA prioritizes improving participation in the longitudinal database among groups that have historically been underrepresented or harder to reach, specifically minority communities, underserved populations, and adults with FXS. In many long-term registries and follow-up studies, these groups are often missing or under-sampled, which limits how useful the findings are for real-world planning and equity in service delivery. Third, the FOA aims to test approaches for measuring cognitive and behavioral functioning in the FXS population, recognizing that standard assessment tools may not always work well or consistently across the full range of abilities and ages seen in FXS, and that measurement quality is critical for tracking change over time.
From a funding and scale standpoint, CDC estimated total funding at about $4.25 million across the program, with an expected five awards. The award ceiling is listed at $350,000, and there is no cost sharing or matching requirement, which lowers barriers for applicants that may not have access to non-federal matching funds. The activity falls under CFDA 93.315, which is associated with rare disorders research, surveillance, health promotion, and education, reinforcing that the intent is both knowledge building and applied impact.
The eligible applicant pool is broad and includes many types of U.S.-based organizations and agencies. Eligible applicants include state, county, and local governments; special districts; independent school districts; public and private institutions of higher education; federally recognized tribal governments and other tribal organizations; public housing authorities; and a wide range of nonprofit organizations (including 501(c)(3) and non-501(c)(3) entities). For-profit organizations, including small businesses, are also eligible. The announcement explicitly encourages applications from certain categories of higher education institutions, such as Hispanic-serving institutions, HBCUs, tribally controlled colleges and universities, and Alaska Native and Native Hawaiian-serving institutions, aligning with the FOA interest in expanding participation among underserved and minority communities. Faith-based and community-based organizations, regional organizations, and bona fide agents applying on behalf of a state or local government may also apply, although bona fide agents must provide formal documentation of that status.
There are significant eligibility restrictions related to foreign involvement. Foreign organizations are not eligible to apply, foreign components of U.S. organizations are not eligible, and applicants may not include collaborators or consultants from foreign institutions for this announcement. That means project teams, subawards, consultants, and formal collaborations must be domestic, and applicants need to be careful about how they structure any external expertise to remain compliant.
The FOA also includes at least one special eligibility requirement tied to a specific project component. For Component C, applicants must demonstrate clinic capacity of at least 30 individual FXS patients per year. This requirement signals that some portion of the funded work likely depends on having a steady flow of individuals with FXS for clinical evaluation, data collection, follow-up, recruitment into the longitudinal database, or testing of measurement approaches. In practice, this requirement tends to favor established clinics, specialty programs, or networks that can document patient volume and sustained access to the target population.
In terms of timing, the opportunity was posted December 19, 2014, with a letter of intent due February 3, 2015, and the application due March 3, 2015. Applications were required to be submitted through Grants.gov and validated in Grants.gov and eRA Commons by 5:00 PM Eastern Time on the due date, and submissions needed to be error-free and available for CDC processing by the deadline. The opportunity was archived April 2, 2015, indicating it is no longer open, but the details remain useful as a reference for similar CDC rare disease and longitudinal data initiatives.
Finally, the announcement is administered by the Centers for Disease Control and Prevention, with a named CDC grants management contact (Roslyn Curington) provided for access issues. Overall, this FOA is designed to support projects that use and improve longitudinal data resources to map how fragile X syndrome changes over time, close participation gaps affecting underserved groups and adults, and strengthen the tools used to measure cognition and behavior so that the resulting evidence better informs service planning and improves outcomes across the lifespan.
Frequently Asked Questions (FAQs)
What is the title of this funding opportunity?
The funding opportunity is titled "Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes."
Which agency is offering this grant?
The opportunity is administered by the Centers for Disease Control and Prevention (CDC).
What is the Funding Opportunity Number (FON) for this announcement?
The Funding Opportunity Number is RFA DD 15-003.
What type of grant mechanism is being used?
This opportunity uses a cooperative agreement mechanism. That means CDC expects to be actively involved during the project period through collaboration, technical input, and ongoing coordination, rather than only providing funds with minimal ongoing interaction.
What is the overall purpose of the program?
The overall purpose is public health focused: to build a clearer picture of how fragile X syndrome (FXS) unfolds across the lifespan and to use that knowledge to improve services, supports, and outcomes for people living with FXS.
What are the main goals or focus areas of the announcement?
The announcement describes three core aims:
- Strengthen understanding of the natural history of FXS using longitudinal data (data collected from the same individuals over time).
- Improve participation in the longitudinal database among underrepresented groups, specifically minority communities, underserved populations, and adults with FXS.
- Test approaches for measuring cognitive and behavioral functioning in the FXS population, recognizing standard tools may not perform consistently across ages and ability levels.
What does "longitudinal data" mean in this context?
It refers to information collected from the same individuals repeatedly over time, allowing changes to be tracked from childhood through adolescence and into adulthood.
Why does the FOA emphasize minority communities, underserved populations, and adults with FXS?
The FOA notes these groups have often been underrepresented or harder to reach in long-term registries and follow-up studies. Increasing their participation improves how useful findings are for real-world planning and equity in service delivery.
Why does the FOA emphasize testing measurement approaches for cognition and behavior?
The FOA recognizes that standard assessment tools may not work well or consistently across the full range of abilities and ages seen in FXS. Measurement quality is critical for tracking change over time.
How much total funding did CDC estimate for this program?
CDC estimated total funding at about $4.25 million across the program.
How many awards were expected?
The FOA anticipated approximately five awards.
What is the award ceiling?
The award ceiling is listed at $350,000.
Is cost sharing or matching required?
No. The FOA states there is no cost sharing or matching requirement.
What is the CFDA number associated with this opportunity?
The activity falls under CFDA 93.315.
Who is eligible to apply?
The eligible applicant pool is broad and includes many U.S.-based organizations and agencies, including:
- State, county, and local governments
- Special districts
- Independent school districts
- Public and private institutions of higher education
- Federally recognized tribal governments and other tribal organizations
- Public housing authorities
- Nonprofit organizations (including 501(c)(3) and non-501(c)(3) entities)
- For-profit organizations, including small businesses
- Faith-based and community-based organizations
- Regional organizations
- Bona fide agents applying on behalf of a state or local government (with formal documentation)
Are for-profit organizations allowed to apply?
Yes. The FOA states that for-profit organizations, including small businesses, are eligible.
Are tribal governments and tribal organizations eligible?
Yes. The FOA includes federally recognized tribal governments and other tribal organizations among eligible applicants.
Does the FOA encourage applications from specific types of higher education institutions?
Yes. The announcement explicitly encourages applications from Hispanic-serving institutions, HBCUs, tribally controlled colleges and universities, and Alaska Native and Native Hawaiian-serving institutions, aligning with the FOA interest in expanding participation among underserved and minority communities.
Can a bona fide agent apply on behalf of a state or local government?
Yes, but the FOA indicates bona fide agents must provide formal documentation of that status.
Are foreign organizations eligible to apply?
No. Foreign organizations are not eligible to apply under this announcement.
Can a U.S. organization include a foreign component as part of the project?
No. Foreign components of U.S. organizations are not eligible for this announcement.
Can applicants include foreign collaborators or consultants?
No. The FOA states applicants may not include collaborators or consultants from foreign institutions. This restriction applies to project teams, subawards, consultants, and formal collaborations.
Are there any special eligibility requirements tied to a specific component?
Yes. For Component C, applicants must demonstrate clinic capacity of at least 30 individual FXS patients per year.
What does the Component C clinic capacity requirement imply?
It indicates that some portion of the work likely depends on a steady flow of individuals with FXS for clinical evaluation, data collection, follow-up, recruitment into the longitudinal database, or testing measurement approaches. It also suggests applicants should be able to document patient volume and sustained access to the target population.
When was this opportunity posted?
The opportunity was posted on December 19, 2014.
Was a letter of intent required, and when was it due?
A letter of intent was due February 3, 2015.
When was the application due?
The application due date was March 3, 2015.
How were applications required to be submitted?
Applications were required to be submitted through Grants.gov.
Were there specific submission validation requirements?
Yes. The FOA states submissions had to be validated in Grants.gov and eRA Commons by 5:00 PM Eastern Time on the due date, be error-free, and be available for CDC processing by the deadline.
Is this funding opportunity still open?
No. The FOA was archived on April 2, 2015, indicating it is no longer open.
Who was the CDC grants management contact listed for access issues?
The announcement lists a CDC grants management contact: Roslyn Curington.
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