Opportunity Information: Apply for HHS 2016 ACL NIDILRR DP 0146

  • The HHS-ACL in the science and technology and other research and development sector is offering a public funding opportunity titled "Disability and Rehabilitation Research Projects (DRRP) Program: National Spinal Cord Injury (SCI) Model Systems Data Center" and is now available to receive applicants.
  • Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.433.
  • This funding opportunity was created on Mar 24, 2016 and posted on Mar 24, 2016.
  • Applicants must submit their applications by May 23, 2016. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
  • Each selected applicant is eligible to receive up to $662,500.00 in funding.
  • The number of recipients for this funding is limited to 1 candidate(s).
  • Eligible applicants include: State governments, County governments, City or township governments, Special district governments, Independent school districts, Public and State controlled institutions of higher education, Native American tribal governments (Federally recognized), Native American tribal organizations (other than Federally recognized tribal governments), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education, Private institutions of higher education, For profit organizations other than small businesses, Others (see text field entitled Additional Information on Eligibility for clarification).
Apply for HHS 2016 ACL NIDILRR DP 0146

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Opportunity Summary:

This grant opportunity, titled Disability and Rehabilitation Research Projects (DRRP) Program: National Spinal Cord Injury (SCI) Model Systems Data Center (Funding Opportunity Number: HHS-2016-ACL-NIDILRR-DP-0146), is a discretionary grant offered by the U.S. Department of Health and Human Services, Administration for Community Living (HHS-ACL), under CFDA 93.433. It sits in the Science and Technology and other Research and Development category and is designed to strengthen the national research infrastructure that supports spinal cord injury rehabilitation. The central purpose is to fund a single National SCI Model Systems Data Center that improves the rigor, consistency, and efficiency of long-term (longitudinal) research tracking the lives and outcomes of people with SCI.

At the core of the project is stewardship of the national longitudinal database used by the SCI Model Systems network. The Data Center is responsible for maintaining this national database and managing the incoming data submitted by each SCI Model Systems Center. In practical terms, that means building and operating the systems and processes that allow multiple funded centers to submit standardized information over time, while keeping the database organized, secure, reliable, and usable for ongoing analysis. The emphasis on longitudinal assessment highlights that the dataset is meant to capture changes and outcomes across time, which is especially important in SCI where medical, functional, and community living outcomes can evolve for years after injury.

A major expectation is ensuring high-quality data collection across the entire network, not just storing information. The opportunity explicitly calls for the Data Center to monitor data quality, which typically involves implementing quality assurance checks, identifying missing or inconsistent entries, verifying adherence to variable definitions, and providing feedback loops to the centers so that problems are corrected early and systematically. The goal is a national dataset that is credible and robust enough to support rigorous scientific conclusions, including multi-site analyses and comparisons that require clean, standardized measures.

The Data Center is also expected to play a support and coordination role for the SCI Model Systems Centers by providing training and technical assistance related to data collection. This includes helping centers understand and apply the required data elements, protocols, and timelines, and ensuring data collectors follow uniform procedures so results are comparable across sites. Alongside training, the Data Center must provide methodological consultation, meaning it should offer expertise on research methods and analytic approaches that help centers make better use of the data and design stronger studies. In effect, the Center acts as a hub that improves both the integrity of the database and the overall research capacity of the SCI Model Systems program.

In terms of basic award structure, the opportunity anticipated one total award (Expected Awards: 1) with an award ceiling of $662,500. The opportunity was posted March 24, 2016, and had a closing date of May 23, 2016. Eligible applicants were broadly defined and included various levels of government (state, county, city/township, special districts), public and private institutions of higher education, independent school districts, federally recognized tribal governments and other tribal organizations, nonprofit organizations with or without 501(c)(3) status (excluding higher education institutions in those categories), and for-profit organizations other than small businesses, with an additional eligibility clarification referenced in the full announcement.

Overall, the grant is about building and operating the data backbone of the National SCI Model Systems program. Rather than funding direct clinical services, it funds the infrastructure and expertise needed to collect, manage, standardize, and validate data at a national level, while actively supporting participating centers through training, quality monitoring, and methodological guidance. The intended payoff is stronger, more reliable SCI rehabilitation research that can better describe long-term outcomes and ultimately inform improvements in rehabilitation practice and community living for people with spinal cord injuries.

Frequently Asked Questions (FAQs)

What is the name of this grant opportunity?

This opportunity is titled "Disability and Rehabilitation Research Projects (DRRP) Program: National Spinal Cord Injury (SCI) Model Systems Data Center."

What is the Funding Opportunity Number?

The Funding Opportunity Number is HHS-2016-ACL-NIDILRR-DP-0146.

Which federal agency is offering this grant?

This is a discretionary grant offered by the U.S. Department of Health and Human Services (HHS), Administration for Community Living (ACL).

What is the CFDA number for this program?

The CFDA number listed for this opportunity is 93.433.

What category does this opportunity fall under?

The opportunity is listed under the "Science and Technology and other Research and Development" category.

What is the main purpose of this grant?

The central purpose is to strengthen the national research infrastructure supporting spinal cord injury (SCI) rehabilitation by funding a single National SCI Model Systems Data Center. The Data Center is intended to improve the rigor, consistency, and efficiency of long-term (longitudinal) research that tracks the lives and outcomes of people with SCI.

How many awards were expected?

The opportunity anticipated one total award (Expected Awards: 1).

What is the maximum (ceiling) award amount?

The award ceiling listed in the opportunity is $662,500.

When was the opportunity posted, and what was the closing date?

The opportunity was posted on March 24, 2016, and the closing date was May 23, 2016.

What does the National SCI Model Systems Data Center do?

The Data Center serves as the data backbone for the National SCI Model Systems program. Its core responsibilities include stewarding the national longitudinal database used by the SCI Model Systems network, maintaining the database, and managing incoming data submissions from each SCI Model Systems Center.

What is meant by a "national longitudinal database" in this context?

It refers to a national dataset designed to track individuals and outcomes over time. The emphasis on longitudinal assessment means the database is structured to capture changes and outcomes across time, which is especially relevant in SCI where medical, functional, and community living outcomes may evolve for years after injury.

Is the Data Center just a storage location for data?

No. The opportunity places major emphasis on ensuring high-quality data collection across the network, not simply storing information. Responsibilities include monitoring data quality and supporting consistent, standardized data collection across multiple participating centers.

What kinds of data quality activities are expected of the Data Center?

The opportunity calls for the Data Center to monitor data quality, which typically includes implementing quality assurance checks, identifying missing or inconsistent entries, verifying adherence to variable definitions, and providing feedback to centers so issues are corrected early and systematically.

How does the Data Center interact with SCI Model Systems Centers?

The Data Center is expected to support and coordinate with SCI Model Systems Centers by providing training and technical assistance related to data collection, and by offering methodological consultation to strengthen research methods and analytic approaches used by the centers.

What training and technical assistance is included in the Data Center role?

The Data Center is expected to help centers understand and apply required data elements, protocols, and timelines, and to help ensure that data collectors follow uniform procedures so results are comparable across sites.

What is "methodological consultation" in the context of this opportunity?

Methodological consultation refers to providing expertise on research methods and analytic approaches that help participating centers make better use of the data and design stronger studies.

Why is standardization across centers important for this program?

The opportunity highlights the need for clean, standardized measures so the national dataset can support rigorous scientific conclusions, including multi-site analyses and comparisons that depend on consistent data definitions and collection practices across centers.

Does this grant fund direct clinical services for people with spinal cord injury?

The described focus is not on funding direct clinical services. Instead, it funds the infrastructure and expertise needed to collect, manage, standardize, and validate data at a national level, while supporting participating centers through training, quality monitoring, and methodological guidance.

Who is eligible to apply for this grant?

Eligible applicants are broadly defined and include various levels of government (state, county, city/township, special districts), public and private institutions of higher education, independent school districts, federally recognized tribal governments and other tribal organizations, nonprofit organizations with or without 501(c)(3) status (excluding higher education institutions in those nonprofit categories), and for-profit organizations other than small businesses. The opportunity also notes an additional eligibility clarification referenced in the full announcement.

Is this grant limited to universities and research institutions?

No. The eligibility description includes multiple entity types beyond higher education institutions, such as governments, certain nonprofits, tribal governments and organizations, and for-profit organizations other than small businesses.

What is the intended long-term benefit of funding a national Data Center?

The intended payoff is stronger, more reliable SCI rehabilitation research that can better describe long-term outcomes and inform improvements in rehabilitation practice and community living for people with spinal cord injuries.

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