Opportunity Information: Apply for RFA DD 11 005
Apply for RFA DD 11 005
- The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "National Spina Bifida Registry Longitudinal Data Collection and Evaluation (U01)" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.283 Centers for Disease Control and PreventionInvestigations and Technical Assistance.
- This funding opportunity was created on Feb 10, 2011 and posted on Dec 22, 2010.
- Applicants must submit their applications by Mar 14, 2011 On time submission requires that applications be successfully submitted to Grants.gov and validated no later than 500 p.m. eastern time on the deadline date.. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $50,000.00 in funding.
- The number of recipients for this funding is limited to 9 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- This FOA is limited to the nine Spina Bifida grantees currently funded under PA DD08 001 University of Alabama at Birmingham Cincinnati Children s Hospital Children s Hospital of Los Angeles University of Colorado Denver Connecticut Children s Medical Center Riley Hospital for Children, Indianapolis Children s Hospital of Wisconsin Oregon Health and Science University Seattle Children s Hospital. These are the only sites in the United States that have experience collecting data using the Electronic Medical Record (EMR) developed for and used in the current award.
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Opportunity Summary:
The National Spina Bifida Registry Longitudinal Data Collection and Evaluation (U01) funding opportunity (RFA-DD-11-005) is a CDC discretionary cooperative agreement intended to extend and build on an existing national effort to improve care for people with spina bifida in the United States. The core purpose is to continue the data collection work that began under the earlier CDC award (DD08-001) and to further demonstrate that longitudinal, clinic-based data collection is feasible in real-world spina bifida care settings. In practice, this means supporting specialized clinical sites to keep gathering standardized patient information over time, using a common approach and tools, so that the registry can help evaluate outcomes and inform improvements in clinical care.
Funding for this opportunity is relatively modest and distributed across multiple sites. CDC anticipated a total of about $630,000 to support nine awards, with an award ceiling listed as $50,000 and no stated minimum award amount (award floor of $0). There is no cost sharing or matching requirement. The funding instrument is a cooperative agreement (U01), which generally signals that CDC expects substantial involvement in the program beyond what is typical for a standard grant, such as collaboration on technical direction, data standards, or evaluation activities.
Eligibility is narrowly restricted. Only the nine existing spina bifida registry grantees funded under PA-DD08-001 are permitted to apply, because these are identified as the only U.S. sites with experience collecting registry data using the specific Electronic Medical Record (EMR) developed for and used in the ongoing project. The eligible institutions are: University of Alabama at Birmingham; Cincinnati Children s Hospital; Children s Hospital of Los Angeles; University of Colorado Denver; Connecticut Children s Medical Center; Riley Hospital for Children (Indianapolis); Children s Hospital of Wisconsin; Oregon Health and Science University; and Seattle Children s Hospital. This limitation reflects the FOA s emphasis on continuity, consistency of data collection methods, and leveraging existing infrastructure rather than onboarding new sites.
Key administrative details include that the opportunity was posted December 22, 2010, with an application deadline of March 14, 2011. Applications had to be submitted through Grants.gov and successfully validated by 5:00 p.m. Eastern Time on the deadline date. The FOA was archived on April 13, 2011. The program is listed under CFDA 93.283 (CDC Investigations and Technical Assistance) and falls within the health activity category.
For applicants needing help obtaining or accessing the full announcement, CDC directed inquiries to its Procurement and Grants Office (PGO), Technical Information and Management Section (TIMS), via phone at 770-488-2700.
Frequently Asked Questions (FAQs): National Spina Bifida Registry Longitudinal Data Collection and Evaluation (U01) - RFA-DD-11-005
1) What is the name of this funding opportunity?
The opportunity is titled The National Spina Bifida Registry Longitudinal Data Collection and Evaluation (U01). The Funding Opportunity Announcement (FOA) number is RFA-DD-11-005.
2) What type of funding is this?
This is a CDC discretionary cooperative agreement using the U01 funding mechanism. A cooperative agreement generally indicates CDC expects substantial involvement in the program (for example, collaboration related to technical direction, data standards, or evaluation activities), beyond what is typical for a standard grant.
3) What is the main purpose of the award?
The core purpose is to extend and build on an existing national effort to improve care for people with spina bifida in the United States by continuing and strengthening longitudinal, clinic-based registry data collection.
4) What work is being continued or extended from prior CDC funding?
This FOA is intended to continue the data collection work that began under the earlier CDC award DD08-001 and to further demonstrate that longitudinal, clinic-based data collection is feasible in real-world spina bifida care settings.
5) What does “longitudinal, clinic-based data collection†mean in this FOA?
In this context, it means supporting specialized clinical sites to collect standardized patient information over time, using a common approach and tools, so the registry can help evaluate outcomes and inform improvements in clinical care.
6) What is the National Spina Bifida Registry intended to support?
Based on the FOA description, the registry is intended to support the ability to evaluate outcomes and to inform improvements in clinical care for people with spina bifida by using consistent, standardized data collected over time at participating clinics.
7) How much funding did CDC anticipate for this opportunity?
CDC anticipated a total of about $630,000 in funding to support nine awards.
8) What is the maximum award amount (award ceiling)?
The FOA lists an award ceiling of $50,000.
9) Is there a minimum award amount (award floor)?
No minimum amount is stated. The FOA indicates an award floor of $0.
10) Is cost sharing or matching required?
No. The FOA specifies there is no cost sharing or matching requirement.
11) How many awards were anticipated?
CDC anticipated making nine awards under this funding opportunity.
12) Who is eligible to apply?
Eligibility is narrowly restricted to only the nine existing spina bifida registry grantees funded under PA-DD08-001.
13) Why is eligibility limited to those nine sites?
The FOA states the limitation is because these are identified as the only U.S. sites with experience collecting registry data using the specific Electronic Medical Record (EMR) developed for and used in the ongoing project. The emphasis is on continuity, consistency of data collection methods, and leveraging existing infrastructure rather than onboarding new sites.
14) Which institutions are eligible under this FOA?
The FOA identifies the eligible institutions as:
- University of Alabama at Birmingham
- Cincinnati Children s Hospital
- Children s Hospital of Los Angeles
- University of Colorado Denver
- Connecticut Children s Medical Center
- Riley Hospital for Children (Indianapolis)
- Children s Hospital of Wisconsin
- Oregon Health and Science University
- Seattle Children s Hospital
15) Can new clinical sites or organizations apply if they were not part of PA-DD08-001?
No. The FOA states that only the nine existing registry grantees funded under PA-DD08-001 are permitted to apply.
16) What role does the EMR play in this project?
The FOA notes that the eligible sites are the only ones with experience using the specific EMR developed for and used in the ongoing registry project. This supports standardized, consistent data collection across sites.
17) What is the CFDA number for this program?
The program is listed under CFDA 93.283, described as CDC Investigations and Technical Assistance.
18) What activity category does this program fall under?
The FOA places the program within the health activity category.
19) When was the opportunity posted?
The FOA indicates it was posted on December 22, 2010.
20) What was the application deadline?
The application deadline listed in the FOA was March 14, 2011.
21) How were applications required to be submitted?
Applications had to be submitted through Grants.gov.
22) What was the exact submission/validation timing requirement?
The FOA specifies that applications needed to be submitted via Grants.gov and successfully validated by 5:00 p.m. Eastern Time on the deadline date.
23) Is this FOA still active?
No. The FOA was archived on April 13, 2011.
24) Who should be contacted for help obtaining or accessing the full announcement?
CDC directed inquiries to its Procurement and Grants Office (PGO), Technical Information and Management Section (TIMS) at 770-488-2700.
25) What does the cooperative agreement structure imply for applicants?
As described in the FOA summary, the U01 cooperative agreement structure generally implies substantial CDC involvement in the program beyond typical grant oversight, such as collaboration on technical direction, data standards, or evaluation activities.
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