Opportunity Information: Apply for CDC RFA DD09 906
Apply for CDC RFA DD09 906
- The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "Promoting Education and Outreach of Persons with Hereditary Blood Disorders Identifying Patients with Diamond Blackfan Anemia" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.184 Disabilities Prevention.
- This funding opportunity was created on Apr 8, 2009 and posted on Apr 8, 2009.
- Applicants must submit their applications by Jun 8, 2009. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $225,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $175,000.00 in funding.
- The number of recipients for this funding is limited to 5 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- Eligible applicants that can apply for this funding opportunity are listed below Nonprofit with 501C3 IRS status (other than institution of higher education) Nonprofit without 501C3 IRS status (other than institution of higher education) For profit organizations (other than small business) Small, minority, and women owned businesses Universities Colleges Research institutions Hospitals Community based organizations Faith based organizations Federally recognized or state recognized American Indian/Alaska Native tribal governments American Indian/Alaska native tribally designated organizations Alaska Native health corporations Urban Indian health organizations Tribal epidemiology centers State and local governments or their Bona Fide Agents (this includes the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, the Commonwealth of the Northern Marianna Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau) Political subdivisions of States (in consultation with States) Other (specify) A Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application. If applying as a bona fide agent of a state or local government, a letter from the state or local government as documentation of the status is required. Attach with Other Attachment Forms when submitting via www.grants.gov.
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Opportunity Summary:
Promoting Education and Outreach of Persons with Hereditary Blood Disorders: Identifying Patients with Diamond Blackfan Anemia is a CDC discretionary grant opportunity (Funding Opportunity Number CDC RFA DD09 906) offered as a cooperative agreement, meaning awardees would be expected to work closely with CDC staff rather than operate entirely independently. The program sits within the health and disability prevention space (CFDA 93.184) and focuses specifically on Diamond Blackfan Anemia (DBA), a rare hereditary blood disorder. The overall intent is practical and clinical: improve how well DBA is recognized and managed by strengthening what is known about the condition and by getting that knowledge into the hands of the clinicians who care for affected patients.
The opportunity is described as having a two-part purpose, with Module A highlighted in the available description. Module A is aimed at expanding understanding of the DBA phenotype, which includes the observable clinical characteristics of people with the disorder. In real terms, that means building a clearer picture of how DBA presents across patients, how it may vary, and what patterns clinicians should be looking for. Alongside that surveillance and characterization work, the program emphasizes education of physicians and other providers. The logic is straightforward: if providers have better, more current information on DBA presentation and variability, they can make more accurate diagnoses, reduce delays in identification, and tailor treatment more appropriately to the patient. The CDC also notes that the knowledge gained from surveillance of DBA patients can have spillover value beyond DBA itself, potentially informing related areas such as birth defects and pediatric cancer, where overlapping clinical concerns, diagnostic pathways, or long-term monitoring issues may exist.
Funding for the announcement was modest but intended to support multiple projects. CDC anticipated making about five awards, with an estimated total funding amount of $225,000. Individual awards were expected to range from a floor of $50,000 up to a ceiling of $175,000. There was no cost sharing or matching requirement, which reduces barriers for applicants that might not have non-federal dollars available to contribute.
Eligibility was broad and included a wide mix of organizational types: nonprofits (with or without 501(c)(3) status), for-profit organizations (including small, minority-, and women-owned businesses), universities, colleges, research institutions, hospitals, community- and faith-based organizations, and multiple categories of tribal entities and tribal health organizations. State and local governments were eligible, as were U.S. territories and freely associated states listed in the announcement. The notice also allowed applications from bona fide agents acting on behalf of state or local governments, but those applicants needed to include documentation (a letter from the relevant government) confirming their bona fide agent status when submitting through Grants.gov.
The timeline reflects a single application cycle in 2009: the opportunity was posted and created on April 8, 2009, with an original and current closing date of June 8, 2009, and it was archived on July 8, 2009. The sponsoring agency was the Centers for Disease Control and Prevention, and applicants needing help accessing the full announcement were directed to the CDC Procurement and Grants Office Technical Information Management Section (phone 770-488-2700).
Frequently Asked Questions (FAQs)
What is the name of this grant opportunity?
The opportunity is titled "Promoting Education and Outreach of Persons with Hereditary Blood Disorders: Identifying Patients with Diamond Blackfan Anemia."
What agency is sponsoring the opportunity?
The sponsoring agency is the Centers for Disease Control and Prevention (CDC).
What is the Funding Opportunity Number (FON)?
The Funding Opportunity Number is CDC RFA DD09 906.
What type of award is this?
This opportunity is offered as a cooperative agreement, which means awardees would be expected to work closely with CDC staff rather than operate entirely independently.
What program area does this opportunity fall under?
It sits within the health and disability prevention space under CFDA 93.184.
What condition is the program focused on?
The program focuses specifically on Diamond Blackfan Anemia (DBA), a rare hereditary blood disorder.
What is the overall intent of the program?
The intent is to improve how well Diamond Blackfan Anemia is recognized and managed by strengthening knowledge about the condition and getting that knowledge into the hands of clinicians who care for affected patients.
How is the program purpose described?
The opportunity is described as having a two-part purpose, with Module A highlighted in the available description.
What is Module A focused on?
Module A is aimed at expanding understanding of the DBA phenotype, meaning the observable clinical characteristics of people with Diamond Blackfan Anemia.
In practical terms, what does "expanding understanding of the DBA phenotype" mean?
It means building a clearer picture of how DBA presents across patients, how it may vary, and what patterns clinicians should be looking for.
Does the opportunity include education and outreach activities?
Yes. Alongside the surveillance and characterization work, the program emphasizes education of physicians and other providers to improve diagnosis and management.
Why does the CDC emphasize provider education for DBA?
The stated logic is that if providers have better, more current information on DBA presentation and variability, they can make more accurate diagnoses, reduce delays in identification, and tailor treatment more appropriately to the patient.
Does the CDC expect benefits beyond Diamond Blackfan Anemia?
Yes. The CDC notes that knowledge gained from surveillance of DBA patients can have spillover value beyond DBA itself, potentially informing related areas such as birth defects and pediatric cancer.
How many awards did CDC anticipate making?
CDC anticipated making about five awards.
What was the estimated total funding amount?
The estimated total funding amount was $225,000.
What was the expected size of individual awards?
Individual awards were expected to range from $50,000 (floor) up to $175,000 (ceiling).
Is there a cost sharing or matching requirement?
No. There was no cost sharing or matching requirement.
What types of organizations were eligible to apply?
Eligibility was broad and included nonprofits (with or without 501(c)(3) status), for-profit organizations (including small, minority-, and women-owned businesses), universities, colleges, research institutions, hospitals, community- and faith-based organizations, and multiple categories of tribal entities and tribal health organizations. State and local governments were eligible, as were U.S. territories and freely associated states listed in the announcement.
Are for-profit organizations eligible?
Yes. For-profit organizations were included as eligible applicants, including small, minority-, and women-owned businesses.
Are nonprofits required to have 501(c)(3) status to be eligible?
No. Nonprofits were eligible with or without 501(c)(3) status.
Are tribal entities and tribal health organizations eligible?
Yes. The eligibility list included multiple categories of tribal entities and tribal health organizations.
Are state and local government agencies eligible?
Yes. State and local governments were eligible applicants.
Are U.S. territories and freely associated states eligible?
Yes. U.S. territories and freely associated states listed in the announcement were eligible.
Can a bona fide agent apply on behalf of a state or local government?
Yes. Applications from bona fide agents acting on behalf of state or local governments were allowed.
What documentation is required for bona fide agents?
Bona fide agents needed to include documentation (a letter from the relevant government) confirming bona fide agent status when submitting through Grants.gov.
When was the opportunity posted?
The opportunity was posted and created on April 8, 2009.
What was the application closing date?
The original and current closing date was June 8, 2009.
Is the opportunity still open?
No. It was archived on July 8, 2009.
Who can applicants contact for help accessing the full announcement?
Applicants needing help accessing the full announcement were directed to the CDC Procurement and Grants Office Technical Information Management Section at 770-488-2700.
Is this opportunity described as discretionary funding?
Yes. It is described as a CDC discretionary grant opportunity.
What is the central clinical goal of the work described?
The central clinical goal is to improve recognition and management of Diamond Blackfan Anemia by strengthening knowledge of the condition and educating clinicians and other providers who diagnose and manage affected patients.
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