Opportunity Information: Apply for RFA HL 17 007
Apply for RFA HL 17 007
- The National Institutes of Health in the health sector is offering a public funding opportunity titled "Sickle Cell Disease in Sub Saharan Africa Data Coordinating Center (U24)" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.839 Blood Diseases and Resources Research.
- This funding opportunity was created on Sep 1, 2015 and posted on Sep 1, 2015.
- Applicants must submit their applications by Feb 26, 2016. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- Other Eligible Applicants include the following Non domestic (non U.S.) Entities (Foreign Organizations) Non domestic (non U.S.) Entities (Foreign Institutions) in African countries are eligible to apply. Non domestic (non U.S.) components of U.S. Organizations in African countries are eligible to apply. Foreign components, as defined in the NIH Grants Policy Statement, are allowed.
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Opportunity Summary:
The Sickle Cell Disease in Sub Saharan Africa Data Coordinating Center (U24) funding opportunity (RFA-HL-17-007) is a National Institutes of Health (NIH) cooperative agreement designed to create a centralized Data Coordinating Center (DCC) to support a broader, multi-site effort called the Sickle Cell Disease (SCD) in Sub Saharan Africa (SSA) Collaborative Consortium (linked to RFA-HL-17-006). The core idea is to put in place the data and coordination backbone needed for large-scale, high-quality SCD research across multiple African sites, with the long-term goal of building the infrastructure for a future SCD in SSA Research Network. Rather than funding a standalone research project, this FOA focuses on building shared systems, processes, and oversight that allow a consortium to function efficiently, generate reliable data, and harmonize work across countries and institutions.
Under this announcement, NIH anticipated making a single award, reflecting the intent to designate one primary DCC that serves the entire consortium. The mechanism is a cooperative agreement (U24), which typically means substantial NIH involvement in the planning, monitoring, and coordination of activities compared with a standard grant. In practice, the DCC would be expected to work closely with NIH program staff and with the funded consortium leadership, helping ensure that data standards, operational procedures, and governance approaches are aligned across the participating sites. The DCC is meant to support the Collaborative Consortium, which is described as consisting of a central Consortium Hub and at least two additional Collaborating Sites, all working toward the shared objective of establishing durable research infrastructure for SCD in SSA.
The opportunity falls under the Health activity category and is associated with CFDA number 93.839 (Blood Diseases and Resources Research). There is no cost sharing or matching requirement. The FOA was posted on September 1, 2015, with an application due date of February 26, 2016, and an archive date of March 28, 2016, meaning it is no longer open for applications but remains an important reference for how NIH structured this type of capacity-building, consortium-enabling award.
Eligibility is notable because it explicitly includes non-U.S. entities based in African countries. Foreign organizations and foreign institutions located in Africa are eligible to apply, as are non-domestic components of U.S. organizations that are located in African countries. In addition, foreign components as defined by the NIH Grants Policy Statement are allowed. This emphasis signals that NIH intended the DCC role to be feasible for Africa-based institutions, not just U.S.-based coordinating centers, and it underscores the broader goal of building sustainable research capacity and leadership within the region most affected by SCD.
Operationally, while the brief excerpt does not list every required function, a DCC in a consortium setting like this is generally expected to provide the shared infrastructure that makes multi-site research possible and credible. That commonly includes establishing common data elements and harmonized case report forms, building or managing data capture systems, setting data quality assurance and control procedures, coordinating data submissions from multiple sites, supporting statistical and analytic planning, and helping manage timelines, reporting, and consortium communications. It also often involves developing policies for data access, data sharing, and governance, along with ensuring that participating sites can adhere to consistent standards for security, confidentiality, and ethical handling of participant information. Because the consortium is described as laying groundwork for a future network, the DCC would also be positioned to design systems that are scalable, interoperable, and durable beyond the initial award period.
The NIH agency point of contact in the provided text is the NIH Office of Extramural Research (OER) Webmaster for technical access and linking issues, with the full announcement hosted on the NIH grants site at http://grants.nih.gov/grants/guide/rfa-files/RFA-HL-17-007.html.
Frequently Asked Questions (FAQs)
What is the Sickle Cell Disease in Sub Saharan Africa Data Coordinating Center (U24) opportunity?
It is an NIH cooperative agreement funding opportunity (RFA-HL-17-007) intended to establish a centralized Data Coordinating Center (DCC) to support a larger, multi-site initiative called the Sickle Cell Disease (SCD) in Sub Saharan Africa (SSA) Collaborative Consortium.
What is the main purpose of the Data Coordinating Center (DCC) under this FOA?
The purpose is to provide the shared data and coordination infrastructure that enables high-quality, harmonized, multi-site SCD research across multiple African sites, and to help lay the groundwork for a future SCD in SSA Research Network.
Is this FOA funding a standalone research project?
No. Based on the description provided, the FOA emphasizes building shared systems, processes, oversight, and coordination capabilities rather than funding a single, standalone research project.
How does this DCC relate to the SCD in SSA Collaborative Consortium?
The DCC is designed to support the Collaborative Consortium, which is referenced as a broader effort linked to a separate funding announcement (RFA-HL-17-006). The consortium is described as including a central Consortium Hub plus at least two additional Collaborating Sites.
What kind of NIH award mechanism is this?
The mechanism is a cooperative agreement (U24). This typically involves substantial NIH participation in planning, monitoring, and coordination compared with a standard grant mechanism.
How many awards did NIH anticipate making?
NIH anticipated making a single award, reflecting the intent to designate one primary DCC to serve the entire consortium.
What does "substantial NIH involvement" usually mean in this context?
In practice, it means the DCC would be expected to work closely with NIH program staff and the consortium leadership to align data standards, operational procedures, and governance approaches across participating sites.
What activity category and CFDA number are associated with this opportunity?
The opportunity is in the Health activity category and is associated with CFDA 93.839 (Blood Diseases and Resources Research).
Is cost sharing or matching required?
No. The information provided states there is no cost sharing or matching requirement.
When was the FOA posted and when were applications due?
The FOA was posted on September 1, 2015, and the application due date was February 26, 2016.
Is this funding opportunity still open?
No. The archive date is March 28, 2016, which indicates the announcement is no longer open for applications.
Why might this archived FOA still be useful?
Even though it is archived, it remains a reference for how NIH structured a consortium-enabling, capacity-building DCC award aimed at supporting multi-site research and building durable infrastructure.
Who is eligible to apply for this DCC award?
Eligibility explicitly includes non-U.S. entities based in African countries, including foreign organizations and foreign institutions located in Africa. It also includes non-domestic components of U.S. organizations that are located in African countries, and foreign components as defined by the NIH Grants Policy Statement.
Does the FOA allow Africa-based institutions to serve as the coordinating center?
Yes. The eligibility language highlighted in the provided description signals NIH intended the DCC role to be feasible for institutions based in Africa, supporting the broader goal of sustainable capacity and leadership in the region.
What types of functions would a DCC typically provide in a multi-site consortium like this?
While the excerpt does not list every required function, typical DCC responsibilities in a consortium setting include establishing common data elements and harmonized case report forms, building or managing data capture systems, implementing data quality assurance and control procedures, coordinating data submissions from multiple sites, supporting statistical and analytic planning, and coordinating timelines, reporting, and consortium communications.
Does the DCC typically handle data governance and data sharing policies?
Yes, DCC roles commonly include developing and supporting policies for data access, data sharing, and governance, and helping ensure consistent standards for security, confidentiality, and ethical handling of participant information across sites.
What does "harmonized" data and operations mean for a consortium?
It refers to aligning data standards, forms, procedures, and oversight across countries and institutions so that data collected at different sites can be combined, compared, and analyzed reliably.
How does the DCC support long-term infrastructure goals beyond the initial award?
Because the consortium is described as laying groundwork for a future network, the DCC would be positioned to design systems that are scalable, interoperable, and durable beyond the initial award period.
Where can the full NIH announcement be found?
The full announcement is hosted on the NIH grants site at: http://grants.nih.gov/grants/guide/rfa-files/RFA-HL-17-007.html
Who is listed as the NIH point of contact in the provided text?
The NIH Office of Extramural Research (OER) Webmaster is listed as the point of contact for technical access and linking issues.
What is the relationship between RFA-HL-17-007 and RFA-HL-17-006?
RFA-HL-17-007 supports the Data Coordinating Center (DCC), while the broader SCD in SSA Collaborative Consortium is linked to RFA-HL-17-006.
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