Opportunity Information: Apply for HRSA 09 231
Apply for HRSA 09 231
- The Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Sickle Cell Treatment Demonstration Program" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.365 Sickle Cell Treatment Demonstration Program.
- This funding opportunity was created on Jul 28, 2009 and posted on Jun 16, 2009.
- Applicants must submit their applications by Jul 16, 2009. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $1,185,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $390,000.00 in funding.
- The number of recipients for this funding is limited to 3 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
- Eligible entities for this grant program will include any Federally qualified health center2, non profit hospital or clinic, or university health center providing primary health care that (1) has a collaborative agreement with a community based sickle cell disease organization or a nonprofit entity with experience in working with individuals with sickle cell disease and (2) can demonstrate that it, this collaborative entity, or the experts described in section 712(c)(2)(C) of the American Jobs Creation Act of 2004, has at least five (5) years experience working with individuals with sickle cell disease. Faith based and community based organizations that meet these qualifications are eligible to apply. For the Networks, priority will be given to eligible entities that are 1) Federally qualified health centers that have a partnership or other arrangement with a comprehensive Sickle Cell Disease treatment center or 2) Federally qualified health centers that intend to develop a partnership or other arrangement with a comprehensive Sickle Cell Disease treatment.
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Opportunity Summary:
The Sickle Cell Treatment Demonstration Program (Funding Opportunity Number HRSA-09-231) is a Health Resources and Services Administration (HRSA) discretionary cooperative agreement initiative designed to strengthen how communities prevent, identify, and treat sickle cell disease by building durable, system-level partnerships. The program is focused on improving access to coordinated services and creating more reliable pathways for patients and families to receive comprehensive, culturally competent, and family-centered care across the lifespan. Rather than funding isolated clinical services, the opportunity emphasizes organizing and coordinating service delivery so that people with sickle cell disease can move more smoothly between primary care, specialty care, support services, and education resources.
A central goal of the program is to develop and establish mechanisms that expand and coordinate prevention and treatment activities through practical collaboration. Supported activities include coordinating service delivery across participating organizations, expanding genetic counseling and testing capacity, bundling or organizing technical services so they are easier for patients to access, training health professionals to improve the quality and consistency of care, and strengthening education, treatment, and continuity-of-care approaches for children, adolescents, and adults living with sickle cell disease. The intent is to reduce fragmentation in care and ensure that patients receive consistent management and support, including during transitions such as moving from pediatric to adult care.
Applicants are expected to operate through partnership networks anchored in primary care settings. These networks must include Federally Qualified Health Centers (FQHCs), nonprofit hospitals or clinics, and/or university health centers that provide primary health care, working collaboratively with comprehensive sickle cell centers and community-based sickle cell disease support organizations or other nonprofit entities that serve individuals with sickle cell disease within a defined service area. In practice, this means the funded project should not be a single organization acting alone; it should be a structured collaboration that intentionally connects frontline primary care with specialized sickle cell expertise and trusted community supports.
Eligibility is limited to entities that can demonstrate both formal collaboration and experience. Specifically, an eligible applicant must be an FQHC, a nonprofit hospital or clinic, or a university health center providing primary health care that (1) has a collaborative agreement with a community-based sickle cell disease organization or a nonprofit entity experienced in working with individuals with sickle cell disease, and (2) can demonstrate that it, its collaborative entity, or qualifying experts referenced in federal law have at least five years of experience working with individuals with sickle cell disease. Faith-based and community-based organizations can apply if they meet these qualifications. For network selection, HRSA indicates priority for FQHCs that already partner with a comprehensive sickle cell disease treatment center or that intend to develop such a partnership, reinforcing the program preference for strong primary care-to-specialty linkages.
Because this is structured as a cooperative agreement, HRSA is signaling an expectation of substantial federal involvement during the project period, typically meaning closer collaboration with the agency compared with a standard grant. Another core requirement is ongoing data collection, which is framed as an evaluation method for the demonstration program. In other words, awardees are expected to participate in continuous data gathering to help measure performance, document outcomes, and inform future improvements in sickle cell service delivery models.
The funding profile reflects a small, competitive demonstration effort. HRSA anticipated three total awards, with an estimated total program funding of $1,185,000 and an award ceiling of $390,000 per award. There is no cost sharing or matching requirement. The opportunity was posted June 16, 2009, with a closing date of July 16, 2009, and was later archived on September 30, 2009. The CFDA number associated with the program is 93.365. For official details and full requirements, the announcement linked HRSA’s grants portal, and HRSA provided support through its call center and email for applicants who had trouble accessing the full posting.
Frequently Asked Questions (FAQs)
What is the Sickle Cell Treatment Demonstration Program (HRSA-09-231)?
The Sickle Cell Treatment Demonstration Program (Funding Opportunity Number HRSA-09-231) is a Health Resources and Services Administration (HRSA) discretionary cooperative agreement initiative. It is designed to strengthen how communities prevent, identify, and treat sickle cell disease by building durable, system-level partnerships that improve access to coordinated services and reliable pathways to comprehensive care.
What is the main purpose of this funding opportunity?
The central purpose is to reduce fragmentation in sickle cell disease care by organizing and coordinating service delivery across a defined service area. The emphasis is on building practical collaboration so patients and families can move more smoothly between primary care, specialty care, support services, and education resources across the lifespan.
Is this program intended to fund direct clinical services?
No. The opportunity explicitly emphasizes organizing and coordinating service delivery rather than funding isolated clinical services. The focus is on strengthening systems, pathways, partnerships, and continuity so coordinated care becomes more consistent and easier to access.
What types of activities are supported under this program?
Supported activities described in the opportunity include:
- Coordinating service delivery across participating organizations
- Expanding genetic counseling and testing capacity
- Bundling or organizing technical services so they are easier for patients to access
- Training health professionals to improve quality and consistency of care
- Strengthening education, treatment, and continuity-of-care approaches for children, adolescents, and adults with sickle cell disease
- Improving management and support during care transitions (such as pediatric-to-adult care)
What does HRSA mean by “durable, system-level partnerships”?
Based on the description, this refers to structured collaborations that connect frontline primary care with specialized sickle cell expertise and trusted community supports, creating long-lasting mechanisms for coordinated prevention and treatment activities within a defined service area.
How is the project expected to be organized (single organization vs. network)?
The funded project is expected to operate through a partnership network anchored in primary care settings. The opportunity indicates the project should not be a single organization acting alone; it should be a structured collaboration linking primary care organizations with comprehensive sickle cell centers and community-based support organizations.
What organizations must be included in the partnership network?
The network is expected to include primary care anchors such as Federally Qualified Health Centers (FQHCs), nonprofit hospitals or clinics, and/or university health centers that provide primary health care. These primary care entities should work collaboratively with comprehensive sickle cell centers and community-based sickle cell disease support organizations (or other nonprofit entities serving individuals with sickle cell disease) within a defined service area.
Who is eligible to apply?
Eligibility is limited to entities that can demonstrate both formal collaboration and experience. An eligible applicant must be an FQHC, a nonprofit hospital or clinic, or a university health center providing primary health care, and must meet collaboration and experience requirements described in the announcement.
What collaboration is required for eligibility?
The applicant must have a collaborative agreement with a community-based sickle cell disease organization or a nonprofit entity experienced in working with individuals with sickle cell disease.
What experience is required to be eligible?
The applicant must demonstrate that it, its collaborative entity, or qualifying experts referenced in federal law have at least five years of experience working with individuals with sickle cell disease.
Can faith-based organizations apply?
Yes. Faith-based organizations can apply if they meet the stated eligibility qualifications (including being an eligible entity type and meeting the collaboration and five-year experience requirements).
Can community-based organizations apply?
Yes. Community-based organizations can apply if they meet the stated eligibility qualifications (including the required collaboration and experience conditions described in the opportunity).
Does HRSA state any preference or priority for certain applicants?
Yes. For network selection, HRSA indicates priority for FQHCs that already partner with a comprehensive sickle cell disease treatment center or that intend to develop such a partnership. This reflects a preference for strong primary care-to-specialty linkages.
What is a “cooperative agreement,” and how does it affect the project?
This opportunity is a cooperative agreement, which signals an expectation of substantial federal involvement during the project period. Compared with a standard grant, this generally means closer collaboration with HRSA while the project is being carried out.
Are awardees required to collect data?
Yes. Ongoing data collection is described as a core requirement and is framed as an evaluation method for the demonstration program. Awardees are expected to participate in continuous data gathering to measure performance, document outcomes, and inform improvements to service delivery models.
How many awards did HRSA anticipate making?
HRSA anticipated a total of three awards.
What is the total estimated funding amount for the program?
The estimated total program funding was $1,185,000.
What is the maximum award amount (award ceiling)?
The award ceiling was $390,000 per award.
Is there a cost sharing or matching requirement?
No. The opportunity states there is no cost sharing or matching requirement.
When was this funding opportunity posted and when did it close?
The opportunity was posted on June 16, 2009, and had a closing date of July 16, 2009.
Is this opportunity still active?
No. The opportunity was later archived on September 30, 2009.
What is the CFDA number associated with this program?
The CFDA number associated with the program is 93.365.
Where were applicants directed to find official details and requirements?
The announcement linked HRSA’s grants portal for official details and full requirements.
What support did HRSA provide if applicants had trouble accessing the full posting?
HRSA provided support through its call center and email for applicants who had trouble accessing the full posting.
What patient populations and life stages does the program emphasize?
The program emphasizes improving education, treatment, and continuity-of-care for children, adolescents, and adults living with sickle cell disease, including key transitions such as moving from pediatric to adult care.
What does “culturally competent” and “family-centered” care mean in the context of this opportunity?
In this opportunity, the intent is to ensure patients and families can access comprehensive care that is coordinated, respectful of community needs, and supportive of families across the lifespan through better-organized service pathways and partnerships.
What is meant by “defined service area”?
The opportunity describes partnerships serving individuals with sickle cell disease within a defined service area, meaning the collaboration is organized around a specific geographic or community area where participating organizations coordinate prevention, identification, and treatment efforts.
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