Opportunity Information: Apply for CDC RFA CK15 1504
Apply for CDC RFA CK15 1504
- The Centers for Disease Control and Prevention in the health sector is offering a public funding opportunity titled "Creutzfeldt Jakob Disease (CJD) Increasing Educational Support for CJD Families and the Nation" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.283 Centers for Disease Control and PreventionInvestigations and Technical Assistance.
- This funding opportunity was created on Jun 17, 2015 and posted on Jun 17, 2015.
- Applicants must submit their applications by Aug 14, 2015 Electronically submitted applications must be submitted no later than 1159 p.m., ET, on the listed application due date.. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- The funding agency has allocated a total of $70,000.00 to eligible and selected applicants.
- Each selected applicant is eligible to receive up to $70,000.00 in funding.
- The number of recipients for this funding is limited to 1 candidate(s).
- Eligible applicants include: Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education Native American tribal organizations (other than Federally recognized tribal governments) Public and State controlled institutions of higher education Native American tribal governments (Federally recognized) For profit organizations other than small businesses Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education Private institutions of higher education.
- Community Based Organizations, Faith Based Organizations, Urban Indian Health Organizations and Tribal Epidemiology Centers
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Opportunity Summary:
This CDC funding opportunity (CDC RFA CK15-1504) focuses on strengthening education and practical support for families dealing with suspected or diagnosed Creutzfeldt Jakob disease (CJD) and, at the same time, improving the nations ability to track CJD and any emerging variants through better surveillance and more confirmed diagnoses. CJD is described as a rare but devastating and fatal brain disorder, occurring at roughly one case per million people each year, with most patients dying within about six months after symptoms begin. Because the disease rapidly damages the brain, patients often become completely dependent on caregivers for basic daily needs. The announcement also highlights the public health importance of variant CJD, first recognized in the United Kingdom in 1996 and linked to bovine spongiform encephalopathy (BSE). While over 200 variant cases have been identified globally, the United States has documented only a few, and those exposures were believed to have happened outside the country, underscoring the need for vigilance and strong surveillance systems.
The program is designed around four connected goals. First, it aims to give families fast, easy access to consultations with people who have real experience with the practical realities of prion disease, such as caregiving challenges, infection control concerns, navigating healthcare decisions, and understanding what to expect as the illness progresses. Second, it promotes educational and mutually beneficial interaction between researchers and affected families, recognizing that families need clear, usable information while researchers can learn from patient and caregiver experiences that may improve future outreach and study efforts. Third, it seeks to raise overall awareness of CJD among families, healthcare professionals, and the broader public, based on the idea that informed families are better equipped to make appropriate care decisions and to work effectively with medical teams. Fourth, it aims to increase the number of autopsies in suspected CJD cases, because confirmation of CJD requires neuropathological examination of brain tissue. The grant frames autopsy participation as essential not only for confirming individual diagnoses, but also for learning which types of human prion disease are present in the United States, how frequently they occur over time, and whether new or unusual forms may be emerging.
A major public health payoff emphasized in the announcement is that improved autopsy-based confirmation and associated study can strengthen national surveillance and help detect potential emerging forms earlier. That, in turn, can support progress toward better tools, including improved pre-mortem diagnostic tests and, eventually, treatments. The opportunity is tied to the Healthy People 2010 focus area on Immunization and Infectious Diseases, with measurable outcomes expected to align with that national health framework. In practical terms, the CDC is looking for a project that combines family-centered education and support with activities that enhance surveillance and case confirmation, using communication and collaboration among researchers, healthcare providers, and families as a key strategy.
Administratively, the opportunity was offered as a cooperative agreement, meaning the CDC would expect substantial involvement and collaboration during the project rather than simply issuing funds with minimal federal interaction. It was categorized under the health funding activity area and listed under CFDA 93.283 (CDC Investigations and Technical Assistance). The total estimated funding was $70,000, with a single expected award and a fixed award floor and ceiling of $70,000, and it did not require cost sharing or matching. Eligible applicants were broad and included nonprofits (both with and without 501(c)(3) status), for-profit organizations (other than small businesses), public and private institutions of higher education, and Native American tribal governments and tribal organizations. The eligibility notes also called out community-based organizations, faith-based organizations, Urban Indian Health Organizations, and Tribal Epidemiology Centers as relevant applicant types. The announcement originally posted June 17, 2015, with applications due August 14, 2015, and it later moved to archive status in September 2015. The listed CDC grants policy contact for access issues was Nicole Goggins (NAJ4@cdc.gov).
Frequently Asked Questions (FAQs)
What is this CDC funding opportunity?
This is a CDC funding opportunity identified as CDC RFA CK15-1504. It is focused on strengthening education and practical support for families dealing with suspected or diagnosed Creutzfeldt Jakob disease (CJD), while also improving the nation's ability to track CJD and any emerging variants through stronger surveillance and more confirmed diagnoses.
What is Creutzfeldt Jakob disease (CJD) as described in the announcement?
CJD is described as a rare, devastating, and fatal brain disorder. It occurs at roughly one case per million people each year, and most patients die within about six months after symptoms begin. Because it rapidly damages the brain, patients often become completely dependent on caregivers for basic daily needs.
Why does the opportunity emphasize variant CJD?
The announcement highlights the public health importance of variant CJD, which was first recognized in the United Kingdom in 1996 and linked to bovine spongiform encephalopathy (BSE). More than 200 variant cases have been identified globally. The United States has documented only a few cases, and those exposures were believed to have occurred outside the country, which the announcement uses to underscore the need for vigilance and strong surveillance systems.
What are the main goals of the program?
The program is organized around four connected goals:
- Provide families fast, easy access to consultations with people experienced in the practical realities of prion disease.
- Promote educational and mutually beneficial interaction between researchers and affected families.
- Raise overall awareness of CJD among families, healthcare professionals, and the broader public.
- Increase the number of autopsies in suspected CJD cases to improve confirmation and surveillance.
What kinds of family support and consultation does the project aim to provide?
The opportunity calls for helping families quickly access consultations with people who understand real-world prion disease needs, including caregiving challenges, infection control concerns, navigating healthcare decisions, and understanding what to expect as the illness progresses.
How does the program connect researchers and families?
The announcement promotes educational, mutually beneficial interaction between researchers and affected families. The rationale provided is that families need clear, usable information, while researchers can learn from patient and caregiver experiences to improve future outreach and study efforts.
Who is the education and awareness effort intended to reach?
The opportunity states that the project should raise awareness among families, healthcare professionals, and the broader public, based on the idea that informed families are better equipped to make appropriate care decisions and to work effectively with medical teams.
Why does the opportunity emphasize autopsies in suspected CJD cases?
The announcement states that confirmation of CJD requires neuropathological examination of brain tissue. Increasing autopsy participation is framed as essential for confirming individual diagnoses and for understanding which types of human prion disease are present in the United States, how frequently they occur over time, and whether new or unusual forms may be emerging.
How does increased autopsy confirmation strengthen public health surveillance?
The grant describes a major payoff: improved autopsy-based confirmation and associated study can strengthen national surveillance and help detect potential emerging forms earlier. The announcement also ties this stronger surveillance to progress toward better tools, including improved pre-mortem diagnostic tests and, eventually, treatments.
How does this opportunity relate to national health priorities?
The opportunity is tied to the Healthy People 2010 focus area on Immunization and Infectious Diseases, and it notes that measurable outcomes are expected to align with that national health framework.
What type of funding mechanism is used?
The opportunity was offered as a cooperative agreement. This means the CDC would expect substantial involvement and collaboration during the project, rather than simply issuing funds with minimal federal interaction.
What is the CFDA number and funding activity category?
The listing references CFDA 93.283 (CDC Investigations and Technical Assistance). It was categorized under the health funding activity area.
How much funding is available and how many awards were expected?
The total estimated funding was $70,000. The announcement indicated a single expected award. The award floor and ceiling were both $70,000.
Is cost sharing or matching required?
No. The announcement states that cost sharing or matching was not required.
Who was eligible to apply?
Eligible applicants were broad and included:
- Nonprofits (with or without 501(c)(3) status)
- For-profit organizations (other than small businesses)
- Public and private institutions of higher education
- Native American tribal governments and tribal organizations
The eligibility notes also called out community-based organizations, faith-based organizations, Urban Indian Health Organizations, and Tribal Epidemiology Centers as relevant applicant types.
What kinds of activities does the CDC appear to be looking for in a project?
In practical terms, the CDC is looking for a project that combines family-centered education and support with activities that enhance surveillance and case confirmation. Communication and collaboration among researchers, healthcare providers, and families are described as a key strategy.
When was the opportunity posted and when were applications due?
The announcement originally posted on June 17, 2015. Applications were due on August 14, 2015.
Is this funding opportunity still open?
No. The opportunity later moved to archive status in September 2015.
Who was listed as the CDC grants policy contact for access issues?
The listed CDC grants policy contact for access issues was Nicole Goggins (NAJ4@cdc.gov).
What broader public health concern is the opportunity trying to address?
Beyond individual family support, the announcement emphasizes strengthening the nation's ability to track CJD and any emerging variants through better surveillance and more confirmed diagnoses, with particular vigilance around variant CJD.
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